Copaxone pregnancy

Common Questions and Answers about Copaxone pregnancy

copaxone

For those of you women who have taken Copaxone, Have you ever noticed a decrease in your period (noticeable) or even disappearance of it. I have taken three pregnancy tests all negative and this is not normal for me. Just wondering if it could be the medication. Have any of you expreinced this?
I have read all the information about why I should not breastfeed and begin taking my Copaxone again when I deliver. I really want to do both. (I am due in January) I have a few questions... I would like to find out why there have not been any tests done on this. Women with MS have babies everyday and feed formula to those babies. Why haven't we done a study where as the babies get formula fed, the mother pumps to for testing??? How many mothers would be needed for this kind of test?
I found the forum a couple of months ago when searching if Copaxone increases blood sugars. The thread I found was from 2008. My sugars have been so under control and no AIC's over 5.4. I was off meds for a month after my the delivery of my daughter and was still so under control that my PCP decided not to refill my Rx. After 3 months of Copaxone my morning fasting sugar is still high anywhere from 120-150. They have always been in the 70's and during my pregnancy, my highest reading was 99.
I wonder if the new activity will prompt my Dr to seek different treatment ..how do any of you fair with Copaxone? I am very very new at this..I don't even know what "new lesions " really mean. I understand we all have varying experiences..
Went for mri's and they of course show brain lesions but there are 2 lesions on the spine. The neuro wants me to go on copaxone. Here is my question, what would you do if after 17 years of being symptom free? take the copaxone or not? I am very grateful that i have been asymptomatic for so long and I am not depressed. It is what it is and it could always be worse, I am just very confused and not certain about the meds.
However, being on an Interferon MS med does often cause miscarriage. The interferons are Avonex, Rebif and Betaseron. Copaxone is not known to increase risk of miscarriage, but it must carry the warning. Pregnancy is not dangerous for women with MS. In fact, there is some data that over time it may be beneficial to the course of the disease. I would recommend that you be tested for the MS mimic that does cause increased miscarriages.
I believe that is the main reason women are urged to discontinue the interferons three months before a planned pregnancy. I can't find strong evidence for the same caution for Copaxone users but many docs will always err on the side of caution (rightly, imho) when considering reproductive precautions.
I heard that some symptoms can almost disappear when pregnant. I am also on copaxone and my neuro said to stay on it until I find out that I am pregnant. I have read that you should stop using your meds when you start trying to get pregnant. It could take a few months to get pregnant, I need some info or personnal stories Thanks everyone!!
) I've theorized that the real problem was in switching from Copaxone to Betaseron. I never had a 'down' period. I went straight from Copaxone to Betaseron. During the first week of titrating up, I had the blood clot. Could the clot and the positive anticoagulant test have been caused by the switch? My other theory is a little more complicated (and probably more likely.) I have a rapid heartrate sometimes when I'm very tired/fatigued.
Basically, just talking about MS. There is NO problem with having a pregnancy and no danger to the child with the mother having MS. Sarah is right except the increase in risk of the child developing MS. The risk goes from about (and I really mean ABOUT) 1 in 750 for the general population to a risk of "about" 1 in 50 with a parent with MS. Now, as for the mother.
or drug that can cause miscarriage. However, it does not appear to damage the baby, so if the pregnancy proceeds, then no risk of birth defects has been noted. Interferon is a substance that is naturally produced in the body by the immune system. I wonder why they would continue it when the pregnancy state is so beneficial itself to the disease?
How long were you on it before you got pregnant? Was the pregnancy easy or hard without it? I heard the symptoms usually go away with pregnancy. What do you or others reading this think of copaxone?
Here is an interesting (and useful) website for pregnancy nutrition. Brewer's Pregnancy Diet. http://home.mindspring.com/~djsnjones/id96.html I much more agree with this site about the importance of very good nutrition over extreme calorie restriction. Disgusted!
The causes of tinnitus that need to be ruled out include - workplace exposure to loud noise, overdose of aspirin, overdose of aminoglycoside antibiotics or overdose of quinine. The other common causes are pregnancy , anemia, thyroid disorders. Discuss this in detail with your doctor and get the relevant investigations done to. Let us know about how you are doing and if you have any other doubts. Regards.
