Rsv in cystic fibrosis
Common Questions and Answers about Rsv in cystic fibrosis
rsv
He has pneumonia every other month (since birth), he has also had bronchiolitis (without RSV), bronchitis, H1N1, and most currently RSV. When he was two we removed his tonsil and adenoids in hopes to help his asthma symptoms. While it did decrease the amount of sinus infections he had, it did nothing to help any other area.
He is on Advair, 115/21 two puffs twice daily, and Allegra (for unknown allergies).
He has pneumonia every other month (since birth), he has also had bronchiolitis (without RSV), bronchitis, H1N1, and most currently RSV. When he was two we removed his tonsil and adenoids in hopes to help his asthma symptoms. While it did decrease the amount of sinus infections he had, it did nothing to help any other area.
He is on Advair, 115/21 two puffs twice daily, and Allegra (for unknown allergies).
Another thing I can think of since she has had so many respiratory problems is has she been tested for CF (cystic fibrosis)? Not being able to absorb nutrients and bowel problems are often a problem with CF as well.
I am sure there is a huge list of could be's, but this is all I can think of right now. I am not a doctor, so please take what I say for face value.
I pray that you get answers soon...
went in for my 18 week ultrasound and apt and found out I am a carrier for cystic fibrosis but we had to do testing on my spouse to see if he has it as well. That's gonna take 10 days to get back and it leaves me stuck in my head with the internet as my resource. Has anyone else had this problem because right now it scares the crap out of me and I'm trying to not show that to much to be brave but its hard when ur scared. Advice and maybe a little encouragement welcome.
There are different types of cystic fibrosis mutations in which some are worse than others. Cystic fibrosis has to do with the thickening of the mucous around the lungs, most can't digest their own food, they have trouble breathing and are put on different types of medication. As long as the doctors catch it in time, you shouldn't have a problem. Although there isn't a cure, they can keep it from getting worse or causing death.
If you live in California there are some clinics that do the cystic fibrosis test for about 120$. I am a carrier also but they said even if my husband is a carrier that its only a 1 in 4 chance the baby will have it. Its pretty slim. You could always ask for an amino as you get farther along and ask them to take a sample for that as well. Hope this has been helpful.
I am afraid because I read that this is related to cystic fibrosis and now I think I have it. I also have other symptoms like post nasal drip, seasonal allergies and mucus stuck on my thoath. I also sweat a lot but my sweat is not very salty.
My sister also the wrinkling hands.
So my question is could I have atypical/cystic fibrosis or at least be a carrier and what is my life expectancy? My doctor says I'm too old to be diagnosed with this, I'm 25 years old.
Because if baby has cystic fibrosis the drs will need to plan for babies care accordingly. Such as having a nicu team ready and in the room ect. Its not abour knowing for abortion purposes. Also if you know you can start the paperwork for disability. Its always best to know. Then you can join a support group, research and be as prepared as possible.
On my twenty week scan it showed an abnormal bowel. Either Side effect of having an Amniocentesis at 13 weeks or cystic fibrosis. I'm absolutely scared stiff. At least two weeks before getting any results. Anyone else been through the same?
Maybe you can explain some of it while I research some.But I do need clarification on if by C.F. u mean cystic fibrosis or something else.Which from what I do know about it I am assuming that is what u are referring to.
I am not familiar with Laryngo malasia...and will look it up.
From everything u mention I believe that ur DD's GERD may be a result of all the "sinus" issues.Post nasal drip/phlegm will cause additional acid to be produced.
Again I am not a dr or in that field.
He did not have a newborn test cause in my country is not standard procedure cause cystic fibrosis is very low in my country. He did have a sweat test which was hands down negative and ialso did genetic testing for 50 most common mutations and was also negative! I have no idea what is causing it and is always there. But cf
Scenario scares me from time to time.
Cystic fibrosis is a scary thing and yes, will make your and your child life harder. That being said, don't panic. I worked with a girl who's teenage son has it and while he had health problems and is more sensitive to things like that in general, they've been able to manage it and he lives a very full life. Girls, dances, sports all of that.
Did they see something in the ultrasound? Or was it something in your blood work?
- Nasal transepithelial potential difference (NTPD or NPD) testing can be used to assess the function of the cystic fibrosis gene product, a chloride channel called cystic fibrosis transmembrane conductance regulator (CFTR). Certain measurements are characteristic of CF.
- Clinical genetic testing for CF looks for mutations in the CFTR gene that cause the condition.
t have any other issues. Now that I have been doing research I have scared myself into thinking I have cystic fibrosis. I saw the pulmonologist 9 months ago. I had clear x-rays and a normal spirometry test results. I was also living in a house that had mold, she ran blood tests and there was no mold in my blood. I did have a bilirubin level of 1.4 and normal levels go to 1.2. She diagnosed me with sinusitus and rinitus and told me to take nose spray and clairtin.
I just found out that I am a carrier for cystic fibrosis. I will be 24 weeks tomorrow and they suggested having the father tested to see if he is a carrier also. I have two healthy children (with a different man) already and I don't want to stress my boyfriend out with this if its not necessary. Has anyone else had this and if so did your husband/boyfriend get the test done? Am I being careless by not having him tested? I just dont want to stress him out for nothing.
Is there a cystic fibrosis test for baby while you're pregnant? I am 16w and had a dream that my doctor told me baby had it. It's weird cuz I'd never heard of that disease before my dream. I feel calm about it, but I just want to know if my dream is true or not!
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