Minocycline lyme

Common Questions and Answers about Minocycline lyme

solodyn

PS If you're up for some heavy reading, you might try the ilads [dot] org website, the 'about lyme' tab, and read Dr Burrascano's treatment guidelines. You could search for 'minocycline' and see what comes up. It's written for MD's and gets too heavy going for me after a certain point, but for what it's worth.
Hey All, My LLMD has added minocycline to the bicillin I am taking. Anyone have any experience with minocycline. I begin taking it tomorrow (Tuesday). He has also added artmesia (spelling?).
Anyway because I wasn't getting better my doctor recently decided to put me on an antibiotic called minocycline. I was wondering if say Lyme presented itself when i was 12-13 would it still be treatable by such a drug? I take 50mg two times a day.
IGG (these are antibodies your immune system makes later on, some time after infection) *18 kda+ this is 'highly specific to Lyme', and some docs will diagnosis Lyme based solely on the presence of this band. The + sign means you tested positive, and 'specific' means that pretty much ONLY Lyme will show positive on this band.
Started Minocycline 100mg 2x per day for suspected neuro Lyme and feel horrible. I know herx is possible, but feel more like I'm experiencing side effects, and wondering if I should switch abx. How long should I stick with this? Anyone have success with Minocycline? Do the side effects lessen with time?
Well it's official... I was Dx'd today with Lyme Disease. The LLMD I saw was very confident in the dx. It was so weird cause this morning before I left to the appt my regular GP nurse called me (totally out of the blue) and said that my dr wanted me to come in for a follow up. I was a bit confused as the last time I spoke to my dr by phone she said she didn't my IgeneX tests revealed much but that she was going to look into it some more. Well that was several weeks ago.
Hi. Who diagnosed your Lyme? My Lyme doctor is Dr. M in Rockville. His partner is Dr. F. My brother was treated for Lyme and Babesia by Dr. Singleton. Thanks for the compliment on my report. I owe much of it to my new doctor. I just re-read it and am embarrassed by my mispellings. ( I probably made a few more just now. lol) We need spell check and a modify post option. If I may ask, why are you seeing Hopkins and a LLMD? Just to be sure/second opinion? Good luck at the appointments.
• My symptoms seemed to get much worse after taking minocycline antibiotics for acne and never really got better. • Before I was chronically sick I spent about 10 days in the hospital with some extreme form of illness that had flu like symptoms including me fainting, puking and diarrhea. I did seem to make a full recovery from whatever caused this illness so I’m not sure if it is related or not. • I have some minor digestive issues but nothing to bad.
I think it can improve once the Lyme is treated. Only time will tell. Since beginning a starter dose of minocycline 2 weeks ago, I have seen my body temp as low as 95.2. I checked it a few times b/c I thought for sure the thermometer was faulty!
To beat it all, my acne is worse than before the minocycline! It's supposed to help. I not only feel aweful, I look aweful. My doc wants me to get my hives under control before we consider the next treatment. I don't have an appt. again until July though! What am I supposed to do? I need more reassurance, more contact from my MD so that I know he is trying everything he can. I guess I'll have to wait until I see the LLMD in Sept. to get "real" treatment.
but our immune systems manage to hold them off until we are re-infected (ticks aren't choosy) or our immune system gets worn down. If your doc is proposing to treat an entrenched case of Lyme only with minocycline, I'd get a second opinion from an LLMD. And ...
I also have low grade fevers that come and go with frequent sore throats and persistent lymph nodes in my neck. Rheumatological work-up was unremarkable. I was recently tested for lyme because I'm an avid hiker who's been all over the country on extended hikes. IgM blot showed a strong band for p39 and a band for p31. Lyme doc said these bands are very specific. IgG blot only showed p41, p30, p58 and was labeled "indeterminate" for p31 and p39 so technically a negative result.
You ask only people with a 'firm diagnosis' of Lyme to respond. Diagnosis is just the first unclear thing about Lyme ... and whether a diagnosis is 'firm' is sometimes questioned due to the confusion in medicine about Lyme etc. So what is it you are asking to find out specifically?
There are numerous different strains of Lyme, and I believe I have read that those in Europe are different from those in the US. The symptoms of Lyme vary from person to person as well, so hard and fast answers are hard to come by. Were you tested for co-infections? Was the tick tested for which diseases it was carrying? It's also possible you were bitten more than once, and got different diseases at different times ...
In your situation, I would find a Lyme specialist, an LLMD (patient slang for a 'Lyme-literate MD', meaning a doc who takes Lyme and its coinfections more seriously than it seems your docs do). I went through 20 docs before getting a Lyme diagnosis, so been there, done that. Rheumatologists are among the 'Lyme deniers' who do not take it seriously, so I'm not surprised at the reaction you got. I'd move on. Interesting that magnesium helps you ...
A good Lyme doc gets hints and clues about what you might have from the symptom assortment. Lyme has all sorts of manifestations, different in different people, and different in the same person over time. Complicating the issue are any co-infections that came with Lyme. Ticks are tiny sewers and carry all kinds of garbage.
