tysabri side reactions

Hi All, I have a question that is mostly about Copaxone. I have been on it for 7 weeks. I am feeling better overall, but have a localized reaction EVERYTIME I take a shot. Initially and for a couple of hours I have severe pain, as if I am injecting acid into my skin. Then, I develop a reddend area about 6-8" x 4-6", with a painful lump that is always about the size of a lemon. It takes 5 or 6 days for the are to completely fade and then there is often brusing.

I just wish I knew if these are reactions/side effects? I could not find anxiety written anywhere as a side effect, however, on the NMSS forum site, someone else posted almost my exact reactions of a shaking, internal tremor, increased heart rate feeling.

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

Hi DV - I was on Tysabri for 20 months. I had no reactions of any kind. I would still be on it except A) I converted to JCV + and B) it stopped working. I had about a three month hiatus before starting Rituxan, I think that had as much to do with waiting for insurance approval than clearing the Tysabri ou.

I have been taking Tysabri for about 10 years now. After my treatment yesterday, we stopped at a house we own and worked in the yard about 10-15 minutes. After taking my shirt off when we got home, my husband told me to go look in the mirror at my back. They looked like bug bites, yet we've worked in that yard for about a week and I have not been bothered. I then began to wonder...did this happen because of my treatment....or are they just bug bites of some sort?

Well, it looks like I can't take copaxone. I get injections site reactions the size of soft balls. Fire engine red and itchy for an entire week. What do you do when there is no DMD that you can take? That's the boat I'm in now. Copaxone was really my only hope as far as a dmd goes. I can't do the interferons because I also have lupus. (in lupus, your body makes interferon) I'm open to suggestions.

I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?

Also, Gilenya, any reactions and side effects or success. I read about Gilenya, and the symptons are pretty much the same as the Aubagio. I am tryingto go into my neruo appt. with information, and a decision as to what I want to try. That seems how you have to do these things with my drs.... they need you to be informed, as they are to busy to give you information. ( yeah, you read it right) .....

I'm signed up to start Tysabri in the next couple weeks. My doctor really recommended it as he thinks it would be a good option for me. It's just kind of difficult for me to wrap my mind around because it seems like it's used more as a last resort rather than a first line of defense. This will be my first DMD, and I'm a little nervous. Is anyone else using this as a first DMD? What kind of side effects can I expect?

I was on copaxone from November 09 till this past July. I was lucky I guess since I didn't have any allergy problems with it. The reason I stopped taking it was the medicine wasn't doing any good for me. Then I started Tysabri, not sure if it's going to do any better, but it's supposed to be the best medicine available. I sure as heck don't miss having the welps or knots on my thights from the Copaxone shots.

I don't know what to think. I started on Rebif when I was Dx'd and the site reactions were so bad I switched to Betaseron. The Beta worked well for a while then I started getting reactions from that too. My Dr thought about switching to copaxone but if every other day injections were bad enough then every day injections are probably not a good idea.

s neuro appt as I am sure he is either a) going to try to talk me into staying on Tysabri (noooooo as I hide under the covers) or asking me what my 2nd choice is (???) but am clueless. I KNOW I don't want anything with the word NAUSEA associated to it in any way. Anyone want to give me their experience. I'm not shot shy, have given too many of those, just being whimy and wanting as few side effects as possible.

Hi Candy, I was on Copaxone for several months,but I had to come off it because of adverser reactions. I didn't have any reactions to coming off it though. I didn't have a dmd for about six weeks afterward, then I went on Avonex. I don't have any personal experience with the newer drugs.

I am allergic to cipro, topamax, zonegran, lamictal, keppra, tysabri and gilenya................ I asked my Neuro if it makes sense that MS patients would have a higher rate of allergic reactions due to our over active immune systems.....His response was that in theory that was completely correct, it only stands to reason if our body attack our own myelin, it would really attack an outside substance, like a foreign medication. I wonder how many MS patients have allergic reactions to medicines?

My sister, who has MS, is having the Tysabri infusions. I believe she said that her medicine and infusions costs are $7,000 a month. This medicine is quite expensive, and is usually not the first drug of treatment when diagnosed with MS. Typically, the other disease modifying drugs have not worked before this one is prescribed. As far as taking shots for the rest of my life, I really doubt it. What I understand is that a new oral medicine, Fingolimod, will be available next year.

I had a serious flu like side affect from Copaxone after 8 injections. Stopped injecting and after 20 days had courage enough to inject again. Had another milder flu like reaction. Have not tried since. I am about 100 lbs. Would a smaller dose be helpful or is this an accumulative result? Copaxone doesn't even acknowledge a flu like side affect while the interferron drugs mention it quite easily. Would I be more likely to experience a maybe even more severe reaction to these?

ve talked about the Tysabri risks around here more than once. Quix and I both are on the side that if it were our next option, we would definitely take it. But we're also in different stages of our life . You'll have to discuss the risk vs benefit with the doctor - it sounds like she is really on top of this. And definitely ask your hubby to go with you--- he needs to be a part of this conversation and the decisions.

Glad your Tysabri went well. Not so glad on no sleep! Let's hope that is a one night stand! Good for you!

Tysabri side reactions

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