Hi, my 19 yr old has a blocked vein, and now, after many tests, including a tilt table tests, and MSLT, shows she does not have narcolepsy.
However, until this onset, the Dr was certain, as am I after much research, that she is having cataplectic attacks. However, due to the fact, there are only 4 diagnosed cases in the world, he is changing his mind, and treating her something totally different.
I am looking for someone who has been diagnosed with cataplexy without narcolepsy.