Narcolepsy in action

Common Questions and Answers about Narcolepsy in action

narcolepsy

149081 tn?1242397832 I did contact my primary but he said my labs were fine but what they dont understand is that because in Narcolepsy there is damage to the hypothalamus ( which is directly related to the pituitary) they cannot rely on my TSH alone. So I ask all the dear board members what do I do now? I'm sorry if this post is choppy or out of sorts I am exhausted because I just had yet another sleep study and my brain is NOT functioning properly today. I'm sure you all understand the brain fog!
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar f tn Flu shots and viruses have been known to cause what looks like Bells Palsy, but is actually a manifestation of cataplexy (random muscle weakness or paralysis which can be widespread or isolated) which happens in narcolepsy, which flu shots and viruses have been known to cause. Most recently, the H1N1 vaccine caused a swath of narcolepsy cases. 75% of people with narcolepsy never, ever get diagnosed in their lifetime.
Avatar f tn s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
Avatar f tn Both Flexeril and Zanaflex are muscle relaxants with Zanaflex having a shorter duration of action than Flexeril. At times a combination of a long acting relaxant is given with a short acting one for proper control of spasticity. Whether you need both or not can be decided only by your treating doctor based on your symptoms and response to drugs. Take care!
Avatar m tn I would describe the pain as deep (feels like it is in the bone), sharp/stabbing (Severity a 7-9 on a scale of 10 - where 10 is excruciating pain) and short in duration (lasts 3-10 seconds). It occurs frequently throughout my day and randomly in different places on my body (i.e. ribs, shoulder, upper and lower arms, fingers, upper and lower legs and sometimes my head). I'm also always fatigued, sleepy and low energy, but I keep myself moving and motivated.
612876 tn?1355514495 I would like to gauge which topics are of highest significance to this community. Please take a moment and indicate which of these topics you most would like information about. If you're interested in more than one, feel free to list the ones you didn't check off as a written reply to this poll.
Avatar f tn symptoms disappeared with some quality sleep over time. A diagnosis of narcolepsy can radically affect your life in regards to driving license rights and insurability. I wouldn't accept that label until there's nothing else to do to help your symptoms. Then after that, it is what it is.
Avatar n tn I was diagnosed with CFIDS in 1994. Narcolepsy in 2005. I get basically no stage 4 or Rem sleep at night. Its no wonder why our mind and muscles can't heal themselves. I can go into almost instant dreaming during day (MSLT naps). I haven't been able to get anyone to help me figure out how to correct my sleep cycle. If you get any ideas, let me know. (I am on meds to help sleep and keep me awake at the right times, but it hasn't helped the sleep cycles.
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
Avatar f tn 9 months ago I started experiencing pressure in/around my left eye. I went to an Opthamologist, result: swollen left optic nerve. I was referred to a Neuro-Opthamologist. By that time I had constant pressure on the left side of my head, my Narcolepsy got much worse (18 hours/day) & my vision changed in only my left eye. I have CONSTANT floaters, blurry vision, pain in/around eye & socket (worst part is along upper part of socket).
Avatar f tn Diagnosis is relatively easy when all the symptoms of narcolepsy are present.Two tests that are commonly used in diagnosing narcolepsy are the polysomnogram and the multiple sleep latency test which are usually performed by a sleep specialist. The drowsiness is normally treated using amphetamine-like stimulants.
Avatar f tn Take a look at this forum. You might have the same symptoms as many of these people and there are a couple suggestions. I found it interesting to know others had the same sensations and all around the same age. I was 17 or 18 when mine started. Still not sure what it is but have much better idea about possibilities I never even considered which is great since it's gotten much worse in short time.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar m tn Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. But in your case it seems milder form of it. In this condition there will be “automatic behavior" such as driving past a highway exit or go into sleep or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy which is not seen in your case.
Avatar n tn The precise mode of action for Modafinil is not yet known. Modafinil is a complex drug which appears to act on a large number of neurochemical pathways. It has only been approved for sleep/ wake disorders such as narcolepsy and although there is plenty of anecdotal evidence of use by students, it has never been studied for use in the general population.
Avatar m tn Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.
Avatar m tn memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar m tn First of all, I'm sorry the doctor who ordered your testing didn't go more in depth in explaining the results to you. The information I'm going to give you here is based strictly upon the diagnostic criteria for different conditions; doctors use a combination of test results and diagnostic guidelines AND clinical expertise to reach diagnosis and treatment decisions, so there is no guarantee that this information pertains to your case in particular.
Avatar n tn My medical records from that time have been destroyed so I have no way of knowing if this coincided with a vaccination. Narcolepsy typically occurs in the early teens. I have lived with it for 46 years. I too, am curious if this condition was induced by a vaccine. I wasn't diagnosed until I was 44 years old. Prior to that my condition was dismissed. I was regarded by the medical profession as a typical hystrionic, hypocondriac, attention seeking female. Now, there is medication available.
1745492 tn?1320198340 My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.
Avatar m tn and at the same time it should not be happening. i do have narcolepsy and the reason i add this is because i know this in itself has a lot of symptoms ie cataplexy sleep paralysis.