Narcolepsy network conference 2010

Common Questions and Answers about Narcolepsy network conference 2010

narcolepsy

589816 tn?1332976771 Does he have narcolepsy with cataplexy? Or is it without cataplexy? Xyrem is a drug approved for treating narcolepsy with cataplexy, and it's taken at night in two separate doses. It combats one of the most important symptom of narcolepsy, aside from cataplexy: fragmented night-time sleep. Just to give a bit more background in case I'm catching you off-base.....
535822 tn?1443976780 Compiled data has revealed that between 2002 and 2009, the narcolepsy rate among children under age 17 was 0.31 per 100,000. But in 2010, that number jumped to 5.3 per 100,000, which represents a 17-fold increase. Similarly, research compiled by Markku Partinen of the Helsinki Sleep Clinic and Hanna Nohynek of the National Institute for Health and Welfare in Finland, both of which were also involved in the new research, has determined a link between Pandemrix and narcolepsy.
572651 tn?1530999357 A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.
Avatar m tn IN DEC 2010 I WAS DIAGNOSED WITH BELLS PALSY....WENT AWAY IN 1 MONTH. SINCE THEN I HAVE BEEN OK...LATELY THO I FEEL LIKE MY NECK HAS BEEN HAVING SERIOUS MUSCLE SPASM....I WENT TO THE DOCTOR TODAY AND TOLD HIM MY SITUATION...HOW IM SCARED THAT THE BELLS PALSY MIGHT COME BACK....HE GAVE ME A PRESCRIPTION TO ACYCLOVIR....I LOOKED IT UP AND IT SAYS ITS FOR HERPES... NOW I DONT KNOW IF I SHOULD TAKE IT OR NOT....
Avatar m tn I had this done in 2010 due to poor sleep and extreme sleepiness during the day. Always, always tired, but cannot nap- to keep it short. After this, I was given ambien cr at night and nuvigil during the day. I am wanting to better understand my results. Sleep efficiency after onset: 93.6% Waking after sleep onset: .5 min Sleep onset latency: 11 min First REM latency: 77.5 min #of REM Periods: 5 Stage 1: 24.5 min / 5.4% TST Stage 2: 252 min / 55.
Avatar m tn These data were presented at a poster session at the 12th International Energy Psychology Conference, San Diego, June 3-9, 2010. They have been submitted for publication and are in peer review. Church, D., Hawk, C, Brooks, A., Toukolehto, O., Wren, M., Dinter, I., Stein, P. (2010). Psychological Trauma in Veterans using EFT (Emotional Freedom Techniques): A Randomized Controlled Trial. These data were presented at the Society of Behavioral Medicine, Seattle, Washington, April 7-10, 2010.
Avatar m tn Is there any way to do conference calls on skype? I've never tried to connect with more than one person at a time.
2164295 tn?1337019528 Hello, I am looking for alternative treatments, natural remedies, and various exercise suggestions to help me increase wakefulness. I was diagnosed with Narcolepsy in November 2010, but I had been experiencing symptoms since I was around 10 to 11 years old. I am currently taking Vyvanse 70mg in the morning, 10mg of Adderall (short acting) in the evening, and trying to implement a daily nap schedule. Over the last year the cataplexy I experience has increased and my muscle tone has decreased.
668092 tn?1225464120 I wanna be able to talk with others that have this condition because I feel like no one understands what im going through. I also have a condition called Cataplexy which is very rare and I have narcolepsy. If you wanna learn more about what I have I made a site that explains everything I have and what it is, http://www.piczo.
Avatar n tn He was not sure I had crps though bone scan suggested it, He was talking about possible synvisc injections in 6 weeks, last resort is an epidural. You see I suffer from narcolepsy/cataplexy and pain triggers off muscle tone loss of total body so even upon inserting the injection I would go limp hear everything but cant move., part of the cataplexy.
Avatar f tn The Pull-Thru Network has a great list-serve for families of kids, and adults, who were born with either HD or imperforate anus - or have some other kind of dysfunction. There will be special programs at their St Louis national conference this summer. Check them out at www.pullthrunetwork.
2018891 tn?1329003897 Hi everyone I was diagnosed in 2010 with Narcolepsy & Cataplexy. One thing that I've been wondering, does anyone here get a severe headache after a cataplexic episode/sleep attack? I was in the hospital for a week in october because I kept "passing out" although that's not what I called it. I would feel strange, fall over, and be completely limp for 30ish seconds. Then I would get up and sometimes have trouble walking and a few hours later I would get a MASSIVE headache.
382218 tn?1341181487 http://www. huffingtonpost .com/2010/08/16/oprah-winfrey-network-sue_n_683079.
Avatar f tn past surgeries- appendectomy (2001), R hip scope/osteoplasty (2006), gallbladder removed/exploratory lap (2008-looking for infection following El Salvador), tonsillectomy, septoplasty, and sinuses surgically cleaned (Feb 2010). 1.4 cm Pineal Cyst found in 2008, has not shown significant growth and is not presenting as damaging or blocking anything on my MRIs.
87972 tn?1322661239 it was reported in the CROI conference last week in San Francisco…I thought it was very interesting.
Avatar n tn d give you a link. There is also info on the narcolepsy network site that you should be able to find if you google their name and cataplexy. Feel free to message me with questions on ruling that out (I have it). Heiferly.
Avatar n tn pilory bacteria you might run this test and check values in research conference 2010 in boston, they have reported some values, i posted the links in the community but that's not easy to find, if you send me a private message with your email i might send you all boston conference posters and then you search for that study
Avatar f tn Modafinil is a drug for narcolepsy prescribed for MS fatigue. I am interested in knowing if you have narcolepsy or MS fatigue. Recently I have been experiencing extreme fatigue for which my neuro prescribed amantadine. It is working. The next step would be modafinil but I was told that many of their patients use Ritalin or adderall. Both are addictive so they start with the ones with least side effects first. So far amantadine has been helping get me through my day without crashing.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?