Narcolepsy research mayo
Common Questions and Answers about Narcolepsy research mayo
narcolepsy
9 months ago I started experiencing pressure in/around my left eye. I went to an Opthamologist, result: swollen left optic nerve. I was referred to a Neuro-Opthamologist. By that time I had constant pressure on the left side of my head, my Narcolepsy got much worse (18 hours/day) & my vision changed in only my left eye. I have CONSTANT floaters, blurry vision, pain in/around eye & socket (worst part is along upper part of socket).
Mayo Clinic doesn't list arm weakness as a symptom of Bell's palsy. Can you tell me your source of that information?
Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include-
Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.
Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!
This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.
I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since,
nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy,
and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't
believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch
my doctor, but in the meanwhile, I have been more tired lately than usual.
Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.
Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder.
Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!)
Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.
there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.
s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
I've never really heard much about mycoplasma infections. (And I'm a nurse.)
I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!
Narcolepsy! i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist.
ON the other HAND
damn autocorrect!
She needs a true chiari specialist to help guide her,....we do have a list of the members Drs for her to use to research to find the Dr just right for her.
Also she needs to educate herself as to what the Drs should be doing for her so she knows a good Dr when she meets them...there r related conditions to chiari and they will need to be ruled out.
The bells palsy may be something related to her chiari I have heard of someone else that did have it with chiari as well.
I was diagnosed with Bells Palsy in 2000, and given the same prescription, but with a lot of research and asked the doctor if it could be trigenimal neuralgia. Turns out I did. However, in 2010, I had what seemed like a stroke, but found out this Monday was MS. I had a second seizure and lost sight in my left eye. No bueno. Don't ever settle for what they tell you. You need to always search and ask questions.
Mayo has some stringent criteria for MS that are more strict than the McDonald criteria. They believe too many people are being diagnosed with MS. I'm not sure what they think these people have, if it isn't MS. You'd think that they would be on the forefront of MS research, but really they're a little behind the curve.
Recommended
