Seizure disorders rare

Common Questions and Answers about Seizure disorders rare

seizure

Avatar m tn In march 2008 I was reffered from Frimley Park in surrey to The National Hospital London UK for CBTtherapy as a rare serious case for further treatment.Can anyone suggest a specialist who may be interested in exchanging research information on treatments for such cases?
Avatar n tn Will he outgrow them as he matures? Are they likely to become more frequent? My guess is that seizure disorders are so varied that no one can really answer these questions! Is there a general trend in how such disorders progress or disappear? dear kathy, a little more information would be helpful such as: 1. are there any preciptating factors to the seizures? 2. is he awake late at night on the days he has had the seizures? 3. he is on any medications? 4.
Avatar n tn Will he outgrow them as he matures? Are they likely to become more frequent? My guess is that seizure disorders are so varied that no one can really answer these questions! Is there a general trend in how such disorders progress or disappear? dear kathy, a little more information would be helpful such as: 1. are there any preciptating factors to the seizures? 2. is he awake late at night on the days he has had the seizures? 3. he is on any medications? 4.
Avatar n tn Will he outgrow them as he matures? Are they likely to become more frequent? My guess is that seizure disorders are so varied that no one can really answer these questions! Is there a general trend in how such disorders progress or disappear? dear kathy, a little more information would be helpful such as: 1. are there any preciptating factors to the seizures? 2. is he awake late at night on the days he has had the seizures? 3. he is on any medications? 4.
Avatar n tn Rarely, infectious diseases like chronic meningitis or inflammatory diseases that can also cause meningitis (noninfectious) can cause seizures. There are also some extremely rare degenerative disorders of the brain that can present with symptoms of seizures and myoclonus, such as Creutzfeld-Jakob disease. Tegretol at therapeutic doses often causes a feeling of drunkenness, especially when first starting it.
Avatar n tn Hypersensitivity to sudden stimuli does occur among children who have rare degenerative disorders of the nervous system. Arching of the back and other bizarre movements occur in response. However, such children lose gains they have made in development. Your nephew is still making developmental progress. Seizures are not usually provoked by sudden sounds or movements although there is a form of startle epilepsy.
3163121 tn?1343781349 I am wondering if there are any other families out there with children with this rare genetic disorder
421939 tn?1203193242 Hi, I feel sorry that all this happening to your child. I think what you are describing could be seizure. Signs of seizure in an infant are usually subtle. Uprolling of eye balls, jerky movements of limbs, lip smacking, twitching are some of the signs which we can pick up while observing the child. There are several causes of seizures in an infant which includes electrolyte imbalance, meningitis, low glucose or any metabolic abnormality. Does he have any fever?
Avatar n tn Smell seizures are probably more common than recognized. And other smell disorders that are related to "timing" disorders occur and haven't been described in medical texts. For example: I've run into descriptions from menopausal women describing smell disorders and remarking that they are having "hot flashes" from menopause. The hot flashes of menopause are caused by timing disorders, related to hormone deprivation.
Avatar m tn The first time it happened at 3 I had a temperature. Since then I've had a seizure at least every year, apart from once when I went around 2 years without one. Since 3 I've had seizures randomly. However have also had one whilst running (twice) one was a seizure one was a faint, when I was on a trampoline, when on a bouncy castle, whilst sat on a bus, whilst sat eating a meal.
Avatar m tn I personally know nothing about seizures, but I do know that Quix has said that MSers fairly often have abnormal EEGs, but do not have actual seizure disorders any more frequently than the general population.
Avatar n tn Seizures of any type can certainly occur during sleep. There are some seizure disorders that are more likely to occur during sleep, others that do not necessarily correlate with time of day, and others that are more likely to occur in the morning on awakening, but there is no definitive rule, and any seizure can occur at any time. Myoclonic seizures, such as occurs in juvenile myoclonic epilepsy, are of the seizures that commonly occur in the morning, but can certainly occur at night.
Avatar f tn Depersonalization also might be a symptom of other disorders, including some forms of substance abuse, certain personality disorders, seizure disorders, and certain other brain diseases. Depersonalization disorder is one of a group of conditions called dissociative disorders. Dissociative disorders are mental illnesses that involve disruptions or breakdowns of memory, consciousness, awareness, identity, and/or perception. When one or more of these functions is disrupted, symptoms can result.
Avatar f tn hello im christieyes,first a statement than my question:........please bare with me for i'am in a bit of shock at the recent things i've discovered and dealing with all alone,i have nobody,friends,family,only a boyfriend that has me live alone in his million dollar estate while his addiction to work (truck driver across country)& money,leaves me alone,after being hurt by intrudder,faulty home alarm.now god lead me to start googeling somethings,& what i found out is gut wrenching!!!!
