vitamin d mayo clinic

I went to the Mayo Clinic in AZ in January - hoping to find some answers. I will say that it is a very well run facility - but don't pin your hopes on a big "well known" facility to solve everything for you. The neurologist that I saw at the Mayo clinic didn't want to see my timeline or my list of symptoms - although at the end of my initial appointment, he did take my list of symptoms to include in my chart.

Just got more blood test results. Apparently I am low on Vitamin D. My neuro had tested for this awhile back, but my family doctor said we should do a different vitamin d test and it was sent to Mayo. Sure enough, it was low. I am suppossed to start taking D3. I'm still awaiting one more blood test...hopefully I know by the middle of next week.

) I have some of your same opinions on my visit to the Mayo clinic and my vitamin deficiency diagnosis...As I said in my post, I am afraid of being in limboland because of a lack of "abnormal" diagnostic testing to prove anything. Am I "satisfied"? To a degree...I had a great experience there - I didn't walk away with any firm diagnosis, but I don't know how I could have with normal diagnostic tests. My vitamin D is 18 and my B12 is at 212.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

t know that someone could actually have an allergic reaction to Vitamin D. You get Vitamin D from the sun. BUT, I do know you can have a reaction to the capsule Vitamin D comes in. The capsule is made from Bovine and I am allergic to Bovine. Stomach pain and severe diarrhea. So since I also can't take the tablet form, I cut the tip of the capsule and sqeeze the vitamin D liguid onto a spoon. I have no problems then. Good luck.

A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.

Would consider a mayo-clinic type evaluation. It looks like they have excluded pheochromocytoma with the 24 hour urine. The PTH and calcium and vitamin D all suggest primary hyperparathyroidism...

I guess time will tell. If this is the result of my Mayo Clinic visit(they told me the b12 was not the total answer to my prob even tho they couldn't tell me what it was) then it was way worth it. Don't know why the other labs that constantly tested me for b12 deficiency did not show it. Makes me wonder why Mayo lab is so much better?? They only found the three Obands too and the other lab did it two other times and found 12! Go figure~ So hoping that all of you are doing well!

tanns- ty for sharing your experience with Mayo if or when I go it would be to the Mayo clinic in rochester minnesota

Maybe I was too harsh about Mayo. To be fair to Mayo Clinic, I do think they do have some very good doctors there, maybe it's just hard to get a neuro diagnosis - as it seems to be most other places in this country - so what's new? I did really think the Mayo radiologist who looked at my films was excellent - he found a couple of things the original outside radiologist did not notice such as brain mass loss.

Unfortunately it IS probably ethical, however it sounds like you will need to find a different rheumatologist. I have Fibro, Depression, Anxiety and a whole lot of other things going on with a weight loss surgery gone bad etc. It took me over 7 years to find a doctor that was willing to run ALL the blood tests that I required in order to stay healthy due to my vitamin regimen. I saw DOZENS and DOZENS of doctors and they would see the list and decline and I would leave.

s important to get your level up but your not going to solve all your problem with vitamin D,If your symptoms related to vitamin D yes it going to disappears after several months,but if it's not you should dig deep to see if there is another issue. Your adrenal gland effects other glands leaving you with thyroid symptoms like,you should get the 24 adrenal saliva test to see if there is any problem with your hormones.

I've not been to the Jacksonville Mayo or the MS clinic in Houston, I'm sorry about that. I have heard a lot of good things about the University of Texas Southwestern Medical Center at Dallas and Dr. Elliot Frohman who works there. I'm sure if you google his name you can find out much more than I can tell you about, here.

Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out http://www.mscare.org They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.

He said it could be from previously low vitamin d levels. In your opinion, is previous vitamin d insufficiency more likely than primary hyperparathyroidism? What should be my next step? Also, my tsh has decreased over the years ( I have it checked often due to family history of hypothyroidism and other autoimmune disorders). I have numerous hypothyroid symptoms but tested negative for thyroid antibodies.

First I went to Overeaters Anonymous. Also I went to the Mayo Clinic for something totally different than about weight issues. If you go to the Mayo Clinic website there is a book that guides you through lifestyle changes to lose weight.

Unexplained bone and muscle pain was found in 93% suffering vitamin D deficiency. Vitamin D deficiency is found in 98% of autoimmune thyroid patients. Vitamin D deficiency is usually found in most autoimmune diseases. Vitamin D regulates the immune system. Typically, autoimmune thyroid patients need levels at 80 - 100ng/ml (200 - 250 nmol/L). Natural treatments for pain includes omega 3, glucosamine and chondroitin, and ginger.

I have Dysautonomia, but I attribute a lot of my muscle issues to a very low vitamin D level. I am having trouble absorbing vitamin D and have gone as far as taking 50,000mg per day for a month, then 50,000mg once a week for two months after that with no avail. (I did this 3 separate times!) My endocronologist says my dysautonomia is to blame for the malabsortion.

What would be the reason for seeing an endocrinologist at Mayo Clinic for bp. My daughter is 21, over weight, and has bp's from 180/130 to 140/120. She was placed on labetalol 100mg twice per day and thus far it has come down to 160/95 to 158/97. The cardiologist insists she see an endocrinologist at Mayo Clinic. PLEASE can anyone please tell me why an endocrinologist for bp. I realize this is very high and a very young age. Any information you can give me would help.

Vitamin d mayo clinic

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