Copaxone long term

Common Questions and Answers about Copaxone long term

copaxone

382218 tn?1341181487 php Long-Term Study With COPAXONE(R) Indicated Protective Effect On Brain Tissue In Multiple Sclerosis Patients Article Date: 29 Apr 2009 - 7:00 PDT "New data presented provided evidence that long-term treatment with COPAXONE® (glatiramer acetate injection) may offer sustained protection from neuronal/axonal injury.
Avatar f tn Hi Starryeyes, thanks for the email/info. I think the Avonex is working well but not totally sure. Dr. needs to compare my recent mri with the 2 previous. It's strange that I don't seem to have any trouble with the Avonex. I'm so lucky. I exercise regularly, eat healthy, & see a chiropractor. I believe this all helps. Any kind of side-effect I get is so nothing really (feeling cold on & off all the time & slightly sore all over body).
Avatar f tn I'm still undecided whether i will bother with these drugs. Just having read Quix's comments that her neuro dislikes Copaxane makes me increasingly skeptical..... 1: How long have these drugs been around? 2: do 'they" know the long term effects of these drugs? By that I mean, do they have long term NEGATIVE side effects? 3: are there any stats showing the % of people who really benefit? Ditto stats showing a lack of benefit?
Avatar n tn Hello I am sorry you are seeing more progression. It is a shame the Doctors waited so long to put you on Copaxone. Progression happens with or with out symptoms. Copaxone is meant to slow Progression, not necessarily help symptoms. It works in 30% of people who are new to RRMS. It is probably the least heavy hitter of the DMDs. Its advantage is it has the least symptoms. Are you seeing a general Neurologist or an MS Specialist? If you are not seeing an MS Specialist you may want to see one.
387113 tn?1313512083 I think it is unclear at this point whether Copaxone slows disease progression. It is something that continues to be analyzed in long-term studies. Apparently, Copaxone has failed to show an advantage in halting disability progression, comparing subjects on Copaxone vs placebo group.
Avatar f tn Hi there, how is your leg doing today... I took prednizone for 6 days 50mg... in the summer for vertigo spells that wouldn't stop, and pain in my left side... it helped them stop and helped the pain...but didn't help with my vision..it made it worse.. when I stopped the meds after the 6 days... I was exhausted... and all the pain came back.. the spells slowed down to once in awhile... and my vision stayed the same as usual... I was told to keep record of all your symptoms..
Avatar m tn My initial experience with Copaxone was like yours, and it took a while for my system to adjust. Once it did however, I've had no problems. On it nearly five years now and zero to very minimal injection site reactions (usually zero) no more burning when the medicine goes in. When I first started, it hurt like hell and I just couldn't see how I could stay on it long term. However it ddget better, much better, over time.
Avatar f tn Hi and welcome. I'm guessing you're talking about Copaxone. I was on it for a couple of months and had to stop, so I don't know long term about the stinging. When I injected it, I too would get quite a bad sting, which lasted up to an hour. It did begin to get shorter, though, so I just waited it out. I'm not a medical professional, but I see no reason why not to take ibuprofen, acetaminophen or similar in advance of injection, if it helps you.
422172 tn?1215990852 t know about the liver enzymes being a long term problem), I can join a study on combining Rebif and teriflunomide, an anti-inflammatory med. I think I may do that. As my MS specialist is also a researcher, he provides information on studies to patients. I don't think it would have occurred to me to even ask about it, at least at the start of my disease. There are hundreds of studies on MS being conducted around the world; you can find a list at the National Institutes of Health website.
Avatar f tn The drug has not been out long enough to know what the long term effects may be. You probably will never need an organ transplant but it does give you an idea the orals are stronger drugs. It is all risk/benefit. As the disease progresses Doctors and patients are willing to take greater risks to slow progression. But like if you have a small cancer they may cut it out and give you no chemotherapy where as if you are stage 4 Cancer you use a drug that may make your heart give out.
1637739 tn?1371688706 Unfortunately, it appears our bodies use this time to ramp up defenses against Copaxone and/or the preservative contained in the solution. [I met a long term Copaxone user once who had NO problems with injection site reactions UNTIL Teva tweaked their manufacturing to allow limited storage of the drug at room temperature. I believe a preservative was changed or added at that time. It’s convenient to not always refrigerate.
