trileptal for trigeminal neuralgia

I have been dealing with it for years. It is controlled for the most part with the usual meds(trileptal, lyric, ect.) I have never fully known if my TN attacks were a exacerbation of MS? However when they got hospital bad steroids did work for me just a little slow to help. On the last trip to the hospital a nurse that knew MS very well talked me into asking the Dr. for Toradol. They gave me a infusion(sorry didn't take down the dose was busy hurting) but the pain went away fast.

One of the causes of Trigeminal Neuralgia could be tumors. The Trigeminal nerve and its branches touches many parts of the face including the sinuses. (Google Gray's Anatomy (bartleby.com) for good diagrams of where the Trigeminal Nerve is). I personally have not heard that TN loosens teeth -- although pain in the teeth and gums (because of all the areas the nerve touches) is common.

I have been diagnosed with trigeminal neuralgia. When I first started taking trileptal the pain completely went away and I was sure I was cured. But only within three weeks I was woken up with the same pain again, though not as severe as before. The pain has made all my top left teeth extremely sensitive which is normal with the condition but now, the left side of my palate is also swollen. I am not sure if this has anything to do with the neuralgia or not.

Hi, I was put on Trileptal for the TN. It did relieve it somewhat. What helped the most being on the steroids, and about a week later most of my symptoms improved. I would call your doc and ask if there is another med that might help you even more. Sorry you are going through this, I know how awful it is.

My sister in law is diagnosed with trigeminal neuralgia ... she is currently on Pregalin 75 for 6 weeks ???

Thanks for your info on how Trileptal works for Tregeminal Neuralgia. I would be interested to see how it works with other people as well, in place of Carbamazapine and Gabapentin so I have some ammunition when I see my neurologist. I don't think Gabapentin is doing much if anything for me, I am currently taking 2700 mg per day in addition to Carbamazapine.

My neuro ordered the typical blood tests for the disorders that mimic MS: lupus, Lyme's, B12, sarcoidosis etc. All have come back negative. So I guess the UBOs in my periventricular and deep white matter, subcortical, as well as the brainstem and cerebellum are a mystery. Today is the day I " up" my dose of Trileptal to get relief from this trigeminal neuralgia. Looks like a groggy weekend is ahead!I just wish I had some closure on what is going on right now.

t travel along the traditional path of the trigeminal nerve but the treatment is the same. I took Trileptal for my face pain until I had an allergic reaction. It did wonders. There are other drugs available too.

I have typical Trigeminal Neuralgia and had a Gamma Knife treatment 6 months ago. I was told to begin weaning off my medication (Trileptal). Since reducing the medication by 150 mg, I am once again experiencing TN pain triggered by chewing, talking, washing my face, etc. Is this normal when weaning off anti-seizure medications used for TN?

I am currently getting many other treatments for my migraines which work fairly well. And currently my trigeminal neuralgia is down to a dull roar, but it was at pain levels of 10 at times. I took Trileptal which gave me the worst migraines that I have had. Had to stop it, but it took care of the terrible mouth pain. What about you?

i believe that i have trigeminal neuralgia but i do not know what tests are done to confrim this . can you tell me what tests have to be done so i can ask my physician to ruin these tests or demand they run them ? i have been so sick for so long . i literally have been to 25 -30 doctors to find out what is wrong with me . and every test comes back negative except that a test came back positve for fungal aspergillosis .but they do not say anything about treating it .

Usually it goes away in about 2-3 days, but not this time. I think it is trigeminal neuralgia, have had it off and on for many years, but it has taken a huge change for the worse lately. I thought it was improving, but I was wrong. It is the right side of the middle of my face, and gives off shooting pain towards the middle of my cheekbone, and then also above that going towards my eye. My skin hurts SO bad.

I called my current neuro to see if it was a side effect/reaction to Trileptal which I take for trigeminal neuralgia. I finally got a call back from him 3 days later. He says it could or could not be related to the medicine, but basically said to deal with it because the medicine seems to be helping some. My MRI showed lesions and the report states the lesions are consistent with MS. I have symptoms but they are subtle (except for the trigeminal neuralgia...that is far from subtle!

