narcolepsy with catalepsy

i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist. Also i have been diagnosed with a small pituitary gland tumor witch may be contributing to my symptoms my doctor says unlikely.

I looked at your youtube video and someone responded by suggesting it could be Catalepsy. Have you been tested for that?

I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.

I know this is an old post but am hoping that you get this message. I was just diagnosed with Narcolepsy also and I am a recovering Meth addict. My doc knows my history and I am struggling to get the appropriate help here.

t been doing so well, having a hard time dealing with things... but, I was just wondering, if narcolepsy is a common thing with Chiari 1, or if any of you happen to have it? I have tried to do some googling on it but, I haven't found too much on it.. most everything I found is on apnea.

memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.

I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?

See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.

Under recommendations it states that 1. I don't have sleep apnea (I knew that), and the 2. Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly.

I was diagnosed with CFIDS in 1994. Narcolepsy in 2005. I get basically no stage 4 or Rem sleep at night. Its no wonder why our mind and muscles can't heal themselves. I can go into almost instant dreaming during day (MSLT naps). I haven't been able to get anyone to help me figure out how to correct my sleep cycle. If you get any ideas, let me know. (I am on meds to help sleep and keep me awake at the right times, but it hasn't helped the sleep cycles.

I think I read somewhere that people with Narcolepsy should try to keep the levels above 350. But i am not sure.

I had symptoms very much like yours but I had a doctor who refused to label it narcolepsy until I had been thoroughly tested with an overnight sleep study. Even after treating my sleep disorders (OSA & PLMD), the doctor requires that I am consistently getting more than 6 hours of proven quality sleep over a period of time before considering a diagnosis of narcolepsy.

I've been dealing with a form of dysautonomia since 2006, it has now turned into pots. I'm scheduled for a pacemaker right before Thanksgiving. I wear the stockings, eat salt and massive water. I have extreme fatigue regardless of what I do...no anemia...take b12, vit d is ok..but the past 6-8 months I've experienced extreme sleepiness almost to the narcolepsy degree..my life which was already fractured due to the other horrible symptoms has pretty much come to a stand still...

i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.

After LOTS of tests I started doing my own research on sleep disorders because I was very tired during the day, but was also not sleeping well when I was asleep. I was finally diagnosed with Narcolepsy with cataplexy but my cataplexy symptoms have called down alot over the years.

I have narcolepsy with cataplexy and am the same way. I can sleep for days at a time if I don't take my meds. But at the same time I also can have a flair as to where I am awake for 2-3 days with no sleep. I'm very forgetful and I do have sleep attacks but not very often.

Similarly, research compiled by Markku Partinen of the Helsinki Sleep Clinic and Hanna Nohynek of the National Institute for Health and Welfare in Finland, both of which were also involved in the new research, has determined a link between Pandemrix and narcolepsy. Children not vaccinated with Pandemrix were found to have a 1300 percent less risk of developing narcolepsy compared to children who were vaccinated with Pandemrix.

My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.

Do your symptoms match with peripheral neuropathy? I have narcolepsy, too, and I actually get some random numbness (not weakness) and tingling at times, but I have a host of other neurological symptoms that can be linked to a pineal cyst and two venous malformations. Narcolepsy is believed to be an autoimmune disease, although this hasn't been confirmed.

My daughter has just been diagnosed with Narcolepsy. She is 12 years old and in February received polio/diptheria vaccine and hep A before going to mexico. She then started having these symptoms. she was given the HPV vaccine a couple of weeks ago and since her symptoms have seemed worse. No one can tell us if its linked or not but I really strongly think so!

Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.

m Mandy i am 17 will be 18 in july and I suffer from the same thing but since age 4 it was scary but I finally got diagnosed last year with narcolepsy with cataplexy it was a releaf to finally find out what plagued me for so long I know where you are coming from. I was put on Ritalin for it but stopped taking it since I didn't like the side effects, so now I'm just living day after day with it and many of my friends at school support me others just make fun of me but I don't care.

) that you need to (pass/fail ... not sure how to put that) before getting diagnosed with narcolepsy. Did you have to stay after your overnight study and do another one that lasted into the afternoon where they ask you to nap over and over again? I personally think it might be worthwhile to inquire about whether you meet the diagnostic criteria for Idiopathic Hypersomnia. Nuvigil is a medicine used to treat IH as well as narcolepsy, so it would fit with what the doctor has prescribed already.

Narcolepsy with catalepsy

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