tysabri infusion sites

I'm on "sortofa" holiday, am changing infusion sites and am overdue for my April Tysabri and I can feel it already; am so tired and just can't function.

of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?

Could you call Gilyna and ask them for a list of sites in your area? I know when I had scheduling infusion center difficulties with Tysabri, I just called Biogen and my caseworker "fixed" it.

Hopefully it is something else, and not really the Tysabri. Has this happened every time you have had an infusion? You mentioned you were on antibiotics - if you've been sick or had an infection of some sort, that could definitely be a big part of how you are feeling. I know the longer I'm on Tysabri, it seems I get sick easier - and when I do, it hits harder and lasts longer than it used to.

From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.

After waiting for insurance to approve and waiting for rebif to clean out of my body I had my first tysabri infusion on June 3rd, 2014. By the next day I could tell that it was easier to get up and my balance seemed better. I didn't notice anything else but was excited about what improvements I would have in the future. I felt the same after infusion #2 but was hoping for more. After my third infusion I had a bad headache for 2 days and didn't feel any improvements.

because with my traveling all the time, stopping and starting infusion sites is a real juggling act; there is a lot of paperwork, interviews, dr participation, etc., and am learning some infusion sites insist you use their own doctors, and so on.....so with me, am already having to plan for May somewhere else and call my caseworker as soon as April infusion is done and cancel that site, you get the idea.......this would be a welcome relief for sure............

So, are you driving 4 hours each way once a month for your Tysabri? I am sure you can find a infusion site closer to your home. Just go on the Tysabri website and it will show you a list of sites and also, neuros that are already a part of the TOUCH program. Here is the link, you can put in your zip code and it will give you a list of doctors and if you look at the links to the left, you will see one for infusion sites too. http://www.tysabri.com/tysbProject/tysb.

My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

As I type my 12th Tysabri in fusion is flowing into me! It's hard to believe that it's been a year since my diagnosis. I've learned more about MS and life with a life long disease. I've made a few minor changes to accommodate it, but fortunately my life is largely unchanged. Believe it or not, learning I have MS has explained a lot of seemingly unrelated issues. In that sense my DX came as something of a relief :-) Here's looking forward to 12 more Tysabri juice boxes!

So I just finished my 2nd infusion about a week ago and was wondering what people's side effects were from that. My body felt like I had a severe flu for like 3 days :( . How long also does it take to notice the drug is working for you .

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.

If your first infusion is next week, then I would try and hold off the steroids as long as possible, othersise your Tysabri infusion will have to be delayed. With the TOUCH program they are really careful. Way to go with your gig in S.F - hope it goes well for you.

Hi all, I haven't logged in for ages but hope one of you will be able to answer a question for me. I've had eight infusion's so far of Tysabri and am doing really well on it. I'm coming up for a whole year with no relapses and I don't feel bad after my infusion. However, I have started to notice a couple of issues. The first is that around a week after infusion I develop big hives if I sit in the sun (not such a problem in the UK since it's rarely sunny!

Tysabri infusion sites

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