narcolepsy treatment program

I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!

t have sleep apnea but it was narcolepsy. He never told me what I needed to do about it. Do you also know if people with this disorder have periods of sleep walking. I have walked in my sleep from time to time since I was a child but it seems to have suddenly multiplied in the last few years. I am now 56 and have had some very life changing events in my life during these last 3-4 years. I am wondering if these traumatic events could have caused the sleep walking to increase. I stay exhausted.

I hate not knowing and trying to find ways to make it through the day. Also you might want to look at narcolepsy. I thought I might have Narcolepsy, since I have the hullicinations sometimes. When the doctor told me I had hypersomnia I asked if he was sure it was not narcolepsy. He told me one of the differences is naps help people with narcolepsy, but not those with hypersomnia. And napping never made sense to me, because it did nothing to relieve the tiredness.

Hello, Lifestyle treatment of narcolepsy includes taking three or more scheduled naps throughout the day. Patients should also avoid heavy meals and alcohol, which can interfere with sleep. Drugs which have been used for narcolepsy are Modafinil (Provigil) or Armodafinil. You should try the lifestyle measures first before going in for medicines.

You may get lot more information regarding the cause, symptoms, necessary investigations and treatment of narcolepsy as you go through this link: http://en.wikipedia.org/wiki/Narcolepsy Are you suffering from narcolepsy? Take care and share your thoughts.

I have narcolepsy with cataplexy. Cataplexy is rare in the absence of narcolepsy, but I believe it is possible. You may want to get a referral to a sleep neurologist to rule out narcolepsy w/ cataplexy, even if you're not sure you have symptoms of it, especially if these attacks are bothersome to you. The other thing you could be experiencing is presyncope, which can be accompanied by a loss of muscle tone as well as the sensation of almost passing out.

Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels. Is there any other answer for sleeping so much. Or am I just in denial.

I was diagnosed with narcolepsy at age 25, took adderall ufor 5 yrs. then stopped for 1 yr to become pregnant. I took pro vigil for appr. 6,so. W/0 any help, des. Increased med and it sent me into violent emotions. I have had a recent MRI because of headaches. I need hello. I don't want the diagnosis of narcolepsy but I can't live like this.

Regarding genetic testing for narcolepsy, positive test results indicate a susceptibility to narcolepsy but do not definatively diagnose narcolepsy. Positive genetic tests results are used to support a clinical diagnosis of narcolepsy. We recommend that you speak with your doctor regarding your symptoms and test results as well as to discuss the most appropriate course of treatment for your specific situation. We wish you the best.

My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.

I have had narcolepsy (and sleep apnea) for a long time. I had had three bariatric surgeries over the past 14 years, and my drs have wondered if some of my meds are not being absorbed properly or at the right rate, yet no one has done any kind of 'test' to determine that. I have tried everything possible for my narcolepsy---the ritalin patches, elixir ritalin.......etc, provigil, other meds....and of course xyrem. I take dextroamphetamine daily, even though it does litte...

t know if this same answer will fit, but I wanted to share in case this information could possibly help someone else who is experiencing this paralysis. Apparently, I have narcolepsy (with cataplexy); by taking a very detailed history all the way back into my early childhood, they were able to determine that I had the narcolepsy BEFORE I had POTS, but the cataplexy only showed up when I started having syncope.

Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".

I was wondering if your going into a treatment center, how do you know if you need residental care verse a day program?

and wants to put me on a narcolepsy medication. I am terrified that I will become addicted to these meds. This will compromise my sobriety, and feel like Im screwed. Is this cheating or what??? Also wondering if my history of drug use and meth use for 10 yrs in my 20's had caused this to happen. I did not tell the doctor about my addiction history because I was afraid he would think I was just being a poser. I need help to fix this sleepiness problem but dont want to jeporadize my sobriety.

Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!

This is the symptom of a sleep disorder called Narcolepsy. This sleep disorder is characterized by excessive day time sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnogogic hallucinations and automatic behavior. You will need to consult your primary care physician, who may schedule you for a polysomnogram (sleep test) to rule out sleep disorders and initiate appropriate therapy. Hope this helped and do keep us posted.

Sleep paralysis is a very common feature of narcolepsy. How old are you? I was convinced I had narcolepsy when I went but I ended up having periodic limb movement disorder. It's where you kick your legs and move your arms all night long. Every time I would get into REM, I would kick my legs or move my arms and it would jerk me out of it. That's what caused me to remember my dreams vividly. I would wake up mid REM cycle.

Doctors did different things,meds, tiny shock treatment, and it went away, for about 2 yrs. It came back again 2 yrs later. Beacuse I moved, diff doctor did same thing. This went on for 2 more times. Finally, figured out it was a virus on nerve, just falling asleep, and reawakening. Had the craniotomy done, so that even tho virus there, nerve not getting pinched and causing paralasis. Does the virus go away? or is it still there?

be consistent with MS, but the doctors made the decision that we would follow that up in six months with another MRI. They are now suggesting that his problem is narcolepsy and cataplexy. We have been told to follow-up with a neurologist and have another, more specific sleep study. It takes weeks to get these appts, so now we wait. Do you know of anything that can be done to help a child with TS and possible Narcolepsy?

s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.

I think that from your mentality right now, you are in a good place to get treatment. As far as relapse goes, while you are in treatment it is so so important while you are there to discuss relapse prevention, and most programs that have any idea what they're doing should have this as a part of their program I would think because it is so crucial.

t increase my meds because he does not believe my symptoms are thyroid. I also have Narcolepsy so symptoms of fatigue and brain fog do flow in a gray area for thyroid treatment. My latest labs are as follows: TSH - 2.15 range for this lab is .47 - 5.0 FT4- 0.58 range 0.64 - 1.

Here's some info I came across but if I were you I would look into finding a clinical trial to get into. They are much better than txing under most doctors because they take better care of their patients and they know alot more too. JMHO, good luck http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Making%20sense_10.pdf • Roche:1-877-734-2797 - The manufacturers of Pegasys plus Copegus have the Pegassist Patient Assistance Foundation.

Narcolepsy treatment program

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