Temodar patients
Common Questions and Answers about Temodar patients
temodar
We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
This refers to a Sentinel node biopsy I had 6 years ago. The surgeon suggested it and I blindly trusted him to have it done. First, no family was allowed in with me. (If they had, they would have realized the trauma that I was going through). With the first injection, I bolted upright, fully screaming. It was the WORST pain I have ever been through. He had his assistants push me back down on the table and kept going with me screaming nonstop. I was so frightened. I was in a daze.
Have any of you chronic pain sufferers noticed how many of our fellow patients who surround us in the waiting room seem to laugh and talk and never dwell on why they are really at the Pain Clinic in the first place. This annoys the hell out of me. These very same people will mope and drag theirselves into the office, check in at the sign up desk, and once that is done start socializing.
I was wondering if anyone else here was considered "high risk" for treatment (the "typical" treatment w/ pegasys (interfuron) and copegasys (ribaviron) and what their experience has been with both access to Doctors willing to try the therapy with them being "high risk" patients, and the therapy itself.
I am wondering if anyone has ideas what we can do as chronic pain patients do to change our laws. Do we get a class action attorney? Do we get petition send to Congress? I know with as many people who are legitimate pain we can do something if we join together. Anyone have ideas?
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