Restasis and sjogren's syndrome
Common Questions and Answers about Restasis and sjogren's syndrome
restasis
I finished treatment in 2012 and was undetected at my 6 month appt. I am pretty late on getting the one year PCR but I know the chances of the virus returning are extremely low. I have been dealing with some symptoms that are impacting my life and emotional health and I am looking to hear if anyone has experienced the stuff I am dealing with lately.
*Diagnosed with inflammation of the bladder before my HCV was diagnosed...caused frequent urination and I still deal with this today.
My opthomologist says severe dry eyes, have tried OTC drops, steroid drops, restasis, and now oral medications and nothing helps. And is there any benifit to be dx'd formally? I couldn't find a forum addressing this other than autoimmune or fibro forum, and I always get so much better info & responses here. Thanks all.
Restasis is ok, my eye doctor said to put it in the fridge and I make sure to first take the steroids and wait ten minutes before taking the restasis. I have a rheumy appointment tomorrow and I'll ask him to test the vitamin D. Next week I have a recheck blood test for TSH. I wonder what other blood test Ii can do? I also wonder what other symptoms have to show up before someone makes up their mind. I just wishe the doctors would try out some more meds to see what helps.
Sounds like a systemic issue, not occular since you also experiencing dry mouth. I used to have dry mouth and always woke up with a cotton mouth like nothing else (like when when badly hungover..) as well as dry eyes (no more dry mouth, but eyes still fairly dry in the AM) You need to look for underlying issues, and perhaps look into natural healing approaches..it could be an unbalance in your body, not neccessarely autoimmune like suggested. It is a possibility however...
Just educating myself. Are there patients showing negative on ss a and ss b or only showing positive on ss b and still have sjogren's? If yes, did you show positive on other markers such as ana, smith antibodies, anti- dsdna, sed rate or c-reactive proteins? I hope someone will respond!
Sjogren's or something else? I have been suffering with dibilitating symptoms since beginning Nov, 2012 after having impetigo. All blood tests are negative except weakly positive for sjogren's.
I live in pain everyday. I have two doctors. My Rheumatologist takes care of my autoimmune diseases with vitamins. My Neurologist takes care of the pain from Lupus and Sjogren's with Gabapentin. I suffer from tremors now and am taking Primidone to stop them. It doesn't always work. My GP takes care of my Hashimoto's with Levothyroxine. I also have high cholesterol and am taking Atorvastatin. I no longer have an immune system, which really frightens me.
What were your symptoms and/or tests that led to your dx of Sjogren's Syndrome? I, too, was given that dx after tx, but it turned out to be my thyroid. The damage has been determined to be most likely from the interferon. It can be resolved by replacing the hormone with a daily oral Rx that is very inexpensive.
If your thyroid has been tested and found normal, I urge you to read "The TSH Reference Range Wars: What's "Normal?", Who is Wrong, Who is Right...
I had cataract surgery on my right non dominant eye on 29th of June. It was a standard IOL adjusted for distance. Afterwards I was very greatful for the improvement, although it is was and is very difficult to read at present, as I have quite a large cataract in my other eye which is growing quickly now, and it is too soon to get glasses. 28 days after the op I had a few minutes of rapidly moving, flashing lights and I knew I was experiencing a PVD.
The dry eye is terribly uncomfortable, makes my vision blurry, and causes eye pain, redness and bad discomfort in general, and OTC lubricating drops don't help. I have cataracts and holes in my retinas in both eyes. One ophthalmologist said I should have the cataracts removed, and another one said it would make my dry eyes worse, partly because of the RK surgery I had about 25 years ago (I'm now 67). And they both said surgery cannot be done on the retinal holes.
It sounds like you have definite dry eyes, regardless, and you will need to use artificial tears, possible flax and fish oil supplements and possibly other treatments such as plugs and restasis. Just an observation from afar - but you could also have an anxiety disorder, perhaps - and that could worsen your dry eyes, gerd, tingling and weird feelings. I wish you all the best.
I was diagnosed with Sojgren's Syndrome more then ten years ago, however the symptoms were so light that I didn't need to worry too much about it then. Now I am 35 years old and about 4 and a half months ago I started with neck pain. All the doctors I saw thought it was nothing however I new something was wrong. I finally was able to get my family doctor to refer me to a rheumatologist who also thought I had nothing that it was something uscular.
My ophthalmologist recently prescribed restasis for dry eyes. I read that cyclosporin can causes cancer. Is this true? Are these drops safe?
I saw 3 ophthalmologists and had all kinds of tests done. My tear quality was poor among other things. I was put on restasis and steroid eye drops which helped immensely with the irritation.
I eventually stopped the restasis (the steroids were of course a short course) and everything has been pretty good with only occasional issues that with a day or two of warm compresses have alleviated symptoms. I tried to keep a mental note of what might have caused the flare.
In addition, sicca syndrome marks the autoimmune process of Sjogren's syndrome. Sicca is the latin word for dryness and usually refers to dry eyes and mouth. Aside from Sjogren's , sicca features can also be found in other diseases such as systemic lupus erythematosis, rheumatoid arthritis, and systemic sclerosis. These cases are often called Associated Sjögren’s. Autoimmune diseases refer to the body having an immune reaction against itself.
Recommended
