tysabri ms update

From all the information I have received from the Tysabri folks. No one on Tysabri for MS treatment has developed PML in the first 11 infusions. That gives a year to see how patients do on Gilenya.....I may decided at that time to switch.

My MS doc always gives a small dose of Solumedrol, which is much larger than a usual prednisone dose, to his new Tysabri patients. They get the IVSM in the first hour. Then they get the Tysabri in the next hour. His experience says that the mini-dose of IVSM helps the Tysabri get to work faster by cutting any inflammation in our system. He does that for the first three Tysabri doses when just beginning this therapy. I hope you are less itchy today and can reach your doctor in the morning.

s re-purposing of their chemo drug to be used for MS as Lemtrada, you will be interested to read it appears the FDA had brought that plan to a screeching halt . http://www.businessweek.

Before the cancer I was waiting for it to come on the market. I am glad for everyone else. It is amazing there were no MS drugs when I first got MS. Then only injectables when I was finally diagnosed. Now look at all the new drugs on the market and in testing. It is wonderful. I love it that Teva could not keep this drug off the market.

As some of you know I went to see a new ms specialist today. This was not to switch doctors but to get a second opinion on the Tysabri treatment and to get a mri on the new 3Tesla machine. She was a wonderful doctor... she spent exactly 1 hour with me.... now 15 min. of that was talking about her hair LOL!!! I'm a hairdresser and she's coming to see me next week for color LOL... back to my appt., after all her questions and a very extended exam she stated that she deff.

For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.

As of March 2008, more than 26,000 patients were on Tysabri® worldwide. Since the re-launch of Tysabri in July 2006, no new cases of progressive multifocal leukoencephalopathy (PML) have been reported. PML is an often-fatal viral infection of the brain. Data from the PLEX study suggest that plasma exchange may be an effective procedure for accelerating the removal of Tysabri from the blood if PML infection is suspected.

Someone said that Jose who died from PML were taking more than one MS medication. Is that more than one DMD or treatment for symptoms?

There are several people at the clinic where I go for my tysabri who are getting rituximab for their MS. It's a potent drug but shown to be effective for some people. I am curious, also, why he decided to skip tysabri and use a bigger gun.

I am conducting my own, personal study on the benefits of Tysabri in conjunction with SPMS.

The Peripheral and Central Nervous System Drugs Advisory Committee has recommended that the FDA approve alemtuzumab for the treatment of MS. As with any of our favorite concoctions there are serious risks, but the reduction in relapse rate seems to outweigh them. http://www.medpagetoday.com/Neurology/MultipleSclerosis/42899?

Avonex Plegridy Tysabri Tecfidera It's worth calling about. Here's the number for the correct department 1 (800) 456-2235. They're open 8:30a to 8:00p.

Thanks for the update! Good to know the only side effect was a one nighter. Looking forward to hearing more as your journey continues.

• Although the absolute risk for PML in patients treated with Tysabri cannot be precisely determined, the U.S. FDA and the company have released data suggesting that the risk increases with increasing time on therapy. • The company changed the label of Tysabri to indicate that the risk of PML is increased in patients who have been treated with an immunosuppressant (such as mitoxantrone, and less commonly, azathioprine and methotrexate) prior to receiving Tysabri.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

He reiterated that point yesterday. There are pluses and minuses to all MS meds. For me a big Tysabri plus is that I only have to deal with it once every 4 weeks. The thought of daily or weekly self injections was not all that appealing to me. Right before I saw my neuro yesterday I saw my naturopathic doc. Her office is two doors down from his, in the same MS practice. They work together and each is aware of what is being discussed with the other.

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

They say there is may be one or two days the feel flu like but then they feel fine. I hope your insurance will cover it. The beauty of it is it the oldest MS drug around.

I was making such a steady decline and Copaxone did not seem to be helping. I could not take the interferons for medical reasons so my MS neuro suggested Tysabri. He has used it since it first came on the market and said out of the 88 patients he has treated personally, only one person had problems. That patient was given plasmapherisis and the neuro side effects stopped. I go to a different MS Center for my Tysabri infusions where they have a TOUCH program in place.

I saw my neuro on Friday and in the course of a fairly long appointment and discussion, I asked a lot of questions. One in particular had to do with oral meds, which we've been told for years are right around the corner. He says yes, they'll definitely be available very soon, but prescribing them will be difficult because of their side effects. Only select patients will get them. I asked if this included those who couldn't tolerate or just didn't do the injections.

) Think I am sticking with Tysabri for now, seeing neuro as well tomorrow and I know I will get a good report. Having a great summer with my boys... Just a quick update. I haven't been on the boards for some time, not too much extra time right now. I imagine September I will be back more often. (It is strange, i rarely think of MS anymore. I would love for that to stay.0 The only thing that has been increasing is Migraines.

However, she was also told that if she were to stop tysabri she was pretty much guaranteed to have an attack of the MS. She has an agressive form of MS and other medications don't seem to work. We haven't seen much improvement with tysabri, but at least she hasn't had anymore attacks while on it. Can anyone shed more light on this for me? I was hoping to gather more information on this if anyone has it. Please let me know! Thanks!

Tysabri ms update

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