Tysabri good or bad

Common Questions and Answers about Tysabri good or bad

tysabri

Tysabri is a more potent drug that the initial ones many people are offered -such Rebif, Avonex, or Copaxone - and it sounds like your neurologist wants to treat your MS agressively. that is a good thing. I would have a talk with the doctor and ask all your questions, including what type of MS does he think you have. It would be highly unusual for someone with PPMS to be offered a disease modifying therapy because they haven't been proven to be effective for that form of MS.

t want an active infection from anything that suppresses my immune system--including long term steroid treatment, Tysabri, or any of the new MS medicines. I hope research in the future is geared to finding a treatment for MS that doesn't suppress the immune system.

Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.

Ren, Good luck with Tysabri #1! I hope it will help you like it has helped me. I go for infusion #36 in a week or so, and so far so good. Still waiting to hear my JC virus antibody status. Did they test you for that? Hopefully the infusions will be as uneventful for you as they are for me.... :-) Keep us posted and let us know how it goes - PM me if there's any way I can help.

The third, fourth, fifth and sixth infusion all went well. I still had some problems just not as bad as before the Tysabri. After the sixth infusion I had my first post-Tysabri MRI. Now remember, I have had MS since 1995 and have had MRI's every year sometimes twice a year....and each one got worse and worse. My newest MRI showed improvement! The Tysabri was working!! I was in so much shock I couldn't believe it.

I have not missed any time for any of this, except the week back in April, when I was so exhausted I literally could no longer think or function. Otherwise, I have gone in every day, no matter how bad I felt...nauseated, vomiting, in pain...more times than I can count I have cried on the way into work cause I was so exhausted and felt so bad I didn't know how I was going to make it thru the day, and be able to hide how I felt from my patients. But I always made it.....

Hey Guys, Just wanted to give you all a heads up, in the interest of us all being informed patients... :) I saw this article this morning, and here's the crux of it: "New Case of PML Confirmed in U.S. A new case of PML, or progressive multifocal leukoencephalopathy, has been confirmed in the U.S., in a patient receiving Tysabri for the treatment of MS. After 14 treatments, the patient reported a change in health status, and the patient’s physician began testing for PML.

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

So the doctor recommends the flu shot. Im 28 wks pregnant. Do you think its good or bad to get the shot?

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