I TOOK MY MEDICATION FOR TRIGEMINAL NEURALGIA AND I AM ACTUALLY GETTING SOME RELIEF! I AM SO AMAZED,, AND HAPPY!! I WAS TOLD IF IT IS TRULY TN THAT I HAVE THE MEDICATION WOULD WORK QUICKLY. I GUESS THAT IS ONE MORE QUESTION I CAN MARK OFF OF MY LIST! AND I WAS SUCH A CHICKEN THINKING ABOUT TAKING THIS MEDICATION..............

That you opened this new forum on the day I was diagnosed is amazing. I was searching for other individuals with this condition and there experiences with medication. Actually, the neurologist suggested that I have "atypical" trigeminal neuralgia. My MRI is scheduled for next week to rule out other problems, etc.

For those of you with trigeminal neuralgia, would you mind me asking you what it feels like? I have been assuming, for a while, that what I have in my face is bilateral trigeminal neurlagia. But, perhaps I'm wrong.

Was she diagnosed with Trigeminal Neuralgia or are you waiting for the Neurologist to confirm? What type of MRI did she have? There is an MRI with TN protocol that specifically is looking for a compression of the nerve. A regular MRI is used to rule out a tumor or MS. My TN manifested first as a tooth ache, then excelarated after a sinus problem. The TN nerve has 3 branches on either side of the face that have sub-branches near the eye, ear, nose, mouth areas.

I have been on Tegretol for about 14 years...firstly for seizure control, secondly for pain management for Paratrigeminal Neuralgia (which differs from trigeminal neuralgia). I was intrigued by this drug when I saw your post so I looked into it. The following is copied and pasted from a website explaining anti-seizure meds... "The seizure control abstained with Trilepital is as good and in some situations better than with Tegretol.

I have had TN (Trigeminal Neuralgia) now for about 17 years. Sharp stabbing pain at times right side of face, usually centered around upper right teeth/top of lip/bottom of nose area. Have had two Gamma Knife procedures done 10/05 and then 10/08 after pain had returned early '08. Pain has returned this spring and continues. Recent MRI shows no changes from before.

Hi Kathy, I am on for Trileptal for Trigeminal Neuralgia. The neuro also gave me a script for Tegretol, but felt the Trileptal does the same thing with less side effects. I know Tegretol is usually the 1st choice for TN. It does help me, sometimes not fully, but definitely lessens the pain. I don't know much about the asymmetry of the face. As far as I know it wouldn't have anything to do with TN, but again, I don't know much about it. Good luck and I do hope your pain lessons.

I have had Atypical Trigeminal Neuralgia for almost four years. I also have Anesthesia Dolorosa. I was wondering what everyone's triggers are. I seem to have some that are not "textbook" like you read everywhere. For instance, I find that if I am anywhere with a lot of noise or external stimulation, I get triggered. Please share what you experience. Thanks!

My wife has been taking Tegretol 200mg X 3 tines a day, this has caused her to be disorientated and nauseous & still in pain, she is trying Trileptal 300mg X 3, whilst cutting out the Tegretol. My question is how much Trileptal can she take ??????

t be tempted to part with money for a treatment for her -to date there are no known cures for MS and no AT's that hold up under scientific review. We're happy to answer any questions you might have. Good luck to your relative.

In 1974 similar pain started on the left side of face the surgeon diognised as trigeminal neuralgia in the 2nd branch. since than I am on tegretol and gabapentin, both this medicine do control attack, with the help of remmissions i have managed to avoid surgery, as this would lead to my entire face being numb for ever. The pain has returned just last week, after 2 years remission. I started on tegretol 200mg 3 times a day and neurontin 300mg twice a day.

Glad the Orajel works for you. Didn't for me but everyone is different. I live for my rice/lavender bean bag. I've made the sock ones and others for back up, small versions. Those eye masks work wonders also, they fit in the palm of your hand and are the right size for a cheek, hardly noticeable when you are out somewhere and need it.

Trileptal for trigeminal neuralgia

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