trileptal and ms

I currently take Trileptal for Partial Seizures (my seizures are well controlled with it) but whenever I miss 2 doses in a row (which I obviously try not to), I experience numbness and tingling in my face and head. I know these are symptoms of MS and I know Trileptal can be used for MS patients to help with nerve issues. I guess my question is should I see my neurologist? Is it possible that this face numbness/tingling sensations are symptoms of MS? FYI I am a 33 yr old female.

I was lucky and after 3 procedures have been pain free and medication free for almost 4 years. So I was able to wean off the Trileptal under doctors orders.

Hi. I was diagnosed with ATN 14 years ago. The pain has been well-controlled with neurontin until 3 weeks ago. I had an exacerbation of pain, most likely brought on by dental work. The pain was an 11 on the 0-10 scale. Since the pain has only calmed down to a 7, my neuro added trileptal with the neurontin. The trileptal is being titrated and I'm at 750 mgs per day right now.

They do other tests to rule out other illnesses which have the same symptoms of MS and there are many. MS is a diagnosis of excluding every other possibility. Also Neurologists Specialize. I had to go to a Neurologist who was an MS Specialist. The other Neurologists did not know how to interpret the tests and symptoms. I am glad you are back on the Trileptal. I know if I miss one dose.

Hi all. Due to the severe burning sensation I have in my hands from my current MS flare up, my neuro has put me on Trileptal. I have read great things about this med in regards to TN but not much about peripheral nerves. Anyone have any experience with this med for burning sensation NOT on the face? Hope you all are well!!

That's very interesting! I havent heard of seizure meds being used for MS. Although I am on Keppra now for a week due to recent seizures. I have been wondering all along if I have MS although testing thus far has not proven so. Erica mentioned side effects, I have to agree: i couldn't take trileptal and now seem to be having some problems with Keppra and am on a very very low dose 125mg twice daily, supposed to increase tomorrow but think I will wait another week before I do.

That sounds like a plan. All drugs do not work for all people. I could not drive on Lyrica. I then went on Trileptal which I had no problems with.

I have MS and I'm on venlafaxine, but for pre-existing depression. I can't really speak to it in the context it's been prescribed for you, but I do recommend a slow titration of the dose. I remember starting out and getting pretty nauseous on 75mg. The reduced me to 37.5mg and then slowly raised it to the 112.5mg I've been on for a few years now.

I have been seizure free for about 12 years or so and my MS apparently has been in remission. I had a relapse in July of 2007 and although my current neuro states that my disease is "in-active" I am still fighting to find out what is causing my other symptoms if indeed my MS is in-active which is apparently highly unlikely. Seizures and MS apparently are fairly rare and we unfortunately are the lucky ones to be different!

s office this week and he mentioned that he sometimes prescribes both neurontin and trileptal for his patients with TN. I know other people that take "drug cocktails" -- a mix of different drugs and the main thing is -- Is it working for you? Hope you're feeling good today!

The pain specialist says morphine and other opiates do not work well for MS pain because they do not go to where the pain is. He is not against Morphine I take it for Cancer. There are several drugs for nerve pain Lyrica, Gabenpentin, Trileptal, and few others. For muscle spasms there are muscle relaxers the main ones are Bacolphen, Flexiral, and Zananflex. Many people need a combination. Some drugs work for some people and others for others. My MS Specialist sent me to a pain clinic.

I have had Primary Progressive MS for over 16 years. It helps for some reason to put weight on my thighs and of course a blanket. I have a very good MS Dr and also a neurologist for my primary Dr. Just curious if anyone else is experiencing similar symptoms like with the thigh pain and cold.

I was dignosed with MS in 2003 after 20 years of off and on symptoms. The last year I have experienced off and on stabbing hot pain down the right side of my head and neck that last for 3 seconds to a minute and comes on at any time of the day or night. It doesn't seem to be associated with head movement or jaw activity. The Doctor says it sounds like Trigeninal Neuralgia but it doesn't seem to follow the same pattern of pain that Trigeninal Neuralgia produces.

I am not dx with MS, but with migraine variant, and I suffer from this. I do get aura, but not as a prelude to headaches, because I rarely get headaches. I have aura every day. It's kind of a spiderweby effect or floating dots or lg grey blind spots, sometimes the "firefly" effect. The disorientation in time has happened to me a few times. I've even forgotten conversations that I know have happened before that person has even left my side.

