National narcolepsy registry

Common Questions and Answers about National narcolepsy registry


535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar f tn the proposal might lead to a firearm database. The very idea of some kind of national gun registry was so offensive to the right that the legislation had to die at the hands of a Republican filibuster. It didn't matter that the bipartisan bill had no such database. It didn't matter that the bipartisan bill explicitly made the creation of such a registry a felony. All that mattered was that conservatives had a lie they liked, and which they used to great effect.
148588 tn?1465778809 The programs, which are free to parents, collect cord blood immediately after birth for listing on the National Be The Match Registry operated by the National Marrow Donor Program network......There is sharp competition from private banks, which typically charge $2,000 to collect the cord blood and additional monthly fees to store it for the family’s future personal use.......
616227 tn?1251076398 Of note .. that may be of interest to the community .. is the National Weight Control Registry. Anyone who has lost at least 30 lbs and kept them off for at least a year is eligible to participate. Thanks for the reminder that ordinary, everyday people CAN BELIEVE and ACHIEVE their DREAMS! WE CAN TOOOOOO!!!!!!!!!
667078 tn?1316000935 Then she looked at me and asked what the MS Society wanted. I said the national MS and Parkinsons registry, the high risk pool and I thanked her for shortening the drug patents for most drugs. Then we had our picture taken with her including Polly. The folks in the room make up a business think tank trying to improve the health care system.
Avatar m tn t enough matches in the National Bone Marrow Program registry, and providing incentives would allow more life-saving matches to be made. The plaintiffs in the case argued that bone marrow donation is not so different from blood, plasma, sperm, or egg donation, which are not protected under the National Organ Transplant Act.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
168348 tn?1379357075 Im on holiday with family and we'll be celebrating at Acadia National Park in Maine. The pictures I have seen are gorgeous so I can't wait to see it live! I hope all here are doing well, it's been a while since I have posted so I am just stopping by.
Avatar f tn The following information is taken from a reliable source of prescription drug information, Lexi-Comp. For Singulair the statement below, is not the equivalent of a statement that the drug has been shown to be safe. For Zyrtec the statement suggests that this drug is probably safe but that there is not enough evidence to confirm that belief. You may want to discuss this information with your doctor.
Avatar n tn For diapers go and register for all the major companies (Huggies, Pampers, luvs, ...) And the national diaper registry if you are in the USA. For other items try craiglist look under baby and use free under search. Depending on your due date try Facebook and try contests that have verified winners. Also register at every store. Target and babiesrus give samples. Good luck.
Avatar f tn Yes I am a diagnosed ms sufferer, when I say accidents. .
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
398849 tn?1210135972 I think the way to find out what is causing thyriodism is to have a national registry base with all the biopsy results on. A simple voluntary questionare with the write questions should be able to pin point this problem very quickly. This is a great tool to discovering what is causing any disease especially one on such a sharp rise all over the world. If they can get to one major cause for cats surely us humans should be able to do the same.
Avatar m tn I have to agree with Margot. The average non-dog-person (meaning pet owner, not someone who shows/breeds) for the most part thinks that American Kennel Club papers are somehow a prestigious thing, denoting that their dog is a registered whatever-the-breed. All the AKC represents is that both of the parents of any dog registered with them are of the SAME breed. It speaks NOTHING of the quality, temperament or health of the dog itself. It is a registry. Plain and simple.
Avatar m tn Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.
1745492 tn?1320198340 My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.