The only problem with Lupus is I was misdiagnosed with lupus and MS and other illnesses and it was Lyme all along. Lyme disease does exist in Australia. You may want to google Lyme doctors in Austalia. Call the doc cave76 suggested and maybe he knows of other LLMD in the country. Long term antibiotics are necessary if it is Lyme. The symptoms you described before are all symptoms I have had or still I have. The sooner you get treatment the better. Let us know if you have other questions.
You need to be tested for co-infections. I have 2 in addition to Lyme. Bartonella, Babesia and Lyme. Minocycline is a cousin of doxy. Burascano mentions it as a good one to try, it treats Bart's and Lyme. After 1.5 years it would be good to switch meds. I take Flagyl and tindamax on a rotating basis for cyst busting. When I first got very sick, I had flare ups every 4 weeks. I don't anymore. Another opinion might be a good thing to do. Keep us posted.
I know I was diagnosed with Babesiosis, Mycoplasma and Lyme (which Lyme I'm not sure). He tested for Erlichia, Western Blot, etc. And said he is going more by symptoms that I have a third. He has me on Clindamycin and a load of homeopathic treatments. IAG, Kapperest, Sytox, probiotics, and a regimen of vitamins. It is a great deal to deal with. He emphasizes I limit carbs. He told me to start Sam-e recently, 800 mg. Due to the looming depression and neurological difficulties I'm having.
According to my IgM, I had three indeterminate marks for three double starred bands, and according to my IgG, I am positive for Lyme using IGeneX standards b/c I have two double starred bands that are positive and one indeterminate double starred band (I presume you are all familiar with the jargon, right?). On the IgM, marker 41kDa has three positive signs next to it, suggesting I have definitely been exposed to a spirochete, which is the class in which Borrelia burgdorferi falls under.
I have improved since starting Lyme treatment. If your LLMD has positive tests for Lyme I would stick with that. Like Jackie said, mainstream doctors don't believe in Lyme so they give you other labels that fit your symptoms. You don't want to take steroids and wind up in the hospital like I did. If you didn't have Lyme a good LLMD wouldn't say you did. Let us know how you are doing.
She was reading about Lyme, saw an LLMD and is now out of the wheelchair. Wasting 20 years over a misdiagnoses.
You have tested positive for Lyme and Babesia. Lyme is famous for producing varying antibodies over time. You could test different every time. If your LLMD only treated you with Doxy in the past, then that's not a very well informed LLMD. Doxy does not cure Lyme once it's past the early stages. Dr. Eva Sapi has shown in lab tests that Doxy triggers many of the spirochetes to curl up into ring forms and to form cysts to hide from the immune system.
Confused and getting desperate,. I have a script for minocycline which I havent started yet as I am worried about taking too many drugs. I also take magnesium for muscle twitching which helps a little still get a weird rolling muscle feeling in legs. I guess I am wondering what others think of my situation this all started in November after a terrible gastro issue which was labeled Gastritis that lasted a month.
Since I want to go to medical school, I knew a little about lyme. I also knew it can cause nervous system problems though I did not look into it any further due to the fact I do not remember having a weird rash, or even being bitten. Two days ago, I started thinking about how everything started so suddenly, and I remember I went up to a mountain like area here in California. I remember something bit me on the back of my neck. It felt like a needle going through my skin.
Hi all. So the lyme docs have diagnosed Lyme, Bartonella, and Mycoplasma. It has just been over 3 months now since I have been infected. Does anyone have any ideas on what the best possible early treatment should be? I was literally taking minocycline 3 days after being infected 200 mg a day. I am still taking 100 mg twice a day to this point. One month in I started banderol/samento which helped. I cranked up to 30 drops of each twice per day.
Here is a great article about food interactions with drugs sometimes used to treat Lyme and coinfections. I have been on a few of the meds listed in the artIcle, and I was unaware of these conflicts, especially dairy / calcium with the tetracyclines (Doxycycline, Minocycline) & fluroquinolones (Cipro, Avelox, Levaquin). It also mentions that caffeine, and therefore chocolate, can interfere with some antibiotics, but then doesn't say which ones. http://health.yahoo.
there is a split in the medical community over Lyme disease. The Infectious Disease Society of America (IDSA) takes the position that Lyme is a hard disease to get and an easy one to cure with a couple of weeks of antibiotics; IDSA has held this position for quite a long time.
I'm now covered in a rash of red bumps on my thighs, elbow and behind one ear and it is really itchy. I have been taking minocycline for over a week. I started acyclovir (Valtrex) for my HSV-1 last night. Now...the rash. Could this be the new med or herxing? Neither?
) I know for me I tolerate minocycline better then doxy. Right now she has me on mino (plus 3 other abx) 2 weeks on, 2 weeks off. I know the weeks on I'm dizzy, anxious and depressed. The weeks off my mood gets better but my nero lyme/bart/babs symptoms are back. So basically, I never feel very good. I don't know it this helps you at all but in my lyme brain opinion, my foot problems are due to lyme, and minocycline make me somewhat dizzy, anxious and depressed. Hope you feel better soon!
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