Stroke victims support group
Common Questions and Answers about Stroke victims support group
stroke
My 58 year old husband had a stroke last Sunday. We were let out of the hospital last night with no instructions, warnings or anything. Any sugestions? I am terrified. What next?
I enjoy reading that research is leading to new breakthroughs to help victims of stroke. I have also read that although most recovery for stroke patients is seen within the first 6 months, that patients may recover for YEARS after stroke.
I personally believe that a persons will and the support they receive greatly assist in their ability to recover. Researchers are also making breakthroughs to assist in the treatment of aphasis, dysphagia, paralysis etc.
Also please read "Post Thalamic Stroke Pain". There is a man on there less than 30 years old with horrible pain from his stroke. That's another consequence that I neglected to mention.
We are hoping to find some information or direction.
Our mom, Suzanne, who is 71 had a stroke on the back of her head, on the brain stem on May 23rd 2008. All of her memory and the part of her brain that makes her who she is, is all there. Thank god!
Suzanne was diagnosed with a stroke 7 1/2 hours after being rushed to the emergency room. My family and I found this a bit odd since she had every symptom of having a stroke.
My best friend had a massive stroke on Jan.16/09. As of Jan 18/09 she has been in a coma. She is 51 years old and has been in fairly good health. She has always been a fighter. The Drs. are only giving her less then 5% chance of pulling out of it. Anyone that knows the same situation with any words of encouragement would help. Right now we are helpless, just alot of prayers.
Told that it will take about 6-8 for some of the blood to be absorbed by the brain and that it is normal for stroke victims to sleep more then 12 hours per day. There also risk of seizers, "but hope not". It's also common for stroke victims to suffer from OCD after the stroke.
Taking walking for granted and learning to walk was the most frustrating for me.
Wish you and Mom well.
Hello, my one year old son had a stroke during birth, there is a lot of support on facebook...
https://www.facebook.com/groups/5326941831/?refid=7
That is a group of stroke survivors. Im also part of a group of parents that have children that have had strokes. To be honest with you ive learned a lot more from the group im in then the specialist can tell you. If youd like the link to the other group let me know.
I have found a few case reports that indicate that people with this type of stroke (Wallenbergs syndrome) can suffer from central sleep apnea and I was wondering if this is common knowledge amoung doctors that treat stroke victims. Is 24 hr pulse oximetry monitoring typically required following this type of stroke for 7 days ? Am I right to assume that inpatient care does not perform 24 hr pulse oximetry monitoring.
Thankyou!!
egilpin, this is so difficult. If your parents are open to support, ToughLove probably has a support group in your area. Their website is under construction right now - toughlove.com, but I found this link with the 800 phone number for support groups. Although ToughLove deals mainly with parents of teens, it appears parents of adults are also welcome.
Just a little encouragement for the families of the stroke victims so devastated here. I had a infarct in the temporal lobe in July, 2013. It left me with a grossly weakened left side, numbness and non-control of my left arm and leg plus a myriad of other minor complaints. I have memory issues and anger issues, as well as fatigue. I certainly am not the person I was pre-stroke. I had a lot of therapy for several months and looking back, I regained MUCH control in those months.
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