Tysabri infusion results

Common Questions and Answers about Tysabri infusion results

tysabri

233622 tn?1279334905 Good luck with Tysabri! I'm taking my 11th infusion on Wednesday. The good news, I haven't had any new flairs since I've been on it. I'm taking a "holiday" from Tysabri after this infusion. My neuro says a periodic holiday keeps the incidence of PML lower. I haven't had my JC virus antibody tested. Is this a blood test, or a urine test?
738075 tn?1330575844 Glad to hear you are having good results from the Tysabri!! Energy is always in short supply...enjoy it!!
1088527 tn?1425313375 My question is I am on tysabri and know that prednisone dont mix next infusion in 2 weeks I am gonna call my neuro on mon and ask and tell her what happened with the baclofen and see what else we can do for pain I take lyrica and klonopin not much help she ordered new mri due to increase in symptoms and I got those results yesterday at the er there was some slight changes from last mri done 7/12 so dont know if she will want me to stay on tysabri or what will ask monday.
1088527 tn?1425313375 Hi Kat - I will get my 11th infusion in about 10 days. I have had no issues of any kind in conjunction with Tysabri. From the follow up MRI's I've had Tysabri seems to be doing the trick. No new lesions or relapses since I started. You will be tested for the JC virus prior to starting.
Avatar f tn Hopefully it is something else, and not really the Tysabri. Has this happened every time you have had an infusion? You mentioned you were on antibiotics - if you've been sick or had an infection of some sort, that could definitely be a big part of how you are feeling. I know the longer I'm on Tysabri, it seems I get sick easier - and when I do, it hits harder and lasts longer than it used to.
Avatar m tn From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.
252144 tn?1227422620 That is when I asked my Dr. about Tysabri. This is a monthly infusion that last 1 hour. My first infusion made my heartbeat a little fast, but I was nervous. I went straight home after the infusion because I expected to be sick. I wasn't! As the day went on I started to feel like I had more energy, but I was afraid if I got up and started doing things I might end up sick so, I just rested that day. The next day I woke up feeling great...
Avatar f tn After waiting for insurance to approve and waiting for rebif to clean out of my body I had my first tysabri infusion on June 3rd, 2014. By the next day I could tell that it was easier to get up and my balance seemed better. I didn't notice anything else but was excited about what improvements I would have in the future. I felt the same after infusion #2 but was hoping for more. After my third infusion I had a bad headache for 2 days and didn't feel any improvements.
1337734 tn?1336234591 Are there any infusion therapy locations near you? When they have people on Tysabri - where are they sending them? They likely do not do the infusions in the dr's office. If you have insurance, maybe you can call them and ask them for approved locations? Good luck on the Gilenya!
Avatar f tn Next month will be my 8th infusion. It does take about 6 months to get the full effects of Tysabri. I was very concerned about PML & have followed it much. The earliest PML happened was at 8 months for a person using it for Crohns, before it was pulled from the market in 2005. The latest case was after 26 infusions in 2008. I thought I will just start it & not worry about it until I get to that 8 month and decide then.
294425 tn?1288528395 My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.
233622 tn?1279334905 I am not doing well on any DMD. After 2.5 years trying my neuro has decided to try Tysabri. I have to have a blood test first. I am looking forward to trying it after reading the results others have had. I personally know someone on it and she is doing so well now. I am tired of being sick!
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Avatar n tn Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.
Avatar f tn I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.
1831849 tn?1383228392 As I type my 12th Tysabri in fusion is flowing into me! It's hard to believe that it's been a year since my diagnosis. I've learned more about MS and life with a life long disease. I've made a few minor changes to accommodate it, but fortunately my life is largely unchanged. Believe it or not, learning I have MS has explained a lot of seemingly unrelated issues. In that sense my DX came as something of a relief :-) Here's looking forward to 12 more Tysabri juice boxes!
Avatar f tn So I just finished my 2nd infusion about a week ago and was wondering what people's side effects were from that. My body felt like I had a severe flu for like 3 days :( . How long also does it take to notice the drug is working for you .
Avatar f tn Make sure that you ask about how they will monitor you JCV status in order to manage your PML risk. After infusion # 18 I converted to JCV +, so I stopped using Tysabri.
Avatar f tn I had first labs done after my 4thh infusion. The one test was on thee re ....NRBC# units10^9/L (nucleated red blood cells ) reference rangee 0.0-0.0 ....my results 0.07 (how off is this numberr be?) I did not recognize the test so googled and my understanding is adults should not have them, and even one ceell seen would be problllematic. So, anyone have to give thoughts? I see a few other of the labs out of the normal ranges. I certainllly will discuss them with neuro.
645390 tn?1338555377 I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?
Avatar f tn Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.
1394601 tn?1328032308 I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.