I will be on Copaxone for two weeks this Saturday. Total of 12 shots so far. Never had any really "BIG episodes." I got the feeling of being shaken in a bottle (4 days before I started on Copaxone) That was really the only episode I would say. That lasted 2 hours or so from mild to strong back to mild within those two hours. Nothing since until this week. I've had the dizziness, I can't deny that one, but... that comes and goes all the time, but not ever very bad.
Heard women with MS, do pretty good with pregnancy, without the drug. I would suggest her trying to get on Copaxone. I'm gonna be starting it soon. It's been said to have less side effects than other drugs and doesn't require liver, blood or other tests. It works inside and outside the nervous system. All the others only work outside.
As far as I know, there is NOTHING that will stop a flair-up, only things to hopefully slow it down or help prevent the flair-up from starting and that is the disease modifying drugs, like Betaseron, Copaxone, Rebif, Avonex and the other one that I can never spell.... Wouldn't it be great if scientists finally found something that would knock a flair-up out in it's tracks? The only thing I know of right now, which is not an option at my age, is pregnancy....
I have just been reading a list of symptoms associated with B12 deficiency and I have just about the lot! I was just checking it out as I had a 'slight' B12 deficiency during my last pregnancy which was left untreated & 4 months afterwards I had my first bout of ON and the MS diagnosis. I think they did test my B12 level when they did initial bloodwork and they said it was normal but do you think I should get a 2nd opinion before I start copaxone?
Also, I've heard different opinions on relapses during pregnancy. My neuro said that pregnancy is a natural immunity to MS relapses. I've been told by others that their neuros said that it just makes it less likely to have a relapse or that they are milder during pregnancy. What is your opinion on this? Thanks so much!
Okay, so my OB and OBGYN Specialist both say that Copaxone is a Category B and is safe to take during pregnancy. They said it is safe because it is not an Interferon. Does anyone have any medical statistics, white papers, or published studies that shows otherwise? I need real facts here. Quix - thanks for all your help and clarification. I appreciate it! Thanks.
Thinking maybe it was not the right choice for me my neuro switched me to Copaxone. I chose to stop Copaxone due to significant hair loss. If it was the only choice I would have accepted the hair loss but thankfully there are many choices. I had a newer blood test for biomarkers and my Neuro said the betasaron should be effective for me. So I am currently giving it a second chance. If it does not work my next step is Gilenya.
The problem with the interferons and pregnancy is that they have a powerful ability to cause miscarriage. All of the interferons do. Now that you are already pregnant all you can do is stop the med. In my reading the tendency to cause miscarriage is the main concern. I read repeatedly that in the pregnancies that went on to deliver, that there was no problem with malformations or any other type of birth defect. The babies are healthy.
I was off oral medication for Type 2 diabetes a month after the birth of my child. My glucose was in non diabetic ranges and I had lost all of my pregnancy weight. I was DX'd with MS; began Copaxone and immediately noticed an increase in sugar as I was still checking to ensure nothing was out of balance no longer being on medication. Since only 1% of patients report increased blood sugar, my Neuro was in denial as well as Shared Solutions.
February, 2008 Type of MS: RRMS The med, if any you are on: Copaxone Time for first symptoms to diagnosis: 10 years, at least How many neuros before diagnosis: 1
(I'm sure so many others feel the same way!) I am trying to find out how safe Copaxone is with pregnancy. I'm not pregnant now, but would like to be soon. Should I start treatment now, of just wait until after delivery to start? I am getting too much conflicting information on how safe it is to do treatment with child. Thanks for chatting with me. I will be back, but I'm not online too often these days. I'll try to check in from time to time though.
I am not diagnosed, but I do know that most of your symptoms will lessen during the pregnancy. Of course you will have to go off of a DMD that you are on before you try to conceive. I would not be worried that the side effects would make your pregnancy more difficult because usually they won't. I will warn you that most studies show a flair is likely to occur soon following the birth of the child. I am sure other on here will also post and explain better than I.
Thanks Bob. I asked about teh immune system supression and he acted like it should not be a problem, but that is the very thing that has me worried.
im 6 weeks and 4 days does anyone know if I will have a relapce after birth ..im off the copaxone but im scared because I resently got diagnosed with m.
Hi Angie, I was Dx on 4-1-13 after having Optic Neuritis last Aug during pregnancy. I completely agree with Corrie. Begin researching which disease modifying drug that would work best with your lifestyle. Since I saw the Neuro in Nov and couldn't proceed with MRI until March; I sort of let the possibility of MS slip my mind during the remainder of my pregnancy. My biggest regret was not researching the disease or DMD's better.
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