Tysabri infusion sites

Common Questions and Answers about Tysabri infusion sites


Avatar m tn of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?
Avatar f tn I'm on "sortofa" holiday, am changing infusion sites and am overdue for my April Tysabri and I can feel it already; am so tired and just can't function.
Avatar f tn Not to mention, that I will soon run out of good sites. I am a bit afraid of the Tysabri. Though she says there have 6 or so episodes of PML, some were Europe where they don't have the Touch program and pt are not followed as closely. She says 83% of users have no flairs in a 2 year study. She will see me monthly or sooner of course if necessary.
Avatar m tn I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.
Avatar f tn So, I'm ok in the summer but in the winter, its heck to settle new infusion sites, takes at least a couple weeks, at least around here! I could live with flushing and a upset stomach, I get the upset stomach anyway!
333672 tn?1273796389 so I'm optimistic......because with my traveling all the time, stopping and starting infusion sites is a real juggling act; there is a lot of paperwork, interviews, dr participation, etc., and am learning some infusion sites insist you use their own doctors, and so on.....so with me, am already having to plan for May somewhere else and call my caseworker as soon as April infusion is done and cancel that site, you get the idea.......this would be a welcome relief for sure............
1337734 tn?1336238191 Could you call Gilyna and ask them for a list of sites in your area? I know when I had scheduling infusion center difficulties with Tysabri, I just called Biogen and my caseworker "fixed" it.
Avatar f tn I am sure you can find a infusion site closer to your home. Just go on the Tysabri website and it will show you a list of sites and also, neuros that are already a part of the TOUCH program. Here is the link, you can put in your zip code and it will give you a list of doctors and if you look at the links to the left, you will see one for infusion sites too. http://www.tysabri.com/tysbProject/tysb.
Avatar m tn The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.
Avatar f tn (if you call it that) little green bag and literature from Tecfidera, although still waiting for insurance verification and then the wait with Biogen for financial assistance,) because I do travel and setting up Tysabri infusion sites has been a constant problem, and this seemed like a good idea. My neuro sanctioned it and yes, have been reading everything I see on it. I am glad you only had flushing! Sounds like it is working for you.
572651 tn?1333939396 As I am currently sitting in the infusion center getting my Tysabri, I read your post Lu. I am glad u researched your options, as I know u r excellent at finding all the important information. I know u will do well, and being JC negative is a great thing. I a. also JC negative and that made my decision easier. My neuro said she will switch me to the med u mentioned, as soon as it becomes available.
Avatar f tn I developed neuropathy in both feet and left leg stiffness last month. I tested positive for the virus 3 years ago. Last week u had to change sites back to where I started. The office claimed they could no longer give me my Tsabri. My blood work last week showed an increasing risk for pml lesion. I tried Tecfidera it did not work for me. What could I take if I have to come off? I lead a very active lifestyle. Help!!!
Avatar f tn has anyone else had a similar problem? Is there any way to get the lumps to go away, and to prevent them from recurring? I thought I hated the Copaxone, but now that I'm faced with changing, I don't know if I want to. Status quo, I guess... The wreck (with more dents!
Avatar f tn I personally have no medical issues, Diesel hopefully gets her stitches out today, she's 6 months and 52 pounds and a handful but is making progress with her training and husband has his first cataract surgery on Wednesday, with follow appointments, all week, so I get to play nurse. I'm still waiting for a new infusion center to be "okayed" as I missed my April one over an argument with the finance dept.
Avatar m tn I've been JC+ since BEFORE I started Tysabri. I've been on it 3 years and will continue until my levels reach a danger point. Tysabri has done a wonderful job and my neuro says my MS is now stable, I've had no relapses in a year. ess has given you some good advice, everything has a side effect. Call Tysabri and talk with them, they are wonderful people and very supportive.
Avatar f tn One of our members has commented that her neuro had been considering putting her on Plegridy, though Tysabri was the final call. I had forgotten that Plegridy even exists, so I looked it up for more info. Turns out it is made by Biogen Idec, who also make and market Avonex and Tysabri. It is a kind of interferon, and is administered via injection every two weeks. The doses are stepped up, with full levels reached after several weeks.
