Narcolepsy forum
Common Questions and Answers about Narcolepsy forum
narcolepsy
Having a diagnosis of narcolepsy can bring some complications such as getting insurance, possible driving restrictions, etc. However, the truth is the truth and I personally would want to know and be treated specifically for it. But you may want to get your business in order first, such as know what the legalities are in your state, and have an insurance plan in place that is not temporary.
I have narcolepsy with cataplexy. Cataplexy is rare in the absence of narcolepsy, but I believe it is possible. You may want to get a referral to a sleep neurologist to rule out narcolepsy w/ cataplexy, even if you're not sure you have symptoms of it, especially if these attacks are bothersome to you.
The other thing you could be experiencing is presyncope, which can be accompanied by a loss of muscle tone as well as the sensation of almost passing out.
Stress can cause the falling out.. narcolepsy.. and she's already had the brain surgery a few years ago w no relief.. looking at another surgery.. we'll know for sure the 31st.. she is a fighter like all of you.. but the chronic pain is at it's peak.. it never goes away are their any non habit forming drugs that can help w that... and when she is not having narcolepsy... she can't sleep at all... any suggestions?? Just want to help my baby sister...
I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Hi, welcome to the forum. Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. In this condition there will be “automatic behavior" such as driving past a highway exit or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy (emotionally triggered muscle paralysis resulting in partial or complete collapse).
22 hours is far more than I oversleep but I lose several hours a day. I thought of narcolepsy and other problems and will ask a doctor next week. If he can help I will put it on the forum for you.
Take a look at this forum. You might have the same symptoms as many of these people and there are a couple suggestions. I found it interesting to know others had the same sensations and all around the same age. I was 17 or 18 when mine started. Still not sure what it is but have much better idea about possibilities I never even considered which is great since it's gotten much worse in short time.
Hi, welcome to the forum. Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. In this condition there will be “automatic behavior" such as driving past a highway exit or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy (emotionally triggered muscle paralysis resulting in partial or complete collapse).
Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder.
Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!)
Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study).
Dr.
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