avonex discussions

If avonex doesn't thrill you, then tell your doctor you want to discuss other treatments. The studies show that the DMD's are all pretty much the same in effectiveness rate. It is their delivery method that is so radically different. Don't worry about questioning your doctors - that is important that you are a key part of all these discussions.

Hi - I am starting on Avonex next week and of course am concerned about side effects but like the once a week part of the treatment. Those that are on Avonex how do you handle the side effects any tips you can give me?

ve kicked around the CRABs here, a lot. Copaxone, Rebif, Avonex, and Betaseron are the primary four. Your doctor didn't offer Tysabri as your fifth, did he? I like the Decision Maker tool in the uk that walks you through the drugs and helps you figure what is important for you. You can access this at http://www.msdecisions.org.uk welcome to the world of drugs aand bills. I'm glad to hear you are getting treatment for your CIS. Congrats on that one.

This Forum is all about healthly discussions. Sharing our experiences with each other and offering comfort to those in need. We all admit to not being Neurologists, so we all follow the rule of "Check with your doctor, they know best." (Well some doctor's do...this has been the subject of much discussion about those that seem alittle on the "idiot side." Every profession has those.

Hi Eric- Welcome to our little MS encrusted corner of cyber space. Sorry you're here :-) Tecfidera seems to offer great promise. In addition to the benefits you mention, it's also an oral med! No injections or infusions! Many of us are in discussions with our docs about the possibility of switching. As to coping with the official diagnosis, we all have our own way. Like MS itself, no two coping strategies are the same. There is no wrong way to process the information.

We have many discussions about MS mimics, and quite a few members who have been found to have something else that at first seemed to be MS. They have stayed around because we are a good, supportive group, the best on the Web. I did Copaxone for a couple of months but gradually became very allergic to it. It's sure not for everyone. It does surprise me that you stayed with it so long. Now I'm on Avonex and adjusting well.

We can give you information from our own experiences that might help you be more informed going into discussions with your medical professionals. For example, I'll tell you that a mild tachycardia and Gilenya didn't seem to mix well for me. In your shoes I would aim toward something besides Gilenya. I can also tell you that Avonex has not had any apparent affects on my heart.

Hi, I was recently diagnosed with MS and had my first Avonex injection Friday. Friday night was tough (fever, chills, pain and eventually heavy sweating) but I felt pretty good by Saturday morning. Saturday afternoon I started feeling kind of down and by Sunday morning I feel even more so. I can't decide if this is a result of the drug or just the situation as a whole.

Sigh, I have a question from a friend. She would like to know if avonex causes calcium deficiency? She is diagnosed with ms. Not like me.

Is anyone on avonex? My dr. wants to switch me to avonex, but with having lupus, I really don't want to go on an interferon. I'm on copaxone, now but because I have large welts on my arms he wants to switch me. I don't want to switch. Do I have the right to deny a new medication I feel would be detrimental to me?

Flu-like symptoms are a fairly common side effect during the initial weeks of Avonex treatment. It is recommended that you take your Avonex injection before bedtime. Immediately before your injection, and for the 24 hours that follow the injection, patients have found that use of over the counter pain and fever reducing medications can help with this common side effect." You could also get on the Avonex website for further info. good luck. hope that you feel better soon.

I have been on copaxone for little over a year its not working for me so my neuro has asked me to try avonex. My avonex nurse is coming this evening but I am wondering how long you actually gave it to get the symptoms of the shot to calm down. I am crossing everything to hope I dont get the flu symptoms so bad but we will see. I have a husband that works away and 3 small kids to care for, I dont want to be in bed all weekend when its the only time we get to spend as a family.

Hi guys, has anyone not heard from the AVONEX people once they were put on it.??? I have heard from heath nurses, and today, got my WELCOME package, but still no product. I don't know what is going on, and of course the lady or the rep from Avonex is away on holidays till the 2nd. of Dec..... so, I guess we will do it next week ... Just to let you guys know, they stopped my antiobiotic IV today, and said that it was an MS attack. Wherever there are nerves, MS can strike.

Hi Candy, When I was on the Avonex I had terrible itchy skin. I would start scratching and I would well up from the scratching. I also found that it dried out my skin as well. I use pure coconut oil right out of the shower then gold bond lotion right over the top of the oil. It seems to be helping tremendously. The oil soaks in quickly and the lotions seems to seal in the moisture. I hope this helps. Sorry you have this to deal with on top of everything else.

The most popular DMDs are Copaxone and Avonex, but a larger number (28%) is on no DMD than on any individual drug. Two people are in clinical trials. I am going to put the info in tabular form below and try to post some pie charts to my photo section. If people think this is helpful, I could probably do something like this for the limbolander post.

//www.themcfox.com/multiple-sclerosis/ms-drugs/avonex/avonex-blood-counts.htm updated 2004, it might be worth finding out if your having a negative reaction and need to change DMD.

I've been on Avonex for 2.5 years and it's suited me well but I have just had a 4 week break. I then took my injection on Tuesday night and was strangely fine on Wednesday and Thursday but on Friday, Saturday and today I have lost about 50% of my strength from my left arm and leg. Is this likely to be a side effect from restarting the Avonex (muscle weakness) or a relapse?

After being on Avonex for 1 1/2 years I have developed new side effects?? Red eyes with severe pain (in my eyes & behind my eyes) It started several months ago and now happens with each weekly injection. Has anyone here had to discontinue Avonex due to side effects?

DX on 2/14...started Avonex last week with nurse helping and did fine. This week I thought I did okay but noticed the plunger did not go completely down. It was the 1/2 dose. Since I am inclined to over analyze, trying not to panic. Figure I'll be taking more next week...but since you all seem like you know your stuff...thought I'd ask the experts. Thanks.

Hi, I was wondering if anyone who has taken both Avonex and Rebif could give some input here. I have been taking Rebif since this past June, but have started to wonder about how Avonex would compare side-effect-wise. As they are both interferons, I would think they would be similar, but I'm not certain. The idea of once a week sounds nice in comparion though, so I would like some actual first-hand knowledge. Thanks!

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