tysabri ms therapy

I am one the patients that have been taking chemo for my MS for over two years. I had terrible allergy problems with the standard MS drugs. I have been taking methotrexate with a folic acid suppliment as I already stated for over two years. I have had great success with this treatment.

Tysabri is a more potent drug that the initial ones many people are offered -such Rebif, Avonex, or Copaxone - and it sounds like your neurologist wants to treat your MS agressively. that is a good thing. I would have a talk with the doctor and ask all your questions, including what type of MS does he think you have. It would be highly unusual for someone with PPMS to be offered a disease modifying therapy because they haven't been proven to be effective for that form of MS.

Okay, I've had MS for 13 years. I was just taken off Tysabri in July, I was on that for almost 5 years. I now have to go on Gylena in January, but before I start the new drug...I have to do 6 months of iv steroids. 3 days every month with NO taper! I have just finished my second round...and I'm ready to through in the towel. The side affects of the steroids are at this point almost not worth doing. They are trying to prevent a relapse since I am not on any MS therapy.

org/posts/Multiple-Sclerosis/Hyperbaric-oxygen-therapy-for-MS-There-is-little-need-for-further-research/show/1452989

While having a couple of steroid infusions I got talking with a few Tysabri regulars who see each other every month. One woman told me she had been an MS mess before Ty, and after starting the drug she had had absolutely no more MS problems. Lots of people here would say the same. The only issue is whether you are JC negative, which I presume you are. You go, girl!

You might find this of interest- I have always wondered why we startt out wit hthe weakest drugs to treat our MS instead of going at it as agressively as possible - Biogen Idec and Elan Submit Applications for First-Line Use of TYSABRI in anti-JCV Antibody Negative Patients with MS http://tinyurl.

I have been on all of the same meds for over a year, so maybe it is the build up in my system. I am looking into more natural therapy and hopefully going to be able to cut down on some of them. That is something I think about all the time. Good to hear from you I take lyrica, diazapam, baclofen, tysabri, cymbalta and evoxax(for dry eyes and mouth) I am soo hoping to be able to get off several of these meds soon.

I took Tysabri as my first drug, and was + from the beginning. I've been on it for almost 3 yrs and I think it has helped prevent future permanent flares. I have not heard that Tysabri can lead to more, its job is to help prevent more. It will not, however, reverse anything that has already happened or take away the pesky symptoms we often get. You can always go off of it but it sure is nice to only worry about it every 28 days!

I sometimes wish I could "kick my neurologist in the butt", but he really does mean well... I haven't been on a dmd since last July. Since then I've had two regular relapses, and another bout of optic neuritis (I had forgotten how miserable that was!) But he just doesn't think my MS is aggressive enough to justify Tysabri, and the injectables didn't work for me. Do I have the right to force the issue? Not sure.

Has anyone been recently been diagnosed with MS and awaiting Tysabri treatment? And been suggested that they may have Bipolar disorder due to several mood swings?

Which disease modifying drug therapy are you currently taking? With the recent addition of several new treatments, and as I ponder making a change, I'm curious as to how many here are on the various DMDs available. Also interested in those taking something not on the list (eg Novantrone), and whether you have been on more than one DMD and if so, why?

Just curious if anyone might be willing to offer any feedback. On Tysabri since November 2011 (9mos). I honestly feel like it is not really helping/doing anything. I feel as if I am on a very slow yet steady decline. Though I have had MS since May2006 I feel like I really "got MS" Jan 2011 (optic neuritis in Jan11 , flare ups, balance, feel like an older computer at times, left leg getting worse, a lot slower at everything) Being JC virus positive...why wait and take the risk...

Using Tysabri as a first DMD has more to do with the stage of your MS than your age. My first DMD was Tysabri. It was chosen because by the time I was dx'd I'd moved from RRMS to SPMS. There are no DMDs apporved to treat SPMS. This means that the firstline meds Copaxone, Rebif, Avonex and Betaseron (CRAB) are not generally effective against SPMS. The same is not true for Tysabri. It is considered to be more potent than the CRABs and is used in SPMS cases.

The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.

However, she was also told that if she were to stop tysabri she was pretty much guaranteed to have an attack of the MS. She has an agressive form of MS and other medications don't seem to work. We haven't seen much improvement with tysabri, but at least she hasn't had anymore attacks while on it. Can anyone shed more light on this for me? I was hoping to gather more information on this if anyone has it. Please let me know! Thanks!

I'm not on Tysabri, but want to bump this up so that your message doesn't get lost. My sister is on Tysabri, which she's been on for two years now. Her MS is not behaving like someone that has RRMS, as her MS is more like a train that keeps barreling down the tracks and is unable to be stopped. She was on Rebif for a year and she experienced a sharp decline over the course of the year. She started Tysabri, and her disease has slowed, but it's by no means stable.

However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.

Tysabri ms therapy

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