7463086 tn?1391008763 #2 Gilenya - Newer med, long term effect not known. My Neuro currently has a clinical trial that she said would like me to get into which includes this med. I would get the testing and meds paid for as long as I was in the trial. Problem is that there are two other meds that are given in a control setting. I'm concerned with how new this one is when compared to the others Does anyone have any information on this they would like to share.
Avatar f tn Welcome, I have been on the Copaxone 40 since February 2015. I have been very pleased so far. New scans have showed No new lesions. But I have had a relapse in May. My Neuro suggested that I start with Copaxone 40 three times a week. I have had no problem with the injections. I did not like the Auto Injector and have gone to manual injecting. It for me personally is much easier and I have less sight reactions. Not sure when the Copaxone 40 was first offered for use.
1710955 tn?1309446473 I was just dx with ms in July of this year. I'm on my second week or copaxone injections and they seem to be going pretty well so far. My question to everyone is how long do your relapses last? I've been having sx ever since mid May with more sx coming on every week. Obviously the copaxone takes a long while to work. My neuro believes that I've had ms for 10the yrs, but my sx have never lasted this long.
1453990 tn?1329231426 m not going to risk the unknowns with their long term side effects. I think more research is needed to prove long term safety. Seems like you have given this some very thoughtful consideration and it makes sense. Good luck. BTW - I NEVER give myself shots in front of my husband - he has never said anything, but I have the feeling it would be hard for him to watch. I was SO against the shots initially - "no way" I told my PA. It's a piece of cake now.
Avatar f tn Hi and welcome to our little MS community, Sometimes our head space makes it easier to focus on the things we 'want' to hear, and in time our head space lets us get back in the fight, MS has a bad habit of making people have to face their reality regardless of wants. Personally i'd rather face the good, the bad and the ugly truth, when ever i'm making significant life decisions and with that thought in mind.........
Avatar m tn After being on Copaxone for over 8 years, how long will it take for the drug to be out of your system after quitting it?
195469 tn?1388322888 I don't know if many of you remember, but I have taken Copaxone for a year and a half, with no problems, other than some nasty injection site reactions. The burning and stinging disappeared for the most part, within a few weeks after starting Copaxone. On June 22 of this year, I had the dreaded "adverse reaction," as I finished doing my injection. I became extremely short of breath, had extreme pressure in my chest and profuse sweating and then panic.
1983221 tn?1333506185 Those nurses usually see many patients who are taking Copaxone over the long term, so he or she would be able to give you the best feedback regarding whether your reactions are typical or not. I had bruising when I first started, but it wasn't very dark bruising. Sometimes I only noticed it when I inspected my reaction sites in bright light. I'm not sure if you're having the same type of bruising, but mine stopped after a while.
Avatar f tn I think it really comes down to being honest about what you can religiously adhere to, potentially long-term. Just using my own thought process as an example, for me Copaxone was immediately off the list. Why? Because I know myself enough to know something I had to administer daily was most likely to be occasionally forgotten, resented, ignored. Also, to be honest, I was young, vain, and was really put off by the lipoatrophy potential.
429700 tn?1308007823 ve never had to be on long term steroid treatment for anything (but have had close calls for needing treatment) and Tysabri has never come up as a treatment because I'm doing well on Copaxone. I am very fortunate. Before Copaxone, I think I was headed down a path of immobility because I was needing lots of help walking (even to the bathroom). I also couldn't stand in the shower. Gradually, I was up on my feet again.
382218 tn?1341181487 Overnight trip turned into 4 nights and counting. Highway is washed out. I brought two syringes of Copaxone, dropped and contaminated one, took the other on Weds and nothing since. Can't get any here. Hoping I'll be home tomorrow ( to my flooded city) so miss only 4 days. Has anyone skipped that long and run into any major problems?
6034128 tn?1381871014 Within all this, I have a loving, supportive husband and family (no children). I am very blessed and don't like that I'm complaining but I'm so overwhelmed and confused by all this... I am 50, female, happily married (almost) 16 years. Am overweight. 8 yrs intermittent symptoms which ganged up on me Sept. 2012 and sent me to PCP. Vertigo, muscle weakness in thighs, balance and coordination issues, vision blurred, esp.
398059 tn?1447945633 Anyone here one with a diagnosis of MS and is having trouble getting disease modifying drugs, such as Copaxone or Rebif, due to lack of insurance, insurance company unwilling to pay or trouble with pharmaceutical company please tell your story as to why.