tysabri on youtube

Does anyone have information on Tysabri? I haven't been told much on it, although I have been told by 3 different doctors I should take a look at it. I would like to know what others on it experience or experienced while on it?

In case anyone is interested, I came across a reference to this... From the UK MS Society, "in the seven parts of this video, Dr [Alasdair] Coles gives an overview on four current or emerging therapies for persons with multiple sclerosis (MS). These are Tysabri, Cladribine, Fingolimod and Alemtuzumab." http://www.mssociety.org.uk/support_and_services/audio_and_video/video/awareness_talks/current_and_emerging_therapies/current_and_emer.

My neuro would like to see me on Tysabri but I would prefer it to be on the market longer with more studies as to why some get that brain infection (one in one thousand). What I am doing is trying to buy time. I have agreed that if things become worse then I will do it. I have only been under the care of a competent doctor for six months. I know the MS is out of control and I know it is a gamble to wait. I guess my answer to you is...fear...plain and simple.

I have been watching the youtube videos about HCV. What's the deal with Lloyd? He scared me.

I happened to be playing around and found chiari on YouTube. There are soo many videos. And than fuethur into my investigation I found most med students in basic med schools have to do presentations on chiari and related conditions now. I thought what a huge victory this might be for all of us and for future suffers with med schools no longer throwing a few paragraphs our way. Go to YouTube and type in chiari.

Has anyone seen the video on youtube called Hepatitis c From A to Z? It's kind of long but seems to have some good info. But since I'm new to this thought I'd check here to get your opinion.

Anyone know any good videos or movies on YouTube that are informational or anything.

Thanks for the update! Good to know the only side effect was a one nighter. Looking forward to hearing more as your journey continues.

m hoping this sort of discovery gets us closer to finding an actual cause, and not just developing a pharmaceutical band-aid, for MS. I glad to be on Tysabri.

I am not doing well on any DMD. After 2.5 years trying my neuro has decided to try Tysabri. I have to have a blood test first. I am looking forward to trying it after reading the results others have had. I personally know someone on it and she is doing so well now. I am tired of being sick!

I never got nauseous on Tysabri. After 8 months on it, I started getting skin lesions, and my skin was REALLY dry. Much drier than usual. I still love the stuff, though. I will probably go back on it by the end of the summer.

Hello, I just finished #12 of tysabri. they did a 5 day infusion of Solmedrol,after that I noticed my scalp was itchy and I had little bumps ALL over my head. anybody else??? it is driving me CRAZY. IAM TO START a pill soon.

http://m.youtube.com/channel/UCU77auNZwIzXMQ2WtOtOGNQs there anyone here doing YouTube videos? Here is my channel!

Just sitting here... watching YouTube videos of CSections.. freaking myself out!

I recently had my 9th infusion. I've noticed a fiery joint pain in my knees 3-5 days after my infusion for the past few months. It eases after a week or so but doesn't go away completely. My doc doesn't think it is Tysabri because only my knees were effected. As time goes on I feel like more joints are involved. After my last infusion (5 days) I'm experiencing the same "fiery" feeling in my toes and stiffness in my hands.

Dang! I started taking Baclofen a week and a half ago, and within 2 days, I became extremely weak. I had a gig coming up, and I couldn't even complete one song in rehearsal, let alone 2 hrs worth of stuff. So, last Saturday, I weaned myself off the Baclofen to see if my strength would bounce back - and it didn't! It got worse! By Tuesday (yesterday) I was so dragged out I went into my Neuro's office while he was finishing his lunch.

from Tysabri could affect its sales growth, and that prospect weighed on shares of Biogen and Elan on Friday. Shares of Cambridge, Mass.-based Biogen recently fell 5.8% to $44.49, while the American depository receipts of Dublin-based Elan plunged 20% to $5.17. Biogen spokeswoman Naomi Aoki said the incidents of PML remain rare, reiterating the company's contention that the rate remains within the 1-in-1,000 patient level implied by its label. As of Sept.

t know what you ultimate decision will be on going with Tysabri but hope that you will get the relapses under control. I have been on copaxone for 6 months now and my doctor thinks it is not working as well as he'd hoped, but I'll stick with it awhile to be sure. Take good care and thanks for bringing up a very good and relevant question.

Hi Kat - I will get my 11th infusion in about 10 days. I have had no issues of any kind in conjunction with Tysabri. From the follow up MRI's I've had Tysabri seems to be doing the trick. No new lesions or relapses since I started. You will be tested for the JC virus prior to starting.

Some of you probably received the same email I did. Biogen sent me an email saying they could now help people get financing, even if you're on a Medicare plan. So far, only Biogen is working with Medicare patients. There's a lot of paperwork involved, but it look like I'm finally going to start a DMD again. All of Biogen's MS meds are available for the program: Avonex Plegridy Tysabri Tecfidera It's worth calling about.

Have MS but only on sx control - currently Gabapentin - but live in UK so nothing unusual.

Omg just saw some labor videos on YouTube, WOW ! kinda gets me nervous lol but im ready for it evan though I still have a long while. Plus I was thinking about TRYING to go all natural but yea I dont thinl I would be able to handle that much pain.

My initial diagnosis was SPMS. My doc started me on Tysabri immediately. He wanted to be as aggressive as possible. I've been on it for 17 months now, and so far, so good!

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Tysabri on youtube

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