Narcolepsy with age

Common Questions and Answers about Narcolepsy with age

narcolepsy

Avatar f tn I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.
Avatar n tn My daughter has just been diagnosed with Narcolepsy. She is 12 years old and in February received polio/diptheria vaccine and hep A before going to mexico. She then started having these symptoms. she was given the HPV vaccine a couple of weeks ago and since her symptoms have seemed worse. No one can tell us if its linked or not but I really strongly think so!
Avatar n tn ll see that it is that condition and his age that indicated so called narcolepsy. A pill is contraindicated as the disorder in older people is not understood nor treatable. Finding an answer to the sleep walking will cure the 'symptoms' of narcolepsy.
Avatar f tn I was diagnosed with narcolepsy at age 25, took adderall ufor 5 yrs. then stopped for 1 yr to become pregnant. I took pro vigil for appr. 6,so. W/0 any help, des. Increased med and it sent me into violent emotions. I have had a recent MRI because of headaches. I need hello. I don't want the diagnosis of narcolepsy but I can't live like this.
2144251 tn?1357326118 m Mandy i am 17 will be 18 in july and I suffer from the same thing but since age 4 it was scary but I finally got diagnosed last year with narcolepsy with cataplexy it was a releaf to finally find out what plagued me for so long I know where you are coming from. I was put on Ritalin for it but stopped taking it since I didn't like the side effects, so now I'm just living day after day with it and many of my friends at school support me others just make fun of me but I don't care.
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
Avatar m tn After LOTS of tests I started doing my own research on sleep disorders because I was very tired during the day, but was also not sleeping well when I was asleep. I was finally diagnosed with Narcolepsy with cataplexy but my cataplexy symptoms have called down alot over the years.
Avatar m tn Do your symptoms match with peripheral neuropathy? I have narcolepsy, too, and I actually get some random numbness (not weakness) and tingling at times, but I have a host of other neurological symptoms that can be linked to a pineal cyst and two venous malformations. Narcolepsy is believed to be an autoimmune disease, although this hasn't been confirmed.
Avatar n tn See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (especially the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. Common misdiagnoses are depression, epilepsy, and migraines.
1320739 tn?1274401573 HE NEEDS TO GO TO A SLEEP LAB AND BE TESTED FOR NARCOLEPSY. I HAVE A SERIOUS CASE OF NARCOLEPSY AND HAVE HAD THE SAME SYMPTOMS SINCE ABOUT THE AGE OF 16. I AM NOW 53. WHEN I WAS YOUNGER, DR.'S WOULD TELL ME TO GET MORE SLEEP! THERE WERE NO SLEEP LABS AND SPECIALISTS IN SLEEP DISORDERS. I WAS 34 YRS. OLD WHEN I WAS NEARLY KILLED BY A TRAIN BECAUSE I FELL ASLEEP AT THE WHEEL WHILE DRIVING WITH MY 2 YR. OLD SON IN THE CAR.
Avatar n tn memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, visual hallucinations, and twitchy feelings and weakness and paralysis in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
4592241 tn?1359813138 I know this is an old post but am hoping that you get this message. I was just diagnosed with Narcolepsy also and I am a recovering Meth addict. My doc knows my history and I am struggling to get the appropriate help here.
Avatar m tn Hi all, Every few months, I get a frightening eposide as a fall asleep, whereby I have a feeling of paralysis with a sense of blood rushing through the head and rapid heart beating. It might only last a few seconds but it is scaring the hell out of me. Mind you, I have had this for the past 15 years, and I can almost sense when I am due to get another episode. When it occurs, it feels like it might be a release of a buo\ild up of adrenaline.
Avatar f tn t been doing so well, having a hard time dealing with things... but, I was just wondering, if narcolepsy is a common thing with Chiari 1, or if any of you happen to have it? I have tried to do some googling on it but, I haven't found too much on it.. most everything I found is on apnea.
2164295 tn?1337019528 Hello, I am looking for alternative treatments, natural remedies, and various exercise suggestions to help me increase wakefulness. I was diagnosed with Narcolepsy in November 2010, but I had been experiencing symptoms since I was around 10 to 11 years old. I am currently taking Vyvanse 70mg in the morning, 10mg of Adderall (short acting) in the evening, and trying to implement a daily nap schedule. Over the last year the cataplexy I experience has increased and my muscle tone has decreased.
Avatar f tn I was diagnosed with severe narcolepsy last year and this year with temperol lobe seizures. I am on provigil 400 mgs a day and Ritalin as needed. I am trying to take lamictal just 25 to start increase to 200, but having some problems, may switch me to Keppra I have digestive upsets after some seizures, but recently I blanked out and when I came to, I had written odd things all over the papers I was grading. I then, no way to make this sound pretty, had a bowel movement in my pants.
Avatar f tn i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist. Also i have been diagnosed with a small pituitary gland tumor witch may be contributing to my symptoms my doctor says unlikely.
Avatar m tn memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar n tn See a sleep center. Recurrent "Bells Palsy" is actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. It doesn't look the way you think it looks. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
Avatar f tn Under recommendations it states that 1. I don't have sleep apnea (I knew that), and the 2. Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly.
Avatar f tn If you are normal weight and exercise with no other systemic symptoms, a low thyroid is unlikely. I major experience is this issue as well. Either make an appointment with a highly recommended Sleep Specialist (usually are neurologists or internists who enter this specialty) in your area or have your PC refer you to one. Please...do not put this off. I lost years of quality of life because of the delay in the diagnosis.
Avatar n tn I was diagnosed with CFIDS in 1994. Narcolepsy in 2005. I get basically no stage 4 or Rem sleep at night. Its no wonder why our mind and muscles can't heal themselves. I can go into almost instant dreaming during day (MSLT naps). I haven't been able to get anyone to help me figure out how to correct my sleep cycle. If you get any ideas, let me know. (I am on meds to help sleep and keep me awake at the right times, but it hasn't helped the sleep cycles.
Avatar f tn I think I read somewhere that people with Narcolepsy should try to keep the levels above 350. But i am not sure.