I helps me keep my doses of conventional therapies (ITC, Gabapentin and Trileptal) low. I also do Yoga to stretch my spastic muscles, and the meditative aspect of it helps me to be here, now. Diet has been tossed around as an AT, but again, there have been no large conclusive studies that confirm diet helps MS. No matter if we have MS or not, we should all be eating as healthfully as possible, relying on REAL foods (not packaged stuff with additives).

I found Lamictal the most tolerable out of the 3 and it worked specifically on rapid cycling and mixed states and could not tolerate Tegretol, Trileptal and Depakoate because of personality changes (but that's a potential side effect of all anti-convulsants used as mood stabilizers including the one I take now) but each person responds differently to each medication although generally, side effect profile aside as it is the only medication approved as a mood stabilizer before any other usa

I stuck it out last night, still in horrible pain. I called PCP, he told me to call neuro. PCP thinks I have MS and wants neuro to advise of what to do for pain. I told him neuro calls me "probable" MS, but he said just stick with her, and let her know what is going on. PCP told me from one of my brain MRI, the radiologist notes say it looks like I have a dymelynating problem,from hyperintensity lesions, which MS would fit as a diagnosis.

My doctor just took me off Lithium and what I was taking to sleep- Trazadone- and switched me to Tegretol and Ambien. I have Bi polar type II and Borderline Personality Disorder with Ultradian cycles. I just joined this site while doing absent-minded research browsing on the two disorders and decided "why not?". Set up a profile and even trackers which is something else. But I can't help but find purely scientific facts about the medicines, has anyone been on them?

Hi, Now that you have tested negative for these MS mimics, do you think your neuro may turn his head back towards MS and reconsider? Although, it may be rare for some people to present with trigeminal neuralgia, I'd have to say that everyone is different. He may not to rule out out just, yet. I hope the TN will go away soon.

OK, now I'm 4 weeks into it, I'm on 1200 mg/day of Trileptal, 900 mg/day of Gabapentin, and my usual 60 mg/day of Baclofen, and it's finally starting to ease! Eating is still a little dicey, but it's getting better. What a nasty trip! Thanks, all for your good thoughts!

Ugh, I wish I even knew what to do. My hands and feet have been burning and tingling since last Thursday. I called my current neuro to see if it was a side effect/reaction to Trileptal which I take for trigeminal neuralgia. I finally got a call back from him 3 days later. He says it could or could not be related to the medicine, but basically said to deal with it because the medicine seems to be helping some. My MRI showed lesions and the report states the lesions are consistent with MS.

Trileptal is clinically similar to Tegretol but because of the way it was updated its safer and doesn't require bloodwork. For some people its a good mood stabilizer. It depends. My experience wasn't favorable but I know for some people I know it was and it would work as an adjunct to Lamictal. The side effect profile is reasonably similar to Tegretol and its effectiveness about the same. You could look it up more on the websites we have linked up or the medication website itself.

If you have not been checked for Multiple Sclerosis, it may be something you should bring up with your doctor. I have MS, and for the past month, the left side of my head and face has been numb. This has been accompanied by my left eye watering so bad I can barely see over half the time. If it is MS that has caused your symptoms, it would be wise for you to be aware of it so you can begin treatment.

Hi fellow Ozzie and welcome to our little MS community, yes i'm a tad late in the welcome but when you first joined us, I was on holiday floating on the Murray, so hence my belated hello :D I read through your original posts to see if there was anything in your postings, that could help me with some ideas, i'm truly sorry you've just recently been diagnosed.....hugs! " We have had a heat wave in Australia 40 degree and power cuts so no air con ...man I have heavy legs.

Just wanted to ask if anyone has experienced swollen glands and itchy eyes when taking trileptal? I've only been on it now for 3wks and am currently on 75mg along with 375mg of Keppra twice daily. I don't have a rash but am wondering if this is just a cold or side effect from meds. I called the nurse yesterday at docs office they suggested being checked out by PMD, any suggestions? I dont have a fever or any other symptoms? Thanks for the feedback.

Not sure if peripheal neuropathy is one of the symptoms MS patients experience.I'm not diabetic,so not sure why I have it in my feet.But last night felt it traveling into my legs...Yeeowww! Needless to say,I slept 'til after noon today!

Trileptal and ms

Common Questions and Answers about Trileptal and ms

trileptal