Narcolepsy xyrem depression
Common Questions and Answers about Narcolepsy xyrem depression
narcolepsy
I too only had to do 4 naps bc it was clear I had narcolepsy. I was prescribed xyrem as well as nuvigil and provigil during the day. My dr had me titration each week starting at the smallest dose which you take twice a night (it's a pain waking up but you get used to it) and then worked my way up to the highest dose. I am also an extremely deep sleeper at night. An atom bomb could go off and I wouldn't hear a thing yet I am exhausted during the day and I definitely need my naps.
This is not a question, but a comment. My husband has been on Xyrem since the fall of 2005. He now has a considerable amount of central sleep apnea and is being removed from Xyrem to prove that the apnea is indeed coming from the drug. He was diagnosed with narcolepsy, but I have never been real convinced of that because he has always been sleep deprived and depressed. The depression he would not admit until just the last year, and with him it is an "off-limits" subject.
ve been incredibly stupid and smoked a joint earlier, without putting any thought to the effect it would have on my xyrem intake prescribed for narcolepsy). I had quite a bad reaction (couldn't walk at one point), so it won't be doing it again. I'm now concerned about how long I'll have to wait until I can use xyrem again. I'm guessing the within 24 hours s a massive no no, but how about the next night (48 hours)?
s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
but now when im off the xyrem i have insomnia. which i dont understand if i am narcoleptic? Please give me some advise on what i need to do concerning this med and what i can do if i stop it where my sleep is concerned. When i'm on xyrenm i can stay awake all day, but when i'm off i can not sleep at night and sleep all day and totally exhausted. PLEASE HELP!
I take Xyrem for narcolepsy - my sleep issues are controlled. The cold feeling can happen anywhere it is less than 75 degrees. So it is more a going out thing since our house is 75 degrees and I am comfortable here
Leaving the house and going places is the issue, in the summer everyone has their Air Conditioning cranking, and in winter no one has their thermostat set to 75.
I was recently told I have Narcolepsy with Cataplexy. I am a 74 year old Female and I am taking 20mg of Ritalin SR in the AM and 25mg of Imipram for the cataplexy in the PM. I get about 2 to 4 hrs sleep and the rest of the night I toss and turn. My Dr. told me she doesn't give meds for her patients to sleep.
I am concerned about not sleeping and then taking Ritalin to keep me awake during the day.I feel my health will be affected. Is this the normal way to treat my condition?
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
I am 46 yrs old I have been Dx with EDD/narcolepsy and following recent sleep studies with central sleep apnoea. I have been on modofanil for 12 yrs . I am now on maximum dose of this and while it makes life semi bearable I have days where I am so tired it is difficult to describe.
I have no idea wht to do next , whether to go back to sleep clinic or go see the neurologist or just soldier on . Seems to be the end result of most interventions anyways.
I'm here! Xyrem--ghb same thing. Yes tried to get clean I just want more and more and more and more how do i stop!!!!!!!!!!!!!!!!!!!!!!
I have a Narcolepsy diagnosis. However, no one has been able to answer the question about improving the stages I need to. I take Xyrem at night now so that I have two four hours blocks of solid sleep. The first 2 weeks I took it, I felt better than I had in over 10 years. (I was on Xyrem during the last two sleep studies.) After that, I returned to the unrefreshed sleep.
I don't drink alcohol and I make sure that I don't eat at least 2 hours before I go to bed.
I was on Seroquel for about a year and a half and I have to say all that it ever did for me was help me sleep but I was only on 100mg-150mg at bedtime + trazodone 200mg., I have depression also but I think that the dose for depression is higher than 150mg. Maybe that is why it never helped with my depression?
The best med that I have ever taken for sleep is triazolam (Halcion) .25mg @ bedtime. Ambien works for about a few weeks then I need to take a break from it before it will work again.
I've had fibromyalgia for 5 years now and the insomnia part is out of control. Saw a new sleep doc, and I don't know how I can do what he wants me to do! I did a sleep study - I had, as they put it, extremely light apnea only when I had nightmares. But since my doc wants to try me on xyrem, he said I have to use a bipap - and just found out yesterday that he needs what he calls "full compliance" - which in his words is having it on 7 hours straight, every night, no matter what.
Wow, this sounds EXACTLY like me. I've been dealing with exhaustion for the past 4 years and seen countless doctors. A lot of them try to tell me it's related to my depression, but I've had depression practically since I was in the womb--the fatigue I experience now is nothing like the kind of tiredness associated with depression.
I have narcolepsy and after taking all sorts of different stimulants I found lortab to be the best solution for my excessive daytime sleepiness. The stimulants had terrible side effects like licking my lips constant, fast heart beat and worst of all my body still felt exhausted so I
Would lay down to nap and my mind was going so fast. So I
Talked to my Dr and she prescribed me two 7.5 lortab a daily to take half a pill at a time.
s disease
- Severely increased daytime sleepiness and fatigue (diagnosed with atypical narcolepsy/idiopathic hypersomnolence and currently treated with Xyrem)
- Joint pain
- Loss of appetite (currently helped with Prevacid)
- Painful digestion (currently treated with Prevacid)
- Acid reflux (currently treated with Prevacid)
- Random muscle spasms (twitch-like spasms that have occurred in my eyes, stomach, back, legs and arms so far)
- Numbness (which has occurred in my right foot and right arm s
with the research I have done, it suggests possibly narcolepsy. PLEASE HELP!!!! It is very scary and my husband is starting to think I am crazy!!!
Hypersomnia is sometimes misdiagnosed as narcolepsy where a person experiences a sudden onset of sleepiness. The causes can be genetic, brain damage or medical disorders such as clinical depression, uremia and fibromyalgia. Sometimes hypersomnia may be other sleep disorders such as narcolepsy, sleep apnea, and restless leg syndrome. Your symptoms may be linked to depression.
You should consult a psychologist for a complete medical and psychological workup.
I think it is more orexin over activity ( opposite of narcolepsy) causing our problems. I have been on Xyrem, all the hypnotic drugs and the new DORA's ( dual orexin receptor antagonists) which stop the awakeness and alertness in the brain. I believe the secret is to alternate drugs so you don't get tolerant to any one particular drug. Several of them upregualte at different brain receptors. ie GABAa, OX1, HSi etc.
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