Narcolepsy with ms

Common Questions and Answers about Narcolepsy with ms

narcolepsy

Avatar f tn I only know that when Jules got the diagnosis of Narcolepsy/Cataplexy I looked up whether they were associated with MS and saw that there were several reports of people with MS having the two. But, now I have seen the new study that shows that narcolepsy is an autoimmune disorder, so I do not know how to answer your question.
Avatar f tn The neurosurgeon confirms the bulging disk at C6 but says my walking problems and arm problems are caused by MS. The new neuro says I have narcolepsy with cataplexy. Note: "cataplexy which is almost unique to narcolepsy makes the diagnosis much easier." For me cataplexy manifests itself sporadically. Sometimes if I have a real big sneeze/cough/laugh my legs will buckle and I have to catch myself before I fall.
Avatar n tn See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar m tn The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it. 75% of people with narcolepsy never get diagnosed in their lifetime. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines. I struggled for years to find an answer, and was misdiagnosed several times.
Avatar f tn Neurosurgeon (cervical MRI showed bulging disk C6 level) this could cause some of my problems but not all and my reflexes are more indicitive of MS. He is 50/50 that I have MS. Says that since I likely have MS the surgery would not help my symptoms. Neuro C - says I have narcolepsy and cataplexy. Read my recent posts for the cataplexy info. This should be listed as a top mimic and/or agent to worsen MS. There are definite events on my timeline that didn't perfectly fit MS.
Avatar n tn memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, visual hallucinations, and twitchy feelings and weakness and paralysis in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar m tn I'm a 22 year-old male On 12/9 i was diagnosed with Bell's Palsy (paralysis on one side of face). I took meds for a week and it went away. On 12/27, I started feeling mental discomfort (hard to describe), and an off-balance feeling, though I have been moving around just fine, fatigued, and eye discomfort. Yesterday I went to a PA. He gave me some physical tests which I passed.
Avatar f tn Modafinil is a drug for narcolepsy prescribed for MS fatigue. I am interested in knowing if you have narcolepsy or MS fatigue. Recently I have been experiencing extreme fatigue for which my neuro prescribed amantadine. It is working. The next step would be modafinil but I was told that many of their patients use Ritalin or adderall. Both are addictive so they start with the ones with least side effects first. So far amantadine has been helping get me through my day without crashing.
354585 tn?1225913214 It sounds very much like narcolepsy. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, and twitchy feelings and weakness and paralysis in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar f tn Geesh, the doctor is right I do have Narcolepsy with cataplexy. (I also have MS but only the neurosurgeon is willing to give that dx right now.) Why this visit was successful and a key for everyone else: Only allowing me to work with one symptom worked. Removing the fatigue from all of my other symptoms allowed this to be properly diagnosed. Gosh what a surprise. Try focusing on only one symptom. The one that if fixed would provide the best quality of life improvement.
Avatar f tn I'm a limbo lander and my new genius neuro just dx'ed me with narcolepsy w/ cataplexy. He did this based on how I described my fatigue. He said I was tired not fatigued. I've since been researching narcolepsy & cataplexy. Most of us complain about being fatigued but we don't go into details. My new neuro thankfully asked for details.
Avatar m tn memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar f tn Ok, can someone tell me what sleep apnea has to do with MS? The specialist has ordered a sleep study along with the EMG and 2nd MRI. He asked if I snore at night, told him he'd have to ask my beagle, ha ha... Seriously though what is the correlation if any between sleep apnea and MS. Thanks.
Avatar m tn After LOTS of tests I started doing my own research on sleep disorders because I was very tired during the day, but was also not sleeping well when I was asleep. I was finally diagnosed with Narcolepsy with cataplexy but my cataplexy symptoms have called down alot over the years.
Avatar n tn See a sleep center. Recurrent "Bells Palsy" and twitchy feelings are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar n tn See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (especially the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar m tn See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar f tn Hi and welcome, To be honest I doubt what you've mentioned would be related to you having an additional medical condition like MS.....you've already been diagnosed with Thyroid Hoshimotos, and on top of that Narcolepsy, the most commonly associated symptom of Narcolepsy is excessive daytime sleepiness, which probably why you been dx with Chronic Fatigue as well, the constant level of fatigue could genuinely account for the cognitive issues you've been experiencing.
Avatar n tn memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar m tn See a sleep center. Recurrent "Bells Palsy" and twitchy feelings are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar m tn I had it with just sleepiness during the day and what looked like insomnia at night for probably about 15-20 years before I ended up with more serious symptoms of narcolepsy that actually included cataplexy (random muscle weakness that can either be isolated, or widespread). The cataplexy manifested first in my face, as what looked like episodes of Bells Palsy that came and went when I was tired, stressed, or even when I was happy and smiling.
Avatar f tn See a sleep center. Recurrent "Bells Palsy" and twitchy feelings are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar n tn See a sleep center. It sounds like narcolepsy with cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate it, but it can happen seemingly in random fashion, too. I went undiagnosed for about 15-20 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it.