avonex and seizures

I have the following to report Dr is very happy with where I am at however he wants to rerun ALL my bloodwork since I am having alot of joint aching and my ANA levels are elevated. Even checking Lymes and Lupus again. And he wants me to see a Rheumatologist. Had OCT exam and waiting on results of that - after blood work comes back we are probably going to adjust my spasticity medicine. This is my one truly aggravating symptom.

difficulties with comprehension, decreased memory, headaches, weakness, numbness, uncontrolled bladder, blurred vision, legs jumpy, and has had seizures. diagnosed 2002 - ms, diagnosed 1969 - mental retardation - low iq of 72 Have always had problems with comprehension and memory but feel it has gotten worse.

I have had MS for 10 years and I just stopped my AVONEX so I can try and get pregnant I know it sounds stupid but there is no studies on avonex and pregnancy so I just thought I would ask if any one else has been on some treatment or off to get pregnant? and how long were you off your meds ?

Have an EEG see what is going on and keep a record of your seizures and make sure to tell your doctor. Also if you are baclofen be aware that it causes seizures, I am on it now, but also take tons of seizures medication. Hang in there and don’t let the seizures freak you out, because I know it can, so try hard to relax. Sending you healing vibs.

) and still have a safe and fulfilling sex life. Your best bet is to discuss this with your doctors and possibly and Infectious Disease Doctor. The doctors may recommend vaccinating your partner. They may also consider the risk of contracting HPV to be a low risk exposure and do nothing. Most people with MS can be vaccinated with "non-live virus" vaccines. Gardasil is a VLP (Virus Like Partials) vaccine (so it is safe) protecting against infection by HPV types 16, 18, 6, and 11.

Hello Everyone :) I haven't been around on the forum or a while due to a string of horrible bad luck, but things are starting to look up so here I am :). I have a question about DMDs I have been on Avonex now for 5 weeks and have noticed a huge difference in my muscle spasms. It's as if the off switch got flipped! I went from having them literally 24/7 literally. My neuro said she hadn't really seen anything quite that severe she could see muscle spasms everywhere during my exams.

Does Avonex cause a lot of leg weakness and aching? Or is that something more associated with MS itself?

The sole purpose of Copaxone, Rebif, Avonex and Betaseron is to slow the progression of the disease and reduce the number of relapses. If you look at the studies, people on these CRAB's still have relapses, they just don't have as many relapses as people who are not on a CRAB. So it should not be a surprise to any of us on a DMD when we do have a relapse. The CRAB should be making it less intense and shorter in duration, hopefully.

Well Avonex is a lot like beta. Got a fever of 102 and feel like death. It hit me within 3hrs after the shot. Well at least it's just once a week.

I DONT GIVE MYSELF THE INJECTIONS EACH WEEK, MY HUSBAND DOES BUT THEY ASSISTANCE PROGRAM AVONEX HAS IS GREAT. WE PAID 10 A MONTH AND WHEN HE CHANGED JOBS AND WE LOST INSURANCE I HAVE BEEN GETTING IT FOR FREE. I DO STILL GET ACHY, EMOTIONAL BUT FEEL LIKE I AM ADJUSTING TO THE MEDICATION. GOOD LUCK WITH YOUR CHOICE. HOPE THINGS GO WELL WITH YOUR INSURANCE.

//www.rxlist.com/avonex-drug.htm) and, like other proteins, can only work within a very small range of conditions (ie pH, temperature). As the stomach is a fairly acidic environment, proteins will denature (fall apart) and so Avonex would be rendered useless. That said, there is a therapy available in pill form (http://www.sciencedaily.com/releases/2009/04/090429205613.htm). Called "cladribine", it may very well be the first treatment for MS that does not involve regular injections.

t affect your spirits, even though I think depression is listed as a side affect. I have been on Avonex for about a year and a half and have found that my right side reacts better when injected than my left. I also inject in the early evening, then take 2 tylenol and two naprox about an an hour later. Usually I wake up pretty free of the yucks next morning.

t have your rx yet, that tells you the problem goes back to your neurologist and the Avonex reps and you can deal with them on Monday. It is so frustrating to know that you are so close, but then have to wait and wait some more to start treatment. I know from my own personal experiences.

I am sorry you suffered the side effects. I was on Avonex for 15 years and found that if I started ibuprofen around 4:00 in the afternoon and took it every 4 hours or so, and took the shot around 8 pm on a Friday night, I felt okay by Saturday afternoon. I also put ibuprofen next to my bed in case the side effects woke me up during the night. I wish you all the best. Just remember HANG IN it will get easier.

AS PROMISED, I WENT AND READ THE PAMPHLET THAT COMES WITH THE AVONEX AND I DID NOT FIND ANYTHING IN IT THAT MENTIONS CALCIUM DEFIENCY. I EVEN READ IT TWICE TO SEE IF I WAS MISSING SOMETHING, BUT DID NOT FIND ANYTHING. LIKE I SAID IN MY PREVIOUS POST, I WILL BE SEEING MY NEURO ON TUESDAY AND WILL MAKE IT A POINT TO ASK HER ABOUT IT. WILL LET YOU KNOW WHAT SHE HAS TO SAY.

I relapsed in January and am now back on avonex. I was symptomatic free through out pregnancy and breastfeeding. When beastfeeding ended I relapsed with in 3 weeks. I was very disappointed and had a horrible time trying to look after my 6 month old baby inbetween the cortisone drips. But we got though it. Am now feeling great and just have to get through the weekly shots until the new drug arrives in South Africa in a few years. Hope you all well.

My sister has been on Avonex for 10 years and she told me the first couple of months are the worst. And so far it is true, it is getting better with each injection. She said she still has some weeks where it wipes her out but for the most part she is fine with it..

I do the injection at bed time, then take one Aleve and an Ambien. Once in a while I wake up with muted flu symptoms, and then I take another Aleve, and that does the trick. By morning the whole thing is over for me. This sort of thing is very individual, and reactions are all over the map. Some have no effects, and a relative few have bad ones that last 3 or 4 days. Here's hoping your side effects are light or non-existent.

m pretty sure that I have seen someone on this site ask about hair loss with Avonex, maybe they will see this and answer you.

After at least of 5 weeks of worsening effects from Copaxone and 8 weeks total, it's all over between us. I truly tried. Almost went to counseling. Arbitration was an option, and so on. The bottom line is that I had terrible allergic reactions that snowballed. I tried several kinds of antihistamines, plus Singulair, and a bunch of different creams. All I got were hives, bruises, welts, rashes and misery.

Avonex possible side effects are depression and flu-like symptoms--fever/shivers, body aches and pains, general crappiness. These are usually helped by aspirin, or similar products, particularly ibuprofen. I was on Avonex for a number of years. What you describe sounds to me much more like a relapse. I'm betting OTC products don't help. And although I do understand wanting a bit of a break from Avonex, not a good idea.

I've been on Avonex for nearly two years, and have had almost no infections. I'll be interested in hearing from others on this drug.

Avonex and seizures

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