Narcolepsy eds

Common Questions and Answers about Narcolepsy eds


Avatar n tn I have recently been diagnosed with narcolepsy. For years, I have suffered from EDS muscle weakness that has become worse as I have aged (mid-40's). In the beginning, I blamed it all on being single and burning the candle at both ends (20's); then being a new parent (30's) and then being a single mom to a child with narcolepsy and a preteen (now 40's). I was told I have mild cataplexy.
1066766 tn?1254995664 These are some of the few symptoms of my narcolepsy. It frequently affects people who have narcolepsy, a disorder whose principal signs are EDS (Excessive Daytime Sleepiness), sleep attacks, sleep paralysis, hypnagogic hallucinations and disturbed night-time sleep. Cataplexy is sometimes confused with epilepsy, where a series of flashes or other stimuli cause superficially similar seizures. The term narcolepsy gets people confused because they only recognize the cataplexy and not the EDS.
Avatar f tn Hello, Without physical examination and investigations,diagnosis is difficult but your symptoms are suggestive of narcolepsy. Narcolepsy is a neurological condition most characterized by Excessive Daytime Sleepiness (EDS), in which a person falls asleep during the day at inappropriate times, such as at work.Diagnosis is by polysomnogram and the multiple sleep latency test (MSLT). I sincerely advise you to consult a sleep specialist and discuss this possibility with him.
Avatar f tn Stress can cause the falling out.. narcolepsy.. and she's already had the brain surgery a few years ago w no relief.. looking at another surgery.. we'll know for sure the 31st.. she is a fighter like all of you.. but the chronic pain is at it's peak.. it never goes away are their any non habit forming drugs that can help w that... and when she is not having narcolepsy... she can't sleep at all... any suggestions?? Just want to help my baby sister...
Avatar f tn The patient is taking Lamictal for depression and Provigil for narcolepsy (EDS) diagnosed via MSLT.
Avatar f tn t need to have every symptom of narcolepsy to actually be diagnosed with it, however, you do need to have EDS (excessive daytime sleepiness). I was diagnosed with narcolepsy twice, and I am always exhausted as well and need to take naps during the day, however, I don't have cataplexy or sleep paralysis... It is really common for narcoleptics to have restless sleep at night as well, and the vivid hallucinations (along with noises) and dream-like feelings are also a key sign of narcolepsy.
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
4592241 tn?1359813138 I recently fell asleep driving on the freeway and that was the final straw. I saw a specialist last week and had testing..he diagnosed me with EDS...and wants to put me on a narcolepsy medication. I am terrified that I will become addicted to these meds. This will compromise my sobriety, and feel like Im screwed. Is this cheating or what??? Also wondering if my history of drug use and meth use for 10 yrs in my 20's had caused this to happen.
Avatar f tn I went to a Rheumatologist to get evaluated for EDS and was basically told that I needed to see a geneticist for that. When I explained that I feel an awful sense of craniocervical instability which has been confirmed by a PT eval and that from what I researched the hypermobile form of EDS can't be dx'd genetically, she just looked at me. I also have a retroflexed odontoid.
Avatar f tn I'm answering a lot of questions with the same things. Narcolepsy. That was me. See a sleep specialist. Don't lose hope. Try not to take Adderall. Make diet changes. Narcolepsy is often triggered by a virus or infection. For me, it set in after I had strep and swine flu (at the same time). This could also have something to do with thyroid. That can be tested by blood.
1041839 tn?1278681846 My name is Shannon. I have Chiari (decompressed 5/24/10) EDS, cervical stenosis and bulged discs, DDD and "possible Occult Tethered Cord" ..... and just recently found out my 15 yr old son has Chiari, cervical stenosis, ddd, and EDS as well :( As Selma aslways says "Im glad you found this group but sorry for the reason you are here"! Selma, I dont have to sit in the corner do I???
807506 tn?1248649733 I m concerned that its affected me. Ive read that prednisone has eliviated eds in narcolepsy, and I tke codeint to stay awake. Im thinking certain levels may have been affected. My Dr. said these things cannot be tested. I know how to spell all of the words in this but I cant remember some of them. I want to know where I can get more info about this.
Avatar n tn Also since the decompression, I have been diagnosed with narcolepsy. The burning prickly sensations are random, and stops me in my tracts. I have severe acid reflux, and I also get the burning in my neck when the reflux flares.
Avatar f tn Narcolepsy is a CNS disorder and is thought to also be caused by an autoimmune disorder. Causes: current thinking is that a group of cells in the brain responsible for sleep-wake behavior is damaged or absent. (gosh do you think the MS lesions might also damage this area for people unlucky to have both!) Tests: The spinal fluid of most patients with narcolepsy shows the neuroprotein lacking or deficient. The neuroprotein is "hypocretin".
424247 tn?1203558853 Excessive daytime sleepiness (EDS) - interferes with normal activities on a daily basis, whether or not a person with narcolepsy has sufficient sleep at night. People with EDS report mental cloudiness, a lack of energy and concentration, memory lapses, a depressed mood, and/or extreme exhaustion. You may get more information by going through this link. Hope you will do better. Post your thoughts and take care.
Avatar n tn Dear Doctor, I posted previously that I suspected I have UARS and my sleep study showed AHI of 5.2 with an arousal index of 32.3/hr (unexplained arousals). I also have excessive daytime sleepiness. The sleep doctor and my primary had both said my sleep study was "normal" despite the high arousal index and prolonged sleep latency [67 min) and prolonged REM latency (216 min).
Avatar f tn There are some non profits that can fly you to these appointments....check a few of them out to see if you can get to one with their help. So many think we have meneire's as many symptoms are similar and a few have been DX'd with both....but many times it is a mis-DX. Tarlov cysts, also known as perineurial cysts were first believed to be asymptomatic...but can be symptomatic in a number of patients.... I know I asked b4, but were you DX'd with EDS?
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.