narcolepsy in the news

Compiled data has revealed that between 2002 and 2009, the narcolepsy rate among children under age 17 was 0.31 per 100,000. But in 2010, that number jumped to 5.3 per 100,000, which represents a 17-fold increase. Similarly, research compiled by Markku Partinen of the Helsinki Sleep Clinic and Hanna Nohynek of the National Institute for Health and Welfare in Finland, both of which were also involved in the new research, has determined a link between Pandemrix and narcolepsy.

He is not able to tolerate the Narcolepsy medication. throat clossed, tongue swale, stomach blew up, stayed in toilet. Can some tell me what to claim and how to show the severity?

t altered by cutting the pill in half, so if the cost changes, it may be good to get the 200mg pills and cut them in half. It took me about two months to see a consistent improvement. Now I feel much better (on only a 50mg dose) - I don't know if it is the Provigil or if that region of my brain has healed - but I don't want to stop taking the Provigil because it took so long to feel normal! So hang in there. The good news is that it is working!

If you are on methamphetamines, and anesthesia, if the stimulant wears off you may be under too much sedative. In any event, it complicates the calculation of the correct doseage. Too much of certain sedatives will cause diminishing of surgical "landmarks", so the idea is to use as little as necessary.

Jazz Pharmaceuticals has completed a second Phase III pivotal clinical trial of JZP-6 and expects to announce top-line results from that study in mid-2009. Assuming positive results in the second study, the company anticipates submitting a New Drug Application for sodium oxybate for the treatment of fibromyalgia to the U.S. Food and Drug Administration by the end of 2009." http://investor.jazzpharma.com/phoenix.zhtml?

I would describe the pain as deep (feels like it is in the bone), sharp/stabbing (Severity a 7-9 on a scale of 10 - where 10 is excruciating pain) and short in duration (lasts 3-10 seconds). It occurs frequently throughout my day and randomly in different places on my body (i.e. ribs, shoulder, upper and lower arms, fingers, upper and lower legs and sometimes my head). I'm also always fatigued, sleepy and low energy, but I keep myself moving and motivated.

The New York Post today has said that there is a push for the 9/11 Trial to go to Govenor's Island , A lower Manhatton Community board called on fed officails yesterday to move the trail of the terrorists to Govenor's Island and passed a resolution demanding the shift, in a hearing with Downtown Residents who loathe the idea of the threats that would ensue and the lockdown it would involve, this makes sense to me , what say you ....

It would be great if you could click the green "post a question" button at the top of the page, and put all of your questions about narcolepsy there. I have narcolepsy myself, and would be happy to answer your questions. Thank you so much for your input here.

Basically you will have to use trial and error until you find the solution. It is up to you. Chronic fatigue is a cop-out by the doctor who could not find the root cause of your problems.

I was diagnosed with CFIDS in 1994. Narcolepsy in 2005. I get basically no stage 4 or Rem sleep at night. Its no wonder why our mind and muscles can't heal themselves. I can go into almost instant dreaming during day (MSLT naps). I haven't been able to get anyone to help me figure out how to correct my sleep cycle. If you get any ideas, let me know. (I am on meds to help sleep and keep me awake at the right times, but it hasn't helped the sleep cycles.

Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.

The essential features of sleepiness in narcolepsy is irresistible attacks of refreshing sleep that occur almost daily (at least 3x per week) over at least 3 months. Narcolepsy generally produces cataplexy, which most commonly presents as brief episodes (seconds to minutes) of sudden, bilateral loss of muscle tone precipitated by emotions, typically laughing and joking.

Central sleep apneas are caused due disorders or lesions in the brain. The peripheral system does not get the right impulses for respiration and hence the stoppage of respiration. As a result the person is aroused from sleep. Regards.

I WAS DIAGNOSED 35 YRS AGO . . . I'VE BEEN TAKING 40MG OF CITALOPRAM IN THE AM ... AND 1 MG OF CLONAZEPAM AT NIGHT TO HELP WITH SLEEP ALONG WITH 10MG OF MELATONIN.

Hello, Lifestyle treatment of narcolepsy includes taking three or more scheduled naps throughout the day. Patients should also avoid heavy meals and alcohol, which can interfere with sleep. Drugs which have been used for narcolepsy are Modafinil (Provigil) or Armodafinil. You should try the lifestyle measures first before going in for medicines.

Patients do not get abnormal amounts of night sleep rather they have problems waking up in the morning and staying awake during the day. The causes can be genetic, brain damage or medical disorders such as clinical depression, uremia and fibromyalgia. Sometimes hypersomnia may be due to other sleep disorders such as narcolepsy, sleep apnea, and restless leg syndrome. Your symptoms may be linked to depression. You should consult a psychologist for a complete medical and psychological workup.

Diagnosis is relatively easy when all the symptoms of narcolepsy are present.Two tests that are commonly used in diagnosing narcolepsy are the polysomnogram and the multiple sleep latency test which are usually performed by a sleep specialist. The drowsiness is normally treated using amphetamine-like stimulants.

I also started experiencing the buzzing vibrating sensations you describe at the same time as my other symptoms but have been unable to ascertain the cause and neither have my doctors. I can only think it is related to the narcolepsy, or the tumor. At least its a place to start.

I think I read somewhere that people with Narcolepsy should try to keep the levels above 350. But i am not sure.

FOR ABOUT A COUPLEA DAY I HAVE BEEN WAKING UP IN THE MIDDLE OF THE NIGHT ATLAST ABOUT 4 OR 5 TIMES, I FIND MYSELF ASLEEP BUT MY IS STILL REACING I REMEMBER EVERTHING,I CAN HEAR EVERTHING,AS IF IM UP.! MY IS STILL ASLEEP, BUT IM NOT ,I HAVE RESTLESS NIGHT,TRYIN TO SHUT MY MIND DOWN,! BUT IT JUST DOEST IM TOO YOUNG TO BE EXPERIENCEING THIS.!

Have you consulted the sleep specialist to get the sleep study? Hope you have got lot of information on the narcolepsy. Thanks to mastkids for having shared his experience and valuable thoughts. Hope you too are able to get adequate sleep and following up with your doctor. Here are few aspects of the treatment and hope you follow few tips. Ref: http://www.emedicinehealth.com/narcolepsy/page4_em.htm Share your thoughts and keep updating. Take care.

Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. But in your case it seems milder form of it. In this condition there will be “automatic behavior" such as driving past a highway exit or go into sleep or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy which is not seen in your case.

ll wait and get the narcolepsy under control. Then before I agree to neck surgery for the bulging disk at C6 the neurosurgeon and I would like a spinal tap to check for 0 bands. Tomorrow is my appt with the migraine neuro - this will be my last one with him.

I am now 39 weeks pregnant and after much hesitation, on Friday last week I decided to have the flu jab, since my GP and midwife etc. had reiterated the importance of this in pregnant women. I regret this with all my heart!! - By Saturday I started noticing a numbness on my tongue and a pain on the back of my ear by Sunday this got worse and by Monday I was unable to shut my eye and the right hand side of my face was paralysed. How scary this was....

Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.

I have undergone a sleep study, that's my only qualification to comment, that and a long life's experience... and old guy. I read you do not suffer from Obstructive Sleep Apnea.. look right and while I don't recall the % time in REM needed to be rested in the morning, you must have been given the number. In my case I was told I was marginally well rested relative to test results, but do suffer from mild sleep apnea.

Narcolepsy in the news

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