Narcolepsy and disability

Common Questions and Answers about Narcolepsy and disability


Avatar f tn I am helping my friend with his disability claim. He has PTSD also and is not able to discuss the Narolepsy with doctors or me or anyone. How can I show the severity of his Narcolepsy. He goes out of way to look normal everytime he has an evaluation for mental stability. He has sleep Apnea #12 CPAP nightly. He is not able to tolerate the Narcolepsy medication. throat clossed, tongue swale, stomach blew up, stayed in toilet. Can some tell me what to claim and how to show the severity?
2164295 tn?1337019528 My son, age 41, has severe narcolepsy. He is on disability because of it. He takes Ritalin for the narcolepsy and clomipramine (generic for Anafranil) for the cataplexy. The Ritalin helps, but he can only take 3 pills a day (insurance won't approve more), and he really needs at least 2 more a day to stay awake and function. He has bad nightmares and yells out in his sleep when he does not have the clomipramine.
Avatar f tn I have had MS since 1995. I have gone through many bouts of paralysis, blindness, hear loss, memory loss, confusion and now I have narcolepsy. Everyone thought I was crazy and didn't think it was serious.....although I had 11 incidences of falling asleep while driving. I work for Disability Rehabilitation Services and they hire alot of people with disabilities. If they see me and I am having facial paralysis (Bells Palsy) or dragging my left I have had MS since 1995.
Avatar f tn Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels. Is there any other answer for sleeping so much. Or am I just in denial.
Avatar f tn s done a 1000 sleep latency tests and never had anyone fall asleep during all 5 nap times, fall asleep so quickly and dream too. She mentioned narcolepsy and hypersomnilance. Sometimes I Amos tired in the morning that I can't open my eyes or move. What is going on? I'm very frightened. And, I just got diagnosed 2 days ago with bad laryngopharyngeal reflux. Any thoughts are appreciated.
Avatar n tn i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.
729135 tn?1247495402 My MSLTs say I have Idiopathic Hypersomnia. The genetic panel says positive for HLA-DR2, DR7 and HLA DQ1, and DQ2. It also says that hypersomnolence does not have a genetic association. During my MSLT, my sleep latency naps were 2, 1.1, 3.1, and 3.1. During the 2nd nap, (<1) I didn't think I feel asleep because I was thinking about falling asleep, The test said no REM in any naps. Do I have narcolepsy or hypersomnia?
Avatar n tn Hi, narcolepsy and sleepwalking are different sleep disorders. Narcolepsy is characterized by excessive daytime sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnagogic hallucinations and automatic behavior. It can however be regulated with medications. So, ensure to take them regularly and follow up with your doctor. Regards.
Avatar f tn My doctor took me off work and pretty much put me on bed rest because I kept randomly falling asleep. I'm now waiting to undergo testing for narcolepsy and sleep apnea. Hopefully conclusive results come back soon. I'm 35 weeks and 5 days today and I didn't plan on leaving work so soon. My job is in limbo waiting to see what happens. Does anyone have any advice or know what benefits I can apply for in the mean time?
967168 tn?1477584489 to have such strange and dramatic symptoms, because I think it bought me my one-way ticket to disability land. I also didn't manage to even maintain part-time work for long. I struggled along at 10 hours or so per week for all of I think... 2 weeks was it? Something like that.
Avatar f tn Hey. Keep your head up, there's a lot you can do to work with this. Feeling defeated and depressed comes along with a sleep disorder, I know. I'm just a couple years younger than you. The same things happened to me. I was so smart but all my grades started falling because I could never get anything done. Everyone thought I was just lazy- I thought I was just lazy. But I was tired all the time and unmotivated. See a sleep specialist.
Avatar n tn t have that get him tested for narcolepsy. narcolepsy in real life isnt always as dramatic and obvious as it is in the movies. adults with narcolepsy, as children their symptoms very closely resemble add.
Avatar f tn Habitual snoring and gasping for breath during night is a usually earliest sign with excessive daytime sleepiness, fatigue, feeling unrefreshed, night sweats, morning dry mouth or sore throat and headaches. There may be a family history. Overweight, an overbite, a recessed chin, and a structurally abnormal airway, smoking, alcohol and sleeping pills can be some causes. Losing weight is one of the best things to do, avoid alcohol, smoking and sleeping on to your back.
871962 tn?1244730028 Think about adding medications, treatments and other issues relating to narcolepsy and hypersomnias to your sleep tracker. Insomnia and sleep apnea may be common sleep disorders, but not the only ones.
612876 tn?1355514495 The sleep specialist said that narcolepsy and dysautonomia are mediated in some of the same parts of the brain, and for reasons that aren't yet completely understood, people who have one tend to have higher rates of the other than healthy people. He said that this will make treatment of both disorders more complicated, obviously. But I am just so excited to have an answer finally!
Avatar m tn memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy, and it can be exacerbated by the hormone shifts that happen with menstrual cycles. In fact, often times, people don't have "Bells Palsy," but cataplexy. Viruses and some vaccines (namely the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too.
Avatar n tn See a sleep center. Recurrent "Bells Palsy," memory problems, insomnia symptoms, chronic pain, and twitchy feelings in muscles are actually very characteristic of narcolepsy with cataplexy. In fact, often times, it's not "Bells Palsy," but cataplexy. Viruses and some vaccines (especially the H1N1) can actually precipitate this, but it can happen seemingly in random fashion, too. Common misdiagnoses are depression, epilepsy, and migraines.
Avatar n tn ve been reading about narcolepsy, and although my sleep study did not indicate anything about it, I find one of its symptoms prevalent in my experience. Often, I seem to dream right when I fall asleep - not after the 90 minutes it's supposed to take to reach REM. I know this is true because sometimes I'll wake up only about a half hour after falling asleep, having already dreamt. Does anything other than narcolepsy cause this?
1287446 tn?1313947638 00 I’m exhausted and go home and sleep anywhere from 2-5 hours typically, waking up at night (usually) and staying up until anywhere from 2-4 am before getting another few hours of sleep. I’ve found this cycle works the best as far as getting me through the day and getting the most done. Generally one day a week, I will just come home and crash and sleep (of course not non-stop, but I’ll stay in bed) until the following morning when I have to get up for work.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar f tn Narcolepsy can only be diagnosed with a multiple sleep latency test that is done during the day. Dr.
Avatar f tn A couple weeks ago i went to a big city to see a neurologist who told me I have cataplectic episodes and that I have narcolepsy. I have not had sleep studies or anything more. Could this REALLY be narcolepsy/cataplexy? Is it NECESSARY to get more diagnostic work?
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
Avatar f tn Is the methamphetamine for recreational use? Because then honestly, the length of time to "abstain" would be forever. I use a medication (prescription) for narcolepsy and they are letting me take it right up to the morning of my upcoming surgery. Surgery involves more than just the anesthesia. There is the pain management afterward and there are issues involved if someone is addicted to something like methamphetamine. It's like smoking.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Learning as much about narcolepsy as possible and finding a support system can help patients and families deal with the practical and emotional effects of the disorder, and situations that might cause injury. This link may be helpful: It would be best to see your doctor for definite diagnosis an proper management. Take care and keep us posted. and proper management.