Tysabri ms medication

Common Questions and Answers about Tysabri ms medication

tysabri

Avatar m tn call the companies, I found that many offer financial assistance. Biogen and Copaxone do for Tysabri and I think the new oral pill does. Don't know which medications you refer to or if they are MS meds, but do contact the companies. It's worth a try, my first 2 years of Tysabri were free if I needed them.
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
Avatar n tn However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.
Avatar n tn I don't know much about MS but I was wondering if certain medications can cause lesions on the spine (or brain) to shrink or disappear temporarily on an MRI? Or if medications are meant to just alleviate the symptoms?
Avatar f tn I have to change my medication and I'm not sure what medicine I should go on. I'm left with 4choices Rebif, Betaseron, Tecfidera, and tysabri.
216354 tn?1262871346 However, she was also told that if she were to stop tysabri she was pretty much guaranteed to have an attack of the MS. She has an agressive form of MS and other medications don't seem to work. We haven't seen much improvement with tysabri, but at least she hasn't had anymore attacks while on it. Can anyone shed more light on this for me? I was hoping to gather more information on this if anyone has it. Please let me know! Thanks!
4848471 tn?1372238752 My ms specialist wanted me to try Tysabri since my MS is so active.Is it worth the risk, is it out of the question? I didn't receive much feedback on how at risk I was, I've never been on MS meds before. I signed up for Tecfidera before I learned there was a PML risk for that drug as well. I really need some guidance here!
Avatar f tn The medication should help stop further episodes not cause them. Your body causes them. You can go with the shots they know more about the injectables because they have been around longer.
5993128 tn?1384747803 Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.
Avatar f tn Which (CRAB/Tysabri) medication do think has the least side affects? Please vote because this poll is for an individual trying to make a serious decision, and the doctor told this person to choose their own treatment.
1831849 tn?1383228392 Just curios why would anyone use a medication with this possible side effect? I was diagnosed with PPMS in 2008... I am treated at Beth Israel Hospital in Boston, MA by a top MS specialist.
1475492 tn?1332884167 Someone said that Jose who died from PML were taking more than one MS medication. Is that more than one DMD or treatment for symptoms?
1115136 tn?1258778476 Before Tysabri, she was taking Rebif, and her MRI was showing advance in lesions. I think Tysabri has helped to slow down her MS, and if you ask my sister whether or not Tysabri has made a difference, she would most certainly say it had. For those of us with MS that have a more aggressive disease course, it's nice to still have an option available for us.
Avatar m tn I have MS and Neuropathy. I am currently on Tysabri. Previously I was on Betaseron and IVIG. When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.
Avatar f tn Testing the blood periodically is a good idea if you are on one of the MS drugs that can cause this. As far as I know, these are limited to Tecfidera, Tysabri and Rituxan, the first being a pill and the others infusions done at an infusion center. Keep in mind that one's white count doesn't go from fine to low overnight, or even in a week or a month--it's a process. So if your doctor prescribes one of these, make sure you have your blood tested every few months.
Avatar f tn ve been on it for over 24 months. We feel the danger of the MS going crazy if I went off the Tysabri is a higher risk at this point. I feel OK on the Tysabri. I've continued to have some issues, and had some new ones come up since I've started, but, again, my neuro and I both feel it would be a much worse situation if I wasn't on it. I have had side effects from the Tysabri and it's effects on my immune system, and continue to do so.
1613740 tn?1355108974 Can anyone explain to me what are the best medication for 2nd progressive ms thank you....
Avatar f tn I'm not on Tysabri, but want to bump this up so that your message doesn't get lost. My sister is on Tysabri, which she's been on for two years now. Her MS is not behaving like someone that has RRMS, as her MS is more like a train that keeps barreling down the tracks and is unable to be stopped. She was on Rebif for a year and she experienced a sharp decline over the course of the year. She started Tysabri, and her disease has slowed, but it's by no means stable.
Avatar m tn The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.
1831849 tn?1383228392 The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.
Avatar f tn MS is different for each of us, but if you are familiar with the 5 stages of death, MS runs along the same parallel, but we can go in and out of them and not in any particular order. Denial is my favorite when I am feeling good and have been good for awhile. My latest neuro thinks I've had MS since 1981 (no MRI then) and I went thru 3-4 before finding this one, 3 states away, and won't give him up for anything.
Avatar f tn I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.
5681139 tn?1372268736 He reiterated that point yesterday. There are pluses and minuses to all MS meds. For me a big Tysabri plus is that I only have to deal with it once every 4 weeks. The thought of daily or weekly self injections was not all that appealing to me. Right before I saw my neuro yesterday I saw my naturopathic doc. Her office is two doors down from his, in the same MS practice. They work together and each is aware of what is being discussed with the other.