Avatar f tn He said they didn't start putting people on it in the beginning unless an absolute necessity because infusion sites were limited since they have to be certified to administer it.
739070 tn?1338607002 I just do not know between Tysabri or Gilenya. I know plenty of folks who love Tysabri and they watch you closely. They will watch you closely with Gilenya as well. With your situation doing nothing is not a good option either.
Avatar f tn Sorry about the med switch but there seems to be a lot of that going around these days. I made the jump from copaxone to tysabri late last year and just had my third infusion. So far, so good.
645390 tn?1338558977 org/wiki/Common_variable_immunodeficiency So, the med is IVIG, an infusion once a month. Sounds very simiiar to tysabri.. Somewhere along the line, I think this used to be used as an MS therapy med? Does anyone know this queston? I have tried to find this info...but want a more "personal" version. Any thoughts? Thanks.
294425 tn?1288531995 I think they are beautiful. I would imagine that you should not get it where you give your Tysabri shot sites.
Avatar f tn I had my first Tysabri infusion yesterday, but was previously on Copaxone. I liked the Copaxone, but am one of the lucky 4% who had migraines as a side effect. I've always had headache issues, but the beginning of month 2 they started getting much, much worse and nothing helped them. Took me a little while to figure out what was causing them. Other than that I didn't have bad site reactions at all. Good luck with your decision!
Avatar m tn He was having horrible nausea, and terrible pain at the injection sites. It was very disheartening and he became horribly depressed. So he went off it and will re-start in a week or so. If the same thing happens again, he will call NYU. He said he would rather be dead than live like that...nausea and pain. He felt he had no quality of life. And of course he still had the foot pain. And back pain. And leg spasms.
Avatar f tn My neuro suggested I switch to tysabri and I did my first infusion in February. The copaxone injections take time to work on your MS - it is retraining your immune system to attack the copaxone rather than your myelin. That unfortunately takes time - up to six months or so. But hang in there, it is worth it. Good luck and be sure to ask your questions.
Avatar f tn I noticed that the first month of injections my sites would feel a little sting about 5 min after injecting; however, they have all subsided. So the pros are no side effects, no flu like symptoms. Con is daily injection. I use the Autoject so it does it for me and it's virtually thoughtless. I am 32 with a 3 month old so I needed the one that best suit my lifestyle. I applaud you for researching and being prepared! Good luck to you and keep us posted!
Avatar f tn I currently take Tysabri and due to my gypsy road status find it difficult to keep arranging infusion sites and welcome a drug where the side effects will probably go away after about 6 months.
Avatar f tn I cana't help with the shots, as I've never taken an injectable DMD. My first was Tysabri which is administered by monthly IV infusion. Now I get Rituxan, which is also given via infusion. There are now a few oral DMD's like Tecidera, Gilenya and Aubagio you should discuss with your neuro.
198419 tn?1360245956 I'm on Tysabri, and I just have to show up at the infusion center every four weeks. They schedule my next appointment right there with me, and since I'm more or less self employed, I LIVE on that calendar!
11119474 tn?1428705770 The Solumederol was just a patch to get me through until my Tysabri treatments started. I now have had 2 IV Tysabri inufusions and don't feel Great but better than before and I am hoping it will only get better. My Neuro said it would take about 7 months to feel somewhat normal again.....lol....what's normal??? After you have been in so much pain and had so many set backs you have to readjust your definition of normal.
Avatar f tn DMD's include drugs like Rebif, Avonex, Betaseron, Copaxone and my personal favorite Tysabri. The second front is to treat the symptoms directly. For my neurogenic bladder issues I take a drug called Tamsulosin (Flomax). It's primary purpose is to treat men with enlarged prostates. There is absolutely nothing wrong with my prostate, but my MS tells my bladder function that there is. I also have neurotically pain in my feet. I take two meds for this; Elavil and Neurontin.