Narcolepsy information
Common Questions and Answers about Narcolepsy information
narcolepsy
Have you consulted the sleep specialist to get the sleep study? Hope you have got lot of information on the narcolepsy. Thanks to mastkids for having shared his experience and valuable thoughts. Hope you too are able to get adequate sleep and following up with your doctor. Here are few aspects of the treatment and hope you follow few tips. Ref: http://www.emedicinehealth.com/narcolepsy/page4_em.htm
Share your thoughts and keep updating. Take care.
Narcolepsy is a bizarre sleeping disorder and the effects can be devastating not only for the person who has it but their family as well.
I was diagnosed with it in February of 2008 and am still working with my neurologist to find the right medication combo. I am fortunate that I have mild cataplexy where as I do not drop on the floor I get sort of a warning sign of weakness and if I sit right down right away I am fine after a minute or so.
Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels.
Is there any other answer for sleeping so much. Or am I just in denial.
I have narcolepsy with cataplexy. Cataplexy is rare in the absence of narcolepsy, but I believe it is possible. You may want to get a referral to a sleep neurologist to rule out narcolepsy w/ cataplexy, even if you're not sure you have symptoms of it, especially if these attacks are bothersome to you.
The other thing you could be experiencing is presyncope, which can be accompanied by a loss of muscle tone as well as the sensation of almost passing out.
Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder.
Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!)
Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Looking for information for a family member who has also been diagnosed with Bells Palsy 4 times in the past few years. She is always in pain and has awful headaches and has fainted. The doctors aren't very helpful.
I've never really heard much about mycoplasma infections. (And I'm a nurse.)
I just saw a rheumatologist a couple months ago who made the comment to me "all these things could go together." It was the first time I'd heard a doctor actually say that though that's been my thinking all along. It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia!
22 hours is far more than I oversleep but I lose several hours a day. I thought of narcolepsy and other problems and will ask a doctor next week. If he can help I will put it on the forum for you.
I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
I was recently told I have Narcolepsy with Cataplexy. I am a 74 year old Female and I am taking 20mg of Ritalin SR in the AM and 25mg of Imipram for the cataplexy in the PM. I get about 2 to 4 hrs sleep and the rest of the night I toss and turn. My Dr. told me she doesn't give meds for her patients to sleep.
I am concerned about not sleeping and then taking Ritalin to keep me awake during the day.I feel my health will be affected. Is this the normal way to treat my condition?
i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
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A few months ago I had a polysomnogram and multiple sleep latency test to test for narcolepsy. I used to think the maybe I had ADD (I am still curious about this), but I'm now starting to think that my attention problems are due to sleeping issues. The specialist I went to said that my results showed that I didn't have narcolepsy and her only suggestion was to try to get on a more regimented sleep schedule.
See a sleep center. It sounds like narcolepsy with cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate it, but it can happen seemingly in random fashion, too.
I went undiagnosed for about 15-20 years, until I finally saw a sleep specialist and she nailed the diagnosis right away. The vast majority of doctors have absolutely no idea what it is or what it looks like, and no routine lab tests, MRI, CT scan, x-ray or anything of that nature will detect it.
Given the information your presented I think the working diagnosis is the best available (at least until new symptoms appear).
Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study).
Dr.
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