Avatar n tn I used to suffer from sleep paralysis a lot, but now the seizure sensation seems more common and the paralysis is pretty rare. The main difference is that I was definitely awake when the sleep paralysis affected me, and I am still within a dream with the seizures. I do have some weird tingling in my arms and legs when in bed, and sometimes during the day, and I also have had chills for years that are aggravated by lack of sleep.
Avatar m tn Hi, agree with you sometimes altered sensory perceptions can be due to seizure disorders. Before you accept this therapy, you can have an EEG done, as this can pick up seizure activity. Please discuss this with your doctor am sure he will provide further assistance. Regards.
Avatar f tn Most nystagmus is present all the time. Intermittent nystagmus can be part of seizure disorders, intermittent use of alcohol or narcotics/cannabis/opoid/drug intoxication. If your mother has the same problem is could be a rare hereditary problem.
Avatar n tn The possibilities include mitochondrial disease, muscle disorders, or metabolic disorders to name a few. A muscle biopsy would be helpful in the evaluation, however it needs to be done properly and analyzed very careful. My recommendation would be to make sure your child is being treated at a large academic center by a pediatric neurologist, and perhaps a pediatric epileptologist. If you are in the area with have an excellent department at the Cleveland Clinic.
Avatar f tn Well only some. My situation is very complex. I have 14 brain abnormalitites, disorders, and disease process. One of them is Adult Onset Obstructive Hydrocephalus. I suffered a seizure black out spell mid 2002 and my life was turned upside down. I began to have horrible head pains, aches, and symptoms every day. Prior to, I rarely remember even taking tylenol for headaches. Many of the things found as abnormal are considered to be birth defects that laid low until this spell.
Avatar n tn Recently I went to a sleep clinic where I have begun working with a PhD specializing in sleep disorders. He stated that it is possible that I have a sleep disorder called PLMS; however, he stated that the jerking while I am awake is abnormal for most sleep disorders. He said it appears more symptomatic of a neurological problem. He has advised waiting to see a neurologist until sleep disorders have been eliminated; however, his comments have left me wondering and concerned.
Avatar n tn What are the long term effects of Coumadin? Are there any rare disorders that might be causing her clotting? I have so many questions and concerns. A heartfelt thanks to any information anyone can share or provide.
Avatar m tn Another thing is that it doesn't last very long, for seizure and other neuro disorders, the twitching/convulsions would last longer usually. I know that it doesn't help for someone just to tell you not to worry about it, but when I was your age I would have random twitches for weeks-months and they finally went away. But I really don't think it is a fatal disease like ALS! I hope this helps some! Good luck!
335728 tn?1331418012 I have been around many, mnay, people w/ Seizure disorders including my daughter. Like Quix said, a video taping may be a good tool in helping the doctor to determine what the heck is going on! You have called your Neuro right?????? On a side note.......How did the fishing go...or did it? Any good fish stories for us? :} I hope you get some answers SOON! Keep us updated.
Avatar n tn she fell down from the bed and cried for a few moments but when i picked her up in my arms she suddenly turned heavy and gave up her body weight, she rolled back her eyes as if she was fainting and did not respond to my voice like a seizure when shook vigorously there was no response however this continued for a period of 10 to 15 seconds after which she revived on her own and became completely normal with no head injuries and perfectly normal behaviour.
Avatar f tn Differential considerations include demyelinating disorders including multiple sclerosis. Recommend further evaluation with MRI with contrast if demyelinating process is unknown for further characterization and exclude additional etiologies." Any help would be so greatly appreciated. I'm so confused. I know and fully accept that only my doctor can tell me exactly what this means for me, but in the meantime I could really use at least some vague direction if someone could be so kind.
Avatar n tn He just turned 8 months and has started having seizures. The first noticeable seizure involved rolling of the eys and stiffening of limbs and lasted maybe a minute. He was very tired after this. He was cleared brain/head wise when he left nicu. He has had an eeg which have gotten conflicting readings. His MRI and lab work are clean. His pediatric neurologist has put him on Topamax 15mg sprinkle caps which seem to knock him out. He is definitely not himself.
Avatar f tn So a good working relationship with your doctor will be very helpful. Seizure disorders can fade with time, but often they don't. A thorough neurological workup, likely including brain imaging, may help find any underlying issues involved, which in turn will help with treatment. Good luck with the neurologist appt.
Avatar n tn Our neuro said if he still continues to have them while on the cypro then we will do further testing to look into a possible seizure disorder so I am waiting for a call back on what the next step is. Have you heard of ANYTHING similar to what my child is experiencing? I just want some kind of answer and I am tired of getting the I don't knows from numerous different dr.s.
Avatar f tn I've been lucky in that I've had doctors witness my seizures (at a movie theater) and said it was definitely a grand-mal seizure. My doctors tell me I'm just a rare case and that I do have vasovagal but in an extreme manner. I'm not sure I buy it. I crashed into a home 8 months ago due to seizure activity. When I was young I would feel them coming on but not any more. It's very scary.