narcolepsy research history

A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.

and wants to put me on a narcolepsy medication. I am terrified that I will become addicted to these meds. This will compromise my sobriety, and feel like Im screwed. Is this cheating or what??? Also wondering if my history of drug use and meth use for 10 yrs in my 20's had caused this to happen. I did not tell the doctor about my addiction history because I was afraid he would think I was just being a poser. I need help to fix this sleepiness problem but dont want to jeporadize my sobriety.

You might want to inquire about having a full sleep study to rule out sleep apnea and/or narcolepsy. The sleep paralysis, hallucinations, and daytime sleepiness are hallmarks of narcolepsy. Narcolepsy isn't just suddenly collapsing in a state of sleep. I tell you this not as a medical professional, but as a person with narcolepsy. Best wishes.

Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".

I was prescribed prednisone for Bells Palsy. I have developed symptoms that include shortness of breath, and a feeling in my lungs like I inhaled chlorine. I am in otherwise good shape. My heart is strong and i have no cardiopulmonary history. I also feel very weak and I can't do any real physical activity, including going up a flight of stairs without becoming winded and my pulse racing (120+bpm).

Look up symptoms of Narcolepsy. Sounds wierd, but it is very hard to diagnose, and that is one of the major symptoms of it. It usually (but not always!) shows up between ages 10-25. Symptoms include- Cataplexy (loss of muscle control): People with narcolepsy often have a sudden loss of muscle control while awake, usually triggered by strong emotions, such as laughing.

Well testthe kind of sleep you are in while you sleep can test for Narcopelsy how long has this been a problem? I have been diagnosed my self with narcolepsy. Can fall asleep any where anytime!

Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels. Is there any other answer for sleeping so much. Or am I just in denial.

Recently the whooping cough vaccine has been shown to be the cause of an outbreak of Narcolepsy in children , do some research there was a report done on findings recently ..

Have you heard of many cases of children getting optic neuritis and bells palsy at such a young age? Am I at a higher risk for MS or any other nerve condition because of my history of having these conditions when i was younger?

This is known as narcolepsy, there are treatments for it, so perhaps you can do some research on that topic and see if it matches up with you, and also the info sites will tell you the kind of doctor who is best equipped to help you with this. Sorry I don't know much more than that.

I was diagnosed with narcolepsy approx. 5 yrs. ago. I haven't gone for another sleep study since, nor has my doctor seem to ever remember that I have narcolepsy. I am his only patient with narcolepsy, and if I ever end up in his office, it seems like he always forgets that I have narcolepsy. I don't believe he has a good understanding of this. Any suggestions. I am in the process of trying to switch my doctor, but in the meanwhile, I have been more tired lately than usual.

So I always thought that narcolepsy was actually falling asleep during the day randomly (Which it is). Evidently it can also just be extreme daytime sleepiness. I'm asking you guys on here before I ask my primary care physician so I don't look like a fool but here is what I'm exhibiting and have been exhibiting for about 7 years.

If diagnosed with narcolepsy, and regulated and controlled with Meds can I still do whatever job? I want to be an under water welder, and I'm worried that once I get the diagnosis I won't be able to do the job I really want to do.

Unfortunately the only way you can change you facial muscles in excercise, that took me years to figure out!! There seems to be little research into bells palsy as no one seems to know the cause. Did you have an epidural? If yes I think you may not have 'bells palsy' but damage to the nerves caused by medical negligence. I have researched this for 11 years and although only a lay man with no medical training I believe you need to demand some answers.

be consistent with MS, but the doctors made the decision that we would follow that up in six months with another MRI. They are now suggesting that his problem is narcolepsy and cataplexy. We have been told to follow-up with a neurologist and have another, more specific sleep study. It takes weeks to get these appts, so now we wait. Do you know of anything that can be done to help a child with TS and possible Narcolepsy?

t know if this same answer will fit, but I wanted to share in case this information could possibly help someone else who is experiencing this paralysis. Apparently, I have narcolepsy (with cataplexy); by taking a very detailed history all the way back into my early childhood, they were able to determine that I had the narcolepsy BEFORE I had POTS, but the cataplexy only showed up when I started having syncope.

there is a woman that has visual lasting effects and has spoken publicly....here is a link to some of her info I am sure with more research u can find more info regarding her and the condition. http://en.wikipedia.

Hi, welcome to the forum. Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. In this condition there will be “automatic behavior" such as driving past a highway exit or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy (emotionally triggered muscle paralysis resulting in partial or complete collapse).

s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.

New research reported by Reuters reveals that whooping cough outbreaks are HIGHER among vaccinated children compared with unvaccinated children. This is based on a study led by Dr. David Witt, an infectious disease specialist at the Kaiser Permanente Medical Center in San Rafael, California. As Reuters reports: (http://www.reuters.com/article/2012/04/03/us-whoopingcough-idUSBRE832...

I've never really heard much about mycoplasma infections. (And I'm a nurse.) I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!

Hi, welcome to the forum. Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. In this condition there will be “automatic behavior" such as driving past a highway exit or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy (emotionally triggered muscle paralysis resulting in partial or complete collapse).

I know personally how hard it can be to have a sleep disorder. I have narcolepsy. I feel that my family and friends have a little difficulty understanding exactly what's going on with me. So, I thought perhaps opening my own group where I can feel comfortable and discuss day to day life with others that have sleep disorders would not only help me out, but possibly others that are effected everyday like me. I am eager to hear from all of you soon!

Narcolepsy! i am a 28 year old male who literally just started having the exact symptoms you described about 8 months ago. After several test and doctors visits i was diagnosed with sever narcolepsy, with catalepsy. Its common for the symptoms to come on suddenly between the ages of 15-30. I encourage you to research narcolepsy and if it has the ring of truth go see a neurologist.

Hi everyone I was diagnosed in 2010 with Narcolepsy & Cataplexy. One thing that I've been wondering, does anyone here get a severe headache after a cataplexic episode/sleep attack? I was in the hospital for a week in october because I kept "passing out" although that's not what I called it. I would feel strange, fall over, and be completely limp for 30ish seconds. Then I would get up and sometimes have trouble walking and a few hours later I would get a MASSIVE headache.

Narcolepsy research history

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