Narcolepsy headaches
Common Questions and Answers about Narcolepsy headaches
narcolepsy
What type of doctor is treating you for the headaches? Have you discussed with your doctor about narcolepsy and options available to you for treatment? There are other medications available besides the one you are taking? Have you had a sleep study done in the past to confirm your diagnosis?
When I was 10 it was thought that I might have narcolepsy. Although no doctor could ever diagnose this, I suffered for many years and eventually outgrew it. I am now 37 and realize my sleep issues are still affecting my life and are rapidly getting worse. I am not depressed. I do have stress and anxiety in my life, although most of us do. But no matter how much or how little sleep I get, I am never rested. I can take a hour nap at work around lunchtime and by 3pm be falling asleep again.
Frequent awakenings are a hallmark of several disorders, including sleep apnea and narcolepsy. If you find yourself waking up with headaches, having cold sweats or feeling out of breath, apnea is a real possibility. Try sleeping on your side and if you have a stuffy nose, get some afrin to use only at night.
I have narcolepsy and had pretty much identical symptoms to yours. It's not like on TV. Best wishes. If you have further questions feel free to ask!
Looking for information for a family member who has also been diagnosed with Bells Palsy 4 times in the past few years. She is always in pain and has awful headaches and has fainted. The doctors aren't very helpful.
Could I have narcolepsy? I am struggling day after day to function. I also have a history of terrible headaches, but not migraines. Can anyone help?
I have been to several Neurologists (also Headache Clinics), Opthamologists, ENTs, regular drs, and no one seems to be able to figure this out. Currently the diagnosis is migraine/ cluster headaches with weird symptoms! Migraine medicine does not work (nor does Cluster headache therepy i.e. oxygen). I have been told that the following have been ruled out: Bells Palsy, Myasthenia Gravis, Aneurysm, Strabismus.
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I have also had enormous trouble with sleep-which has just been diagnosed as Narcolepsy with Cataplexy, which could explain some of the fainting spells.
I have had 5 lumbar punctures, which have indicated elevated incracranial pressure (ranging from 19-24 opening pressure), but the CSF fluid all came back clean-0 cell count in the fluid). The headache was temporarily relieved following the spinal taps, but only for about 24 hrs.
Sometime in 2006 (around the age of 12-13) I started having headaches every single day. I don't remember how bad they were in the beginning but I know they were eventually overwhelming and were there 24/7. They are not migraines. The pain is in different places all the time: forehead, back of head, jaw, behind eyes, etc. There is no pattern. I have been to an optometrist, neurologist, and 3 different GPs. I have had X-rays, an MRI, and blood work done multiple times.
I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
I hate not knowing and trying to find ways to make it through the day. Also you might want to look at narcolepsy. I thought I might have Narcolepsy, since I have the hullicinations sometimes. When the doctor told me I had hypersomnia I asked if he was sure it was not narcolepsy. He told me one of the differences is naps help people with narcolepsy, but not those with hypersomnia. And napping never made sense to me, because it did nothing to relieve the tiredness.
i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
I'm answering a lot of questions with the same things. Narcolepsy. That was me. See a sleep specialist. Don't lose hope. Try not to take Adderall. Make diet changes.
Narcolepsy is often triggered by a virus or infection. For me, it set in after I had strep and swine flu (at the same time).
This could also have something to do with thyroid. That can be tested by blood.
Narcolepsy
Narcolepsy is a sleep disorder that involves excessive, uncontrollable daytime sleepiness. It is caused by a dysfunction of the brain mechanism that controls sleeping and waking. If you have narcolepsy, you may have “sleep attacks” while in the middle of talking, working, or even driving.
Common signs and symptoms of narcolepsy include:
*Seeing or hearing things when you’re drowsy or starting to dream before you’re fully asleep.
Habitual snoring and gasping for breath during night is a usually earliest sign with excessive daytime sleepiness, fatigue, feeling unrefreshed, night sweats, morning dry mouth or sore throat and headaches. There may be a family history. Overweight, an overbite, a recessed chin, and a structurally abnormal airway, smoking, alcohol and sleeping pills can be some causes. Losing weight is one of the best things to do, avoid alcohol, smoking and sleeping on to your back.
Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study).
Dr.
has anyone heard what vaccination is reportedly linked to narcolepsy? i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.
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