primary progressive ms symptoms signs

Hello All, I'm a 39 year old active male suffering from a build up of neurological symptoms since the summer. In late July, I felt a tingle running down my right arm which I thought was caused by a pinched nerve (I was traveling during the time). It stayed with me until I came back home in August. From then on, a whole series of symptoms emerged. I felt a heaviness in my chest and the tingles now shifted to my left arm. Thinking it was a stroke, I was rushed to emergency.

//www.nationalmssociety.org/What-is-MS/Types-of-MS/Primary-progressive-MS/Diagnosing-Primary-Progressive-MS Marburg's variant or also called Fulminant MS which is the only type i'm aware of that is 'rapidly progressive' but it's exceedingly rare. It's a type of MS characterized by frequent, severe relapses with a rapid increase in disability and is associated with large inflammatory lesions on MRI that look like tumours.

//www.nationalmssociety.org/What-is-MS/Types-of-MS/Primary-progressive-MS/Diagnosing-Primary-Progressive-MS It would be pretty unusual after such a long time frame to not have developed multiple neurological abnormalities and higher disability rates by now, so i don't think it's really surprising if the MS neurologist you saw does have concerns that you 'might' have been misdiagnosed with MS back in the 90's.

I only bring it up because many neurologists know little about Primary Progressive MS. I went to a few neurologists before I had one who was an expert in it. Hopefully you do not have MS but is you go to a MS specialist ask when you are referred to get one who is well versed in PPMS. Also if you read about PPMS do not get freaked out. I have had it for over forty years and I am doing well.

You may have heard of Secondary Progressive MS as this is what most people who have Relapsing Remitting MS progress to over time. It is similar to Primary Progressive MS in that things do not resolve. Some people continue to have relapses but inbetween they do not get better, others no longer have relapses and just steadily get worse. There is also Progressive Relapsing which as the name suggests it is progressive from onset but unlike PPMS there are relapses.

Hi all, I pray ya'll are doing well. I'm still having a rough go of it. This latest flare has been going on for almost 6 mo. Actually my doctor told me that since I have PPMS that I wont get better. The muscle weakness that causes me to be in a wheelchair is permanent. That really bites the big one. My question is: Why will none of the current medications that are given for MS (the injections like Rebif) work for PPMS?

A significant number of people with Relapsing/remitting MS move on to Secondary progressive MS. In secondary progressive MS there are less likely to be relapses. There is a steady advancing of the disease. In my case, thankfully, the advancing is taking its sweet time :-) The other 2 types of MS are progressive relapsing and primary progressive. These are distinct types of MS. They occur less frequently and tend to be more severe.

primary progressive MS and secondary progressive MS. Primary progressive is much more sever and much more rare. It is characterized by a steady decline in function. There are no relapses and there are no available treatments. MS never moves from relapsing remitting to primary progressive. It seems that you have relapsing/remitting MS so you don't have to worry about getting primary progressive. Secondary progressive MS is the progression of relapsing/remitting MS.

Treatments for relapsing-remitting MS are very ineffective for primary-progressive, secondary-progressive, and progressive-relapsive MS. There are technically 4 different types of MS and it is important to be correctly diagnosed based on your symptoms as to ensure that you recieve the specific medication type to help you with your symptoms. I am so sorry to hear that you are experiencing thos and I can't even begin to imagine how frustrating this all must be for you.

Comments by HVAC and Quix bring up some questions for me. HVAC (Alex) said, "I have had the disease for over forty years with no treatment. ... I have double vision, vertigo, balance problems, cognitive issues, left side weakness and, headaches, and it is getting harder to walk over time. ... The bad part in PPMS is sooner or later mobility is an issue.

You mentioned your concern about poor prognosis because of agegroup. Are you worried about primary progressive MS? Are there other symptoms like fatigue, balance, weakness?

Over 20 years ago, at the age of 22, I was diagnosed with primary progressive MS. My method of coping was DENIAL! Since the doc was wrong, (I actually have relasping-remitting), and since the course of my disease was so mild (although I've had repeated exacerbations and relapses, I've always had nearly complete recovery in a matter of weeks), living in denial has worked well for me for a long-long time. In Jan '08, I lost the sense of taste across about 2/3 of my tongue.

I was asking about Progressive Relapsing not Primary Progressive! Sorry. I wrote PPMS instead of PRMS.

Hi not sure if anyone remembers me i started the group Surviving Neurological Limbo Land. Well finally after TEN LONG YEARS, i got diagnosed with MS, and its now Primary Progressive. So the point of my post is this. Never give up. I never did. My final test was another VEP test which came back positive again for ON. In between have had several lesions on spine, but a non classical looking lumbur puncture which was the reason i didnt get the diangosis in the first place.

Progressive-relapsing MS (PRMS) is the rarest of the MS disease courses, only affecting about 5% of people diagnosed with MS. It is similar to primary-progressive MS (PPMS) because both types of MS are steadily progressive from disease onset. With PPMS, there is steadily worsening of neurologic function from the very beginning, although the rate of progression may vary over time with the patient experiencing occasional plateaus or minor temporary improvements.

https://www.medhelp.org/posts/Multiple-Sclerosis/What-is-Non-progressive-Relapsing-Multiple-sclerosis/show/3020818 i wrote a response to a similar question back in 2018, which is probably why your question was ringing bells but i wasnt coming up with what i thought i would....

Primary Progressive MS often migrates into the brain, but is less likely to damage brain areas than relapsing/remitting or secondary progressive - for example, people with Primary Progressive are less likely to develop cognitive problems. PPMS is the sub-type of MS that is least likely to show inflammatory (gadolinium enhancing) lesions on MRI scans. The Primary Progressive form of the disease affects between 10 and 15% of all people with multiple sclerosis.

Definite diagnosis cannot be made until other disease processes (differential diagnoses) have been ruled out and, in the case of relapsing-remitting MS, there is evidence of at least two anatomically separate demyelinating events separated by at least thirty days.

So if you are told by your neurologist you have had MS for a long time or have Primary Progressive the DMDs will probably not be an option. RRMS is marked by periods of inflammation and remission. It is not a true remission damage can be done even with out symptoms. 10% of people with MS mostly folks in their 40's will start out with Primary Progressive. You do not present with attacks, you just notice it you can't run like you used to, then it gets a little harder to walk.

In the case of primary progressive, a slow progression of signs and symptoms over at least 6 months is required .Also lesions are seen in elderly age group.The diagnosis of MS is more of clinical . Magnetic resonance imaging (MRI) and magnetic resonance spectroscopy (MRS) of the brain and spine is often used during the diagnostic process. MRI shows areas of demyelination (lesions) as bright spots on the image.

I have Primary Progressive MS. My understanding is that I do not have flairs as other forms of MS. So, when I awaken with severely interrupted balance, legs that are so much weaker than when I went to bed, and fatigue like I have not known before is this not a flair? Can someone please explain? I am confused...now, that is not anything new! LOL. Thank you.

I'm curious what symptoms led to your MS? I had started dragging my left foot a little and holding my last hand in a fist, against my chest. I started thinking "maybe I've had a mini stroke". It was that thought that started the January to July (2008) search. My primary care said "no stroke" and sent me to a neurologist. MRIs, blood tests, electro-something, ending with spinal tap followed.

Primary progressive ms symptoms signs

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