Graves disease ptu
Common Questions and Answers about Graves disease ptu
graves-disease
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
iam apatient who suffers graves disease. My question is : Although I am almost 4 months on Carbamizole treatment 60 mg + Taking inderal ( propanalol), but the levels of my T4 & T3 are still high and the levels of TSH is less than 0.01.
what do you think , should i sstop the medication and think of the other allternatives like the radioactive iodine or surgical removal?
I was diagnosed with Graves Disease approximately 10 years ago and have been treating it and dealing with it fairly well. I have even gone off maintenance meds (methimozole) was on very low dosage, did not respond well after a long time. Recently was put on PTU and it has been suggested that I do Radioactive Iodine Therapy or Thyroid Surgery even though I am responding to PTU positively. I am on 150 mg a day and it is said that might be lowered to 100mg/day.
With both FT3 and FT4 as low as they are, it's no wonder you feel like you were run over by a truck; add a severe cold to the mix and you probably feel like it not only ran over you, but backed up and did it again.
We have to back up a little bit, though; I just realized what you said in your first sentence: "i was diagnosed with graves disease and initially shown as hypo". Graves disease is associated with being hyper, not hypo. Please clarify that.
Our daughter has been dx with Graves disease. She is on 30mg of tapozole. Our problem is these seere headaches. They come in waves mostly from her forehead on the right side. She is dizzy and has stomahaches during these episodes. The headaches are there during the day but are not as painful as at night. Her heartrate fluctuates and she is on a beta blocker for that. We were told that Graves disease does not cause headaches. She had a MRI and it was normal.
I've had Grave's Disease for about two years now. Maybe three. I had been taking PTU, an anti-thyrpid, three times a day for about a year without problems. Then I started having palpitations and other symptoms of not feeling right and blood tests showed I was taking too much PTU. I went down to taking it twice a day for several months and it was fine. But through more tests and such, my doctor said it seemed I didn't need it anymore and I could stop taking it.
I have had graves disease for 5-6 years now. I take one 10 mg of Methimazole at night time and that is all. I have been very stable on my medicine for years now. I have also been very lucky to not have any problems with my eyes or other symptoms of that nature. I always get concerned when thinking about pregnancy because I want to make sure it is safe for me to conceive. Also, I know that your thyroid can get worse and better during and after pregnancy.
Bryerly,
You need to have your labs tested again. Your symptoms describe the very way I felt when my TSH was 89. It sounds like you are going more hypo & you need to decrease the PTU again. Maybe your Graves is starting to settle down & you need to stop the PTU. You won't know until you have your levels checked again. Bug your endo., you know how you feel more than he does...& severe hypothyroidism needs to be treated right away. I know how you feel & it's horrible!
m a professor and a researcher, and I simply can not imagine how I would keep my job during the year following surgery if it brings on these hypothyroid symptoms while we fiddle with doses, etc. I realize PTU carries the risk of liver disease, but how big is this risk with such a small dose? How many years might this be a safe option (yes, I realize nothing is 100% safe).
My daughter (18) had had Graves Disease for a couple of years now. They had her on PTU and now want her to have Radioactive Iodine. Has anyone done the RAI? What can we/she expect? I've heard some bad stories about being unable to be around your family/friends for a week and long roads until finally/if ever getting the thyroid back to "normal". Anyone's thoughts?
About a year ago, she was diagnosed with what appears to be Graves Disease due to her thyroid level tests. She was on Tapozole for a couple months, which did not work, so in November or December 2009 she switched to PTU. Her levels have been improving up to this point and the Endo has been lowering the PTU dosage amounts - she is now taking 25mg in the morning and 25mg at night most days but a couple days a week she takes 50mg in the morning and 50mg at night.
I am a 16 girl who just found out she had Graves Disease this summer. I haven't met anyone else with Graves Disease and I don't know anyone else my age who has any sort of problem like that. Why did I get it so young?
Hi everyone. I was diagnosed with Graves disease Oct 08. I was put on Carbimazole which after 5 months of swinging from hyper to hypo my endo said I was sensitive to it and switched me to PTU.
I've been taking PTU 50mg twice daily for 5 months.
My hair loss has returned, the insomnia, the fatigue, the palpitations, the overheating and anxious feeling.
It may be worth coming off the PTU to see what really happens, also of interest would be TSI and TBII which are markers for Graves disease. If you are on a low dose PTU (50-100mg/day total), stopping it may reasonable with close observation. Remeber, I-131 therapy is never an emergency, so it is important to make certain the hyperthyroidism is likely a consistent problem requiring definitive treatment;.
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