tysabri treatment for ms

The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.

The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.

My lesions were increasing and I still had the fatigue that went along with MS. Ive been on Tysabri for almost 4 years with no flare ups. For having MS, I feel great. I used to get monthly blood work to check for PML and would take 2 to 3 month "holidays", just so my body wouldn't be over exposed to the Tysabri. (It lasts in your system for up to 3 months). I recommend Tysabri to anyone that has MS. It beats daily self injections, and its only once a month.

Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.

Have MS but only on sx control - currently Gabapentin - but live in UK so nothing unusual.

I have been on tysabri for about ten months or so. The only side effect I had was extreme tiredness for about a week and feeling a bit on edge. That usually passed in the first day or two. I was only really tired the first two or three times. I haven't had a relapse since starting it and it has been the onlly medicine to work for me. So I am very happy with it.

He reiterated that point yesterday. There are pluses and minuses to all MS meds. For me a big Tysabri plus is that I only have to deal with it once every 4 weeks. The thought of daily or weekly self injections was not all that appealing to me. Right before I saw my neuro yesterday I saw my naturopathic doc. Her office is two doors down from his, in the same MS practice. They work together and each is aware of what is being discussed with the other.

I just want to cry. I got the easiest fastest dx I think I have ever heard of on hear. I had an numb arm, c-spine MRI showed lesion...brain MRI lit up like an xmas tree with Dawson's fingers...and now I don't even know who my neuro is any more. I had a great neuro for 13 months but the DMD's were not doing anything as far as my condition. Of course I was lucky enough to have a neuro who understands that disease progression is not entirely based on an MRI.

I hope you will take the time when you feel up to it and post some details about your MS and treatment with Tysabri. It could be helpful to others. Again, welcome!

The Peripheral and Central Nervous System Drugs Advisory Committee has recommended that the FDA approve alemtuzumab for the treatment of MS. As with any of our favorite concoctions there are serious risks, but the reduction in relapse rate seems to outweigh them. http://www.medpagetoday.com/Neurology/MultipleSclerosis/42899?

Hi DH - Welcome to our group. I am currently getting Rituxan (rituxmab) and before this I was on Tysabri. They are the only two DMDs I've been on. I have had good experience with both meds. Tysabri lasted about 20 infusions before it stopped working. The Rituxan seems to be doing the job now. I started Rituxan in November of last year and finished my second round yesterday. I had no adverse reaction of any kind to either med.

From the makers of avonex and tysabri ---- STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL STORIES FROM OTHER PEOPLE WITH MS If you are looking to learn more about MS therapies, the TYSABRI Hope and Health Teleconference Series may help you make a more informed treatment decision. Many teleconference programs will be offered in 2011. Log on to hear a physician discuss treatment information and to hear a panel of TYSABRI patients share their personal experiences.

I am currently on the MS treatment Tysabri. Is there anyone on this treatment that have experienced seizures, blackouts or memory loss?

Someone said that Jose who died from PML were taking more than one MS medication. Is that more than one DMD or treatment for symptoms?

You might find this of interest- I have always wondered why we startt out wit hthe weakest drugs to treat our MS instead of going at it as agressively as possible - Biogen Idec and Elan Submit Applications for First-Line Use of TYSABRI in anti-JCV Antibody Negative Patients with MS http://tinyurl.

My ms specialist wanted me to try Tysabri since my MS is so active.Is it worth the risk, is it out of the question? I didn't receive much feedback on how at risk I was, I've never been on MS meds before. I signed up for Tecfidera before I learned there was a PML risk for that drug as well. I really need some guidance here!

My neuro yesterday was just telling about a medicine that is being used though it is not FDA approved for MS treatment. I cannot for the life of me remember the name (it starts with a C I think) but it is an immuno-suppressant that is used for those who have had a kidney transplant. I guess there has been great success with MS patients on it, too, but there are higher side effect risks than the normal DMDs.

Natalizumab (Tysabri) is licensed for use in the UK and has been approved for treatment on the NHS for those meeting the NICE recommendations (rapidly evolving, severe, relapsing remitting MS). People who are currently receiving treatment with Tysabri, but for whom treatment would not be recommended under the NICE guidelines will have the option to continue therapy until they and their physicians consider it appropriate to stop. What is the 'Risk Sharing Scheme'?

Has anyone been recently been diagnosed with MS and awaiting Tysabri treatment? And been suggested that they may have Bipolar disorder due to several mood swings?

So I went to another expert who agreed with the first doctor that treatment was called for and recommended Tysabri or Copaxone or Gilenia. I chose Tysabri because both doctors recommended it. I decided to stay with the second doctor because he was much more informative and helpful than the first although he works alone. The first doctors was a bit brusque. However , it has been almost 5 weeks since the paperwork for the Touch Program was started and i have heard nothing.

I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

Hi. I'm new to MS and Tysabri. I was just diagnosed in July of this year. I basically had no symptoms. Maybe a little fatigue and dizziness but it was always "explainable". I wouldn't even have gone to the doctor then if it weren't for numbness/tingling in my hands. I work on a computer all day so it was very annoying and I broke down and went. And after a few MRIs and other tests this is where I am.

Tysabri treatment for ms

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