People with narcolepsy often find

Common Questions and Answers about People with narcolepsy often find

narcolepsy

Avatar n tn The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime. I was tested for epilepsy, migraines, MS, all kinds of things. But nope, it turned out to be narcolepsy!! Get seen by a sleep center!
Avatar m tn It sounds very much like narcolepsy. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy.
1745492 tn?1320198340 I have symptoms that some people say are consistent with narcolepsy. However, all I have seen are people with severe narcolepsy, and I'm not as bad as them. I do have very vivid dreams that can be stressful to me. I can write whole books on my dreams because they are so vivid. They are so stressful sometimes that I wake up sweating. I can fall asleep quick. As in I can take an short nap, say an hour, and still dream. I do not sleep well at night and have very interrupted sleep.
Avatar m tn Narcolepsy is a serious neurological disorder involving excessive daytime sleepiness, cataplexy (loss of muscle tone with emotions such as laughter), sleep paralysis and hypnogogic hallucinations. Although narcolepsy affects 1 in every 2,000 people worldwide, it's often misdiagnosed or goes undiagnosed for 3 to 15 years. When will health professionals WAKE UP to the REAL narcolepsy?
Avatar f tn Narcolepsy, how to find the severity of this sleep disorder? I am helping my friend with his disability claim. He has PTSD also and is not able to discuss the Narolepsy with doctors or me or anyone. How can I show the severity of his Narcolepsy. He goes out of way to look normal everytime he has an evaluation for mental stability. He has sleep Apnea #12 CPAP nightly. He is not able to tolerate the Narcolepsy medication. throat clossed, tongue swale, stomach blew up, stayed in toilet.
Avatar f tn I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.
Avatar n tn memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, visual hallucinations, and twitchy feelings and weakness and paralysis in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar n tn See a sleep center. Recurrent "Bells Palsy" and twitchy feelings are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar n tn See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (especially the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar f tn t need to have every symptom of narcolepsy to actually be diagnosed with it, however, you do need to have EDS (excessive daytime sleepiness). I was diagnosed with narcolepsy twice, and I am always exhausted as well and need to take naps during the day, however, I don't have cataplexy or sleep paralysis... It is really common for narcoleptics to have restless sleep at night as well, and the vivid hallucinations (along with noises) and dream-like feelings are also a key sign of narcolepsy.
354585 tn?1225913214 It sounds very much like narcolepsy. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, and twitchy feelings and weakness and paralysis in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar m tn The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime. I was tested for epilepsy, migraines, MS, all kinds of things. But nope, it turned out to be narcolepsy!! Get seen by a sleep center!
Avatar f tn The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines. I struggled for years to find an answer, and was misdiagnosed several times.
612876 tn?1355514495 I am grinning ear to ear. A giant weight has been lifted off my shoulders. I recently switched neurologist's offices and started over with a new team, hoping to find the answers to the parts of my illness that remained unexplained by the POTS/syncope/migraines diagnoses. In particular, the fact that sometimes I am completely paralyzed when I "come to" from a syncope.
Avatar f tn People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing. Hallucinations: Some people with narcolepsy experience vivid, sometimes frightening, visual or auditory sensations while falling asleep or upon awakening. Sleep paralysis: Sleep paralysis is the inability to move or talk at the beginning or end of sleep.
Avatar f tn If you can associate the dreams with anything that normally happens when you are awake, for example, the same place or type of activity, practice waking up. Yes, if you are awake nothing will happen, but it may condition your subconscious mind to being taken over by your conscious mind. I do not understand the part about "people who have been there"... does that mean you slip into the "state" when you our out with people?
Avatar m tn See a sleep center. Recurrent "Bells Palsy" and twitchy feelings are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
11941637 tn?1422287346 I began developing symptoms of narcolepsy in high school, however, due to a lack of understanding at the time, it was not diagnosed until I was 23. My grandfather on maternal side had Parkinson's as long as I can remember, and I recently learned of a history of Lupus on paternal side; including grandmother, two aunts and my father himself. As a child, I always remember my grandfather, with his tremors, being prone to falling asleep any time he sat down.
Avatar f tn I had symptoms very much like yours but I had a doctor who refused to label it narcolepsy until I had been thoroughly tested with an overnight sleep study. Even after treating my sleep disorders (OSA & PLMD), the doctor requires that I am consistently getting more than 6 hours of proven quality sleep over a period of time before considering a diagnosis of narcolepsy.
Avatar f tn i see people, first it started with a woman she is always wearing a pink long gown that flows when she walks. she brought some friends along. one is a young girl about seven she has something in her right hand, i cant tell what it is and the other is a man. the little girl looks sad all the time. the woman looks frightened and the man look really mean. they dont say anything they just stand there with a small gap between them. they go every where i go.
Avatar m tn The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime. I was tested for epilepsy, migraines, MS, all kinds of things. But nope, it turned out to be narcolepsy!! Get seen by a sleep center!
Avatar n tn See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar n tn Oops that was the wrong post. Sorry guys. This is what I wanted to tell you: See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks.
Avatar f tn When the doctor told me I had hypersomnia I asked if he was sure it was not narcolepsy. He told me one of the differences is naps help people with narcolepsy, but not those with hypersomnia. And napping never made sense to me, because it did nothing to relieve the tiredness. Also with hypersomnia you get really good sleep, but for some reason you need more of it. Hopefully you have a sleep study soon, so that you can get your answers.