topamax and diamox

Hi everyone! I was just released from the hospital and I have Pseudo Tumor Cerebri and ICP. I am 33 year old female and never had a headache problem so this constant pain *****:( I know that Topamax won't treat a headache but helps to prevent... But I wanted to hear if anyone had any positive experiences with Topamax? Today is only my second day and I've only noticed mild dizziness. Any major side effect experiences? Thanks a bunch!!

I have not had DIAMOX< but my Dr put me on TOPAMAX which acts like a diuretic too...just not to the degree that the DIAMOX does. Not everyone has CSF build up post op....some develop it...the TOPAMAX was given to me to change the type of HA's I was still getting as a result of the EDS and cerviocranial instability I have....not CSF. If CSF is a problem for u, ur Dr would have or should have RX'd something similar.

Hi...I have not had Diamox, but am on Topamax and they r both sulfa drugs and would explain the same metallic taste..... I also wonder if like Topamax it may be 2 weeks b4 u see benefits...if u r like me it took 2 weeks for the Topamax adjustment period.

I am now 17 and I just recently have been getting daily headaches that keep me down constantly. I was on Diamox and that did nothing and now I am going to Topamax to see if that helps. I know it's hard aving this and it must be horrible for your sister. The only thing that works for my headaches is Vicoden but then I get really dizzy and tired. If they get too bad though I have to go to the ER and get morphine but I don't like how that makes me feel either.

She had similar symptoms following her decompression surgery and was put on Topamax and Diamox for 6 months. After a week there was improvement and now she is off all meds and feeling good. Warning: there are side effects like tingling, fatigue and soda tasting really bad. I do believe the Topamax calms the brain down. After all it is used to treat seizures as well as migraines. She never needed more than 25 mg a day. Good luck!

She had a rough recovery with meningitis and a pseudomeningocele. Her doctors have her on Diamox and Topamax since mid June which have worked like a charm and she is back to school and tennis. I realize she is deconditioned from her long recovery however she is very fatigued from her school day. Some of it is the medication. Should I ask her doctors to start weaning her off the meds or leave well enough alone at this point? Her follow up MRI is in December. Thanks for any advice!

I am on Diamox, Gabapentin, Pristiq, and DO look into B-vitamins, my neuro placed me on a higher Riboflavin and it does help. Still after two years no diagnosis and little help with symptoms. I wish you well kelly! Hope you feel better and come through this!

I am not on DIAMOX, but was on TOPAMAX for quite some time and no longer need it. TOPAMAX is similar to DIAMOX in that they are both diuretics and help with our headaches.

I'm on Diamox and the first time I took it I felt like I was going to pass out. The side affects wear off the longer you are on the medication, at least for me they did. I found that I could not take the diamox with any other medication. I take it alone and only at bedtime. I was taking it once in the am and at night. Since doing this, it's much better, and the diamox helps with the pressure I was feeling in my mouth, head, and ears. I hope this helps.

If, while having the allergy, it's possible you won't have a reaction, then this only increases the odds. I've been told by a doctor that some allergies and allergic reactions that occur as a child can disappear in adulthood, or at least be very mild. I'd say that if your Pseudotumor Cerebri is putting you in a dire state, it's worth it just to try it once...and if you're okay at first, to continue with some careful monitoring of how your body reacts to the medicine.

Went to dermotology and told nope scalp is fine. Then what is with the itching? Also anyone else taking Diamox and topamax? How is that combo working for you ?

My 17 year old son has suffered from a non-ceasing headache for over two years. We have seen doctors, been to the mayo clinic etc. We went and saw a new doctor this summer who ordered a MRV. The radiology reports states that the left sagittal sinus is either diminutive and atretic or thrombosed. Our neurologist here wants to talk to the doctor who ordered the test who happens to be on vacation. Our doctor told us it could be nothing or maybe we are getting somewhere.

We have had 7 lumbar punctures since May 2009 when she was diagnosed. She is currently on 1500mg diamox a day and Topamax 200mg a day. Neurosurgery will not do the VP shunt due to here weight 314pounds. Peds neurology will not put her on Lasix or increase diamox. We are in the hospital every 3 -4 weeks for lumbar punctures under anesthesia and fluro. Will lasix help or do I need to take here to a adult neurologist. No one seems to have the answers.

Im allergic to diamox and topamax, but they have me on keppra for my seizures, 2000mg 2x daily, Is it common for someone to have 2 shunts implanted?

I hurt in all my joints feels like I am losing my muscle in leftside,left side of my face feels numb,extreme neck pain ,fluid retention, and ears are popping and sloshing.Saw brain and spine doc and did Mri and spinal tap.cerebral spinal fluid pressure was 23.5, Doc said if it was 24 diagnoses would be psudotumor,so he diagnosed migraines.Paced me on verapimil,and topamax, medicine doesnt help at all, still in extreme pain.If anyone can help me with suggestions or alternatives please help?

m not really wanting the shunt because almost every story on here is not very positive. Theres alot of shunts being revised and broken and being replaced and I dont know the difference between an LP shunt and a VP shunt. Do you have any advise as to anything else that might help or even ease my mind about the shunts? I have children at home and can't nor dont want lose time with them due to headaches or spending to much time in the hospital cause of shunt malfunction.

) almost every day haha

I had a HA when I woke up this morning but after 2 cups of coffee and a half of pain pill and the Diamox I'm feeling pretty good. Thanks everyone for all your input it really helps me to know I am not alone.

I was wondering what medications people have experienced any relief from. I know everyone's body is different and what works for some might not work for others. Before I was diagnosed with Chiari, I was treated for Fibro. Doctors had me try Lyrica, Savella (started at a low dose and worked up to a high dose), Gabapentin and Roboxin. I've also tried Tramadol and Topamax in the past and with any of these medications I have found barely any or no relief at all.

Hi...well I can say that TOPAMAX helps greatly in changing the type of HA u get and once in a blue moon when needed Ibuprofen does help.....I know u do not want meds, I didn't either but I have not had my TOPAMAX since b4 Christmas and I am going nutz as I had HA's all under control.... U may want to see what may be causing ur HA's...for me I know it is my EDS and instability and TCS.....once u know it may be easier to know how to deal with it...

If it's intracranial pressure HA. Then a diuretic or glaucoma med might possibly help. There's one commonly used for chiari, but I can't think of the name....diamox? I've never used it because it's derived from Sulfa I guess, and I'm allergic to Sulfa. I've got hefty narcotic meds available due to my arthritis disease and back problems. They only take the edge off on a bad day. A dark room, no noise, an ice pack on the back of my head and neck; all help a little.

I was just wondering how your visit went and I found this post! Glad to hear it went so well. I didn't know Lyrica could help. Dr. Heffez told me Diamox and Topamax are the only options...so now I'm kind of curious! Good luck, I hope he is able to help you get rid of this awful pain.

I was diagnosed with Pseudotumor Cerebri May 31, 2009. I first had 3 spinal taps and it went undercontrol and I had some vision loss in my left eye and I've learned to deal with it. My doctor that was treating me tapered me back off my dose of Diamox in March of 2010. This september I got the same stabbing headache again and it was back.

So my neurosurgeon put me onto Diamox. Ends up I was allergic to it (sulfa) so I took/take Topamax which lowers csf volume. It has another benefit of being a headache preventative too so it is also part of my pain regime. Now the pressure is a moot point as I started leaking from my left ear, intermittently about three months after that. So now I am having a workup on the current leak. Seems like my body want to have it's own "built in" shunt.

Topamax and diamox

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