narcolepsy questions and answers

The sleep specialist said that narcolepsy and dysautonomia are mediated in some of the same parts of the brain, and for reasons that aren't yet completely understood, people who have one tend to have higher rates of the other than healthy people. He said that this will make treatment of both disorders more complicated, obviously. But I am just so excited to have an answer finally!

Dr Park, Is there a problem with the forum here? It has been given a message that the limit for questions has been met and won't allow any new questions to be posted. Just wondering ........ I know you're still on good terms with MedHelp since you are doing the chat in May. BTW - my sleep study is tomorrow night.

It would be great if you could click the green "post a question" button at the top of the page, and put all of your questions about narcolepsy there. I have narcolepsy myself, and would be happy to answer your questions. Thank you so much for your input here.

I was the same way several years ago. I honestly thought by the time they diagnosed me I would be close to death. Getting up was an effort, suffering so many symptoms you have described. Blood work was normal. Finally one doctor mentioned MS and referred me to another, who mentioned fibromyalgia and then referred me to a neurologist who ordered a sleep study.

There is a Dr Park on Medhelp and he is always posting about sleep apnea, he might be able to answer some of ur questions......http://www.medhelp.org/posts/Sleep-Apnea---Disorders/FYI-sleep-apnea-remedy/show/712653 http://www.medhelp.org/doctor_profiles/show/645869 I hope u get some answers...and please share with us what u find out!

I too take Lithium and I have Hypothyroidism. It took a while for my dr to try different dosaging in order for all of my Thyroid levels to be in range. My levels are always checked every 3-4 months. I am on Armour Thyroid, 30mg Mon and Wed and 60mg the other days.

t answer your questions. I only know that when Jules got the diagnosis of Narcolepsy/Cataplexy I looked up whether they were associated with MS and saw that there were several reports of people with MS having the two. But, now I have seen the new study that shows that narcolepsy is an autoimmune disorder, so I do not know how to answer your question.

Narcolepsy can only be diagnosed with a multiple sleep latency test that is done during the day. Dr.

memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.

i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.

My MSLTs say I have Idiopathic Hypersomnia. The genetic panel says positive for HLA-DR2, DR7 and HLA DQ1, and DQ2. It also says that hypersomnolence does not have a genetic association. During my MSLT, my sleep latency naps were 2, 1.1, 3.1, and 3.1. During the 2nd nap, (<1) I didn't think I feel asleep because I was thinking about falling asleep, The test said no REM in any naps. Do I have narcolepsy or hypersomnia?

Hi, narcolepsy and sleepwalking are different sleep disorders. Narcolepsy is characterized by excessive daytime sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnagogic hallucinations and automatic behavior. It can however be regulated with medications. So, ensure to take them regularly and follow up with your doctor. Regards.

Im 30 years old and been taking oxycodone 30mg since sept 07 after a motorcycle accsident and am trying to stop taking them I take between 18 and 24 a day and have nodesire to take these any more have buprenorphine 8 mg that i got from a friend and just looking for the best way 2 take them with being the least uncomfortable. i tried today by not taking any when i got up but by 12:30 I had no choice.

m not sure what medication they had your son on for ADD but I do know they prescribe ritalin and adderall for Narcolepsy as well and the side effects of those medications can make TS, OCD and general tics worse. It is also possible that your son did not have add but Narcolepsy manifested itself as add symptoms. I highly recommend a neuro that specializes in sleep disorders they understand the ins and outs of how sleep disorders affect the brain and the central nervous system.

I have had MS since 1995. I have gone through many bouts of paralysis, blindness, hear loss, memory loss, confusion and now I have narcolepsy. Everyone thought I was crazy and didn't think it was serious.....although I had 11 incidences of falling asleep while driving. I work for Disability Rehabilitation Services and they hire alot of people with disabilities. If they see me and I am having facial paralysis (Bells Palsy) or dragging my left I have had MS since 1995.

ve been recovering from, and you went through hell and back to get off of? What are the chances of addiction to narcolepsy medication? These are questions he should answer for you. Don't be afraid Deana, you're clean now! Your Doctor will view you as protecting your sobriety. As far as cheating? Not sure you go to NA. If you do, the basic text has info about that subject on pages 102 and 103. It deals with pain meds pretty much.

Does he have narcolepsy with cataplexy? Or is it without cataplexy? Xyrem is a drug approved for treating narcolepsy with cataplexy, and it's taken at night in two separate doses. It combats one of the most important symptom of narcolepsy, aside from cataplexy: fragmented night-time sleep. Just to give a bit more background in case I'm catching you off-base.....

Think about adding medications, treatments and other issues relating to narcolepsy and hypersomnias to your sleep tracker. Insomnia and sleep apnea may be common sleep disorders, but not the only ones.

s a drug approved by the FDA for the treatment of excessive daytime sleepiness associated with narcolepsy and obstructive sleep apnea, and it has been widely acclaimed for having few side effects. In fact, I believe they're looking into Provigil as potentially offering cognitive enhancement to patients on the drug.

I am looking for answers as to why I have severe altered taste and tingling of the face. I have no other symptoms of Palsy at the moment. I wonder if anyone has experienced altered taste as a precursor to Bells Palsy. Apparently the cranial nerve controls more than half of the taste receptors on the tongue and in the mouth so I wonder if I have some sort of nerve damage. I mostly have a strange sour minty/menthol taste which is all pervading and affects everything I eat and drink.

When I was in highschool I was diagnosed with PCOS and Narcolepsy. I recently found my sleep studies and found that the doctor said my sleeping was characteristic of Narcolepsy but he didn't think I had it. I wonder now[ if it is the PCOS as noticed a big difference in energy levels after I stopped taking birth control. Is anyone else out there suffering from debilitating lack of energy. I find I can hardly get up in the morning let alone take care of my house, husband and child.

memory problems, insomnia symptoms, chronic pain, taste hallucinations, smell hallucinations, and twitchy feelings and weakness and paralysis in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. Common misdiagnoses are depression, epilepsy, and migraines.

Valerie, you mentioned reaching REM 10 minutes into a nap - in how many of the naps did sleep and in how many did you reach REM? Doctors usually don't diagnose narcolepsy casually, so that's why I'm wondering about the rest of the study, since reaching REM in one nap alone doesn't meet diagnostic criteria. Nothing else showed up on your sleep study, like apnea or limb movements? I'm assuming you have been checked for anemia, diabetes, and hypothyroid.

These symptoms are different from my sleep attacks in which I am overcome with the urge to sleep because of Narcolepsy. My thinking and problem solving becomes non-existent. I am an LPN by profession and I really need some guidance as to other avenues to investigate to get some answers. My neurologist says "I am concerned, but there nothing on the MRI to give me a diagnosis." Please help if you can.

memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.

Narcolepsy questions and answers

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