Tysabri kidney disease
Common Questions and Answers about Tysabri kidney disease
tysabri
They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line.
www.msrc.co.uk/index.cfm?
I have been off and on the CRABs and tysabri for ? years. NO ONE can tell you what your particular outcome will be. In the early 90's the school of thought was no drugs until x happened. In early 00, school of thought was at first sign, get on copoxone.
Now tysabri is the au courant drug of choice.
I too was told I would be in a wheelchair at 19 and would just have to accept it. My right leg was paralyzed at time. Well, that doc lied, b/c I haven't been in a wheel chair since.
of prednisone being ordered at the time of
The 50,000 a week dose of Vitamin D is commonly prescribed to patients who are unlikely to take a daily dose. It is a reasonable dose. You need to know your D3 levels. Ask your doctor. Tysabri is prescribed for neurological disorders and for Chrohn's disease (generally on a 12 week basis). Go to the FDA site where there is extensive literature on side effects.
relapse/flair, whatever. It was 9 days of no fun. They even refused my Tysabri last week because I had a fever of 99.0. Am still on antibiotics for a UTI that I didn't know I had, which I think was really cystitis. Anyway, I have 3 more days of Ciptro and Tysabri is tomorrow. Will make sure I take aspirin to keep any fever down. I've been 6 weeks off Tysabri now.
Disease modifying drugs do NOT treat symptoms. You will discuss medications for your symptoms (such as fatigue, muscle spasticity, etc) separately with your doctor. DMDs play the long game and aim to reduce the number of relapses experienced over time.
Your doctor or nurse should have given you the drug information packet when presenting this to you as their recommended option. If not, you can go to Tysabri's website or the NIH website to find published papers and statistics on its usage.
I've been on tysabri for over a year and developed a bad itchy rash the past 3 months. Thanks so much for your input and I will check back with her posting.
Good luck to you too!
Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years.
The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS.
The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.
I was on beta seron for months.. Now starting tysabri.. No I don't carry jc virus. Anyone have input on this? My lesions are in brain and cervical spine is a mess with lesions. Arms n hands are awful. Have had the hugs as well. And the almighty "zapper", the elect current that runs through torso and hits you in the pelvic area. This disease is quite difficult to keep up with. Here then there then another area...
I wanted to let all my new friends know that I had my first MRI today since I started taking the Tysabri 6 months ago. I was diagnosed in 1995 and in 1996 I started Avonex- which made me sick everyday for years. I changed to Copaxon in 2000 and I hated it, so I decided to quit all MS medications, except for muscle relaxers, anti-depressants, etc. In 2007, my new neurologist asked me to try Rebif, but my insurance would not pay for it.
He suggested TYsabri and I agreed. Tysabri is safe. Your risk of developing PML, the nasty blood disease, is zero if you are negative for the JC Virus. Your doc should test you for it.
About LP's, I've had 3. I have had no pain or discofort of any kind associated with any of them. If they are done correctly they do not hurt.
If your doctor is giving you a sense of urgency, I would seek a second opinion. Very little about MS is "urgent".
09 and I have since switched to Tysabri. With tysabri, all of my symptoms, (tingling, numbness, and pain) are all but gone. For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.
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