Narcolepsy studies
Common Questions and Answers about Narcolepsy studies
narcolepsy
I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels.
Is there any other answer for sleeping so much. Or am I just in denial.
A couple weeks ago i went to a big city to see a neurologist who told me I have cataplectic episodes and that I have narcolepsy. I have not had sleep studies or anything more.
Could this REALLY be narcolepsy/cataplexy? Is it NECESSARY to get more diagnostic work?
I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since,
nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy,
and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't
believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch
my doctor, but in the meanwhile, I have been more tired lately than usual.
i sent you a message I am just getting the hang of this and I have narcolepsy would definitely like to chat
At least, if you do not have narcolepsy, you can rule this out and go on from there. I have narcolepsy without cataplexy. I really do not have very many symptoms except for the excessive daytime sleepiness and occasional mild night-time hallucinations (mostly audible).
Hope this helps! Good luck.
This is the symptom of a sleep disorder called Narcolepsy. This sleep disorder is characterized by excessive day time sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnogogic hallucinations and automatic behavior. You will need to consult your primary care physician, who may schedule you for a polysomnogram (sleep test) to rule out sleep disorders and initiate appropriate therapy.
Hope this helped and do keep us posted.
When I was in highschool I was diagnosed with PCOS and Narcolepsy. I recently found my sleep studies and found that the doctor said my sleeping was characteristic of Narcolepsy but he didn't think I had it. I wonder now[ if it is the PCOS as noticed a big difference in energy levels after I stopped taking birth control. Is anyone else out there suffering from debilitating lack of energy. I find I can hardly get up in the morning let alone take care of my house, husband and child.
But, you can get some really good information on the intranet about narcolepsy, cataplexy, and sleep studies. Just make sure the website is reputable.
I just want to commend you as a parent for looking further into this. My mother always just thought I was lazy. Your son is a very lucky guy to have such a cool, concerned mom!
Hope this helps a little! Good luck.
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A few months ago I had a polysomnogram and multiple sleep latency test to test for narcolepsy. I used to think the maybe I had ADD (I am still curious about this), but I'm now starting to think that my attention problems are due to sleeping issues. The specialist I went to said that my results showed that I didn't have narcolepsy and her only suggestion was to try to get on a more regimented sleep schedule.
Hate to tell you this but I think you need to have a more complex, expensive sleep test, believe it's called a polysonography. I too was tested and treated for sleep apnea, but nothing improved. Finally my psychiatrist suggested getting tested for narcolepsy and she talked to my sleep doctor about it. It's basically like the first test you had but they continue into the next day and do "nap studies" to see what your brain does and how quickly you fall asleep.
I am 46 yrs old I have been Dx with EDD/narcolepsy and following recent sleep studies with central sleep apnoea. I have been on modofanil for 12 yrs . I am now on maximum dose of this and while it makes life semi bearable I have days where I am so tired it is difficult to describe.
I have no idea wht to do next , whether to go back to sleep clinic or go see the neurologist or just soldier on . Seems to be the end result of most interventions anyways.
One Patient Case Study
The patient unable to do moderate work for this age of 28 Years. Easy mental & physical exhaustion for medium range of works and studies for some time. Drowsiness followed by sleep onset during morning between 8am – 5pm when tried to study. When Somebody alerted getting back to normal and sometimes not. But this is not narcolepsy as he having NO SLEEP when no study at morning or physical work.
I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
What you suffer from is probably narcolepsy, which is a neurological disorder. This is thought to be caused by low protein called hypocretin, which is made in the brain. The symptoms are an urge to sleep especially after meals. Sleep studies and EEG are done to rule out other causes of poor sleep and insomnia. Eating light and frequent meals during the day helps. Also assigning a nap time during the day often helps. You can take a light meal before this.
i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
I am photosensitive, although high-pitched sounds can also cause seizures. I also have narcolepsy. I take tegretol and provigil. I took dexedrine for over 20 years. Two years ago I was told I have a 'progresive degenerative brain disorder'. My brain was atrophying. I was almost always confused. Did things like turn on the water in the kitchen and go shopping for 5 hours. Stuff like that.
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