Narcolepsy yahoo group
Common Questions and Answers about Narcolepsy yahoo group
narcolepsy
pls visit our 
looking to get in contact with other sufferers in my area to possibly have support group meet-ups i created a facebook page to hopefully get a group of people together in my area to teach and learn from our experiences
https://www.************/pages/Interstitial-Cystits-of-Northern-New-Jersey/1434557896816760?
t start till June I can go to class next quarter Yahoo. Even if USC changes my mind about who does it I can still push it off till summer. I can't stay home I just can't.
I walked to the library without stopping and back (with a bathroom break and grabbed a couple of books inbetween) with the walker. I wasn't able to do it without stopping a lot 2 weeks ago. Yahoo. Oh and I started PT exercises on Thursday. It went well. I'm still working on getting off the walker.
m not too sure what all of that means but I belong to a Yahoo! group whose members may be able to help. Sphincterofoddi_pancreatitis AT yahoogroups *******. Since medhelp usually blocks these out, feel free to write to me for the address. Michele, the Moderator, is an R. N. and she can usually help with interpretation of reports. Of course, I'm not a doctor and neither is she.
Visit Lab Tests Online at http://www.labtestsonline.org/understanding/analytes/cbc/glance.
You need to see a physician Sleep Specialist.
1.You could have sleep apnea and would be ''cured'' by using a CPAP machine when you sleep.
2.You could have a form of narcolepsy which could also
be diagnosed by a Sleep Specialist.
3. You could have another type of a rare daytime sleepiness disorder named IH (Idiopathic Hypersomnia) which usually appears in your age group and older.
The second group on Yahoo is EDSers. ***@**** The group is a smaller group of people but if you type a problem you will get someone that has been or is going through the same thing you are rather quickly.
EDS is not as rare as was once believed to be. Now about 1 in 5000 people have this disorder compared to when I was diagnosed (in the 70's) it was about 1 in 20,000 people. My older sister and my daughter both have EDS.
I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since,
nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy,
and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't
believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch
my doctor, but in the meanwhile, I have been more tired lately than usual.
perhaps there may be some in your area. Oh - by the way, if you do read the Yahoo support group discussions, I tried their suggestion re: EMU oil, and it was AWFUL for me. My gyne said no, no, nooooo.
Good luck, and even though this disease is awful, you're not alone with it.
Here's to the best -- and let us know if you find something that works for you.
I take it as drug theropy for Narcolepsy. I was diagnosed about 3-4 yrs ago. Since being on the Vyvanse it has helped me tramendously. Might be something to look into. Is is possible these sleepy episodes were going on for a longer period of time but possibly you though it was due to another reason? My biggest trigger is the car. As soon as I get into a car basically my eyes go shut and am extreamly tired.
Recommended
