copaxone forum

Brain lesions show on MRI, no spinal lesions, and some bands present in spinal fluid. No symptoms. My home Neuro recommended I begin copaxone, but understood my wanting to wait until I return home again in July. I saw a Neuro at Georgetown last Monday who is agreement with my home Neuro about starting copaxone when I return home. I am feeling better about this decision, and have read as much medical literature about RIS and whether or not to treat with drug therapy.

I am having lots of issues with Copaxone, with even my eye getting lots of inflammation from the reaction I have been having. I am using steroid eye drops which is helping. Not sure what my next step is with the Copaxone will be, but I am still doing it every day. Today is the 6 month anniversary of my moms death, and I have been having a bit of a tough time mentally still with my loss of her and my MS. I am sure sadness is normal.

What is the best way to get help paying for copaxone or is there a generic version that is less expensive? I was hoping to start taking it soon, but Im afraid I can't afford it. Also, has anyone taken the new oral version? Is it less expensive? I was advised not to use it but I certainly will if I can afford it. Plus, what are the other benefits of using copaxone othr than slowing down the formation of new lesions. Will I get my energy back? Will my concentration get better?

After 4 years of Betaseron, Beta w/Methotrexate, and 3-4 exacerbations a year (IVSM after each one), 2 infusions of Tysabri, a year and a half of pulse steroids, 2 months of Copaxone, I volunteered to be a lab rat for Tovaxin. I travel from Boise to Portland for this and just finished the Phase IIb double blind study. I am now waiting to find out if I will continue in the extension study. This is the phase that we will all get the real drug.

I was determined to give it my best effort to help my body fight MS. I tried solutions suggested by Copaxone users on this forum and tricks I learned at pharmaceutical sponsored seminars. Some worked for me (the witch hazel trick and a Cortizone-10 roll-on). Others didn't. As I worked on techniques to discover what helped me, I found that it felt better just to have my focus on what was working rather than how much I was reacting.

t cut it - I know that here in France all Neuros give out Copaxone as their first choice of therapy. There is another forum that I am with too, and many people there are on Copaxone and have had the same sypmtoms, but have just plodded along with it, they may have this episode once or twice in a year also they have reported this to their Neuros. It makes you wonder what is going on.

You asked about taking LDN instead of copaxone. We have a many discussions on the forum about LDN and if you put LDN in the search box above, you will be able to pull up these discussion. I can only talk about copaxone since that is the treatment I chose. I have been on it over a year now and although you get site reaction, they mostly happen in the beginning of the treatment and get better over time, or they happen from time-to-time for no apparent reason.

how much is evryone paying for thier medication/month...i take copaxone...it costs 11oo. candian..it used to be the least expensive..now i am wondering 12 years later is this the same?

I have MS treated with Copaxone. It has been suggested that I try a product called PROTEIN 7 SYNTHESIS...

Hi everyone im a 40 year women old with diabetes and just diagnose with ms, started on copaxone and was wondering if anyone else has noticed wht i have headache , backache muscleache im wondering if it is the ms or the medicine my body feels different since starting copaxone so i dont no maybe i should switch med. copaxone is known to have the least side affects .

I talked to the pharmacology staff of the Shared Solutions and they were rather pessimistic in the treatment of PPMS with Copaxone. They were very honest with me and talked about three studies on PPMS and Copaxone. At the very most in small studies of less than 50 people, 22 to 25 percent of them showed some disease progression.

Hi Jen - Glad you found the forum, sorry it applies! Pat's or Geno's?

I was diagnosed in April 2010, and started taking Copaxone in November. I haven't had any of the tightness in my chest or rapid heart beats or anything, but at the injection sites I have been having massive swelling. I understand that there will be a reaction, but it is lasting for days, feels on fire through my pants, and is about the size of both of my fists put together and the patches are rock hard! Why?? Is anyone having any kind of reaction like that?

Hi, I am one of four or five on the forum that are taking Copaxone. I will type more later, but just wanted to respond.

The rest of my hives seem to be clearing up. I use Copaxone by injection once a day and I have stopped it fot a few days also. I do need to start it again however. I have no idea what the connection might be. I would appreciate any feedback anyone might want to contribute.

Hey there, Not sure what brought me to this site just now, I have been living with MS for over a year now, and just thought I would google Copaxone and here I am reading your post. I had problems with blood clots before, and a year ago, I had a issue that every time I layed down my hands and feet would go numb, well them, one day my whole right side had no feeling in it for about 2 weeks I thought I was having a stroke.

I just got a phone call from Shared Solutions in response to my email. They told me they are telling people to dispose of TRIAD alcohol prep pads that come with Copaxone. They didn't seem to have a plan to initiate contact with Copaxone users. They just said, "We've been telling people......." Maybe they think it's up to the FDA.

I just started my copaxone inj 8 days ago, wanted to know if anyone had a reaction quite like this? 7th inj was taken at 7:00 pm at around 10:30 started with shaking muscle tightness freezing cold had 2 comforters on and it was 75 degrees in my room my whole body felt like I had a bad sunburn nad the muscle tightness was so bad I could barely walk to the bathroom.Had a hard time breathing. Spoke to SS with no help told me to call the doctor in the am.

Well I have been reading on another forum that it can happen will all of the meds iincluding copaxone which really surprised me. I was just wondering how many on this board experienced it.

I have hair loss, but was experiencing this before Copaxone was started in 2008. There's many of us on the forum that have hair loss unrelated to Copaxone. For me, I think it's either autoimmune or related to vitamin deficiency or both. I'm learning that I am always low on a certain vitamin--lately can't keep vitamin D level up without taking a pretty signficant dose. I don't know which vitamin is related to hair, but intended to do some research this week.

No worries - you'll get some good advice from the members on this forum! And at least one of them is a doctor... although right now she's having her house renovated, so it may be a while before we hear from her.

I just went looking for the research and so far havent found anything scientific, just than forum conversations about copaxone causing cancer. Is it true or just a rumor? Love to read the research and stats, so if you have a link could you post it please. Cheers.........

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