Tysabri secondary progressive ms
Common Questions and Answers about Tysabri secondary progressive ms
tysabri
A significant number of people with Relapsing/remitting MS move on to Secondary progressive MS. In secondary progressive MS there are less likely to be relapses. There is a steady advancing of the disease. In my case, thankfully, the advancing is taking its sweet time :-)
The other 2 types of MS are progressive relapsing and primary progressive. These are distinct types of MS. They occur less frequently and tend to be more severe.
My initial diagnosis was Secondary Progressive MS. When I was idagnosed 3 1/2 years ago my doc though I was already beyond the reach of the CRAB's. My first DMD as Tysabri. I was on it for 20 months before it stopped working. I then switched to Rituxan.
Tecfidera is "stronger" than the CRAB's, but not as strong as Tysabri. I'm not sure here Aubagio and Gilenya fit on the strength scale, but I would ask your neuro about them. They are both oral meds.
Hi Grewy -
For me, Secondary Progressive MS (SMSP) is just a label. What matters is how you are doing. My initial diagnosis was SPMS. I had a major relapse in July of 2011. Prior to that MS was not something I'd ever thought about.
We did a little health/symptom archeology and it turns out my first relapse had been 20 years before. I was not suffering in the intervening years, nor was I looking for any kind of diagnosis.
I still get up everyday and go to work.
However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.
Fingolimod (Gilenya) and Mitoxantrone are very different therapies, the latter more common as a treatment for secondary progressive MS. Gilenya is prescribed for relapsing-remitting MS. From your limited description of current symptoms, with no historical perspective, I would guess your sister is secondary progressive. But it's only a guess. Perhaps that's why the four earlier treatments failed, because they are for relapsing-remitting.
By the time I figured out that I have MS, mine had moved from RRMS to secondary progressive MS. This means I may still have relapses, but some of my symptoms are around for keeps.
Were you told what flavor yours is?
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