I have been trying to be refered to a specialist autonomic unit in London
, UK but at the moment I am not able to do so. I see my neurologist again in November and will go from there.
My Gp has now mentioned ME to me and wants me to be assessed for this - I have now also learnt that Me and POTS can be present together.
I am a member of the dysautonomia (autonomic dysfunction) community which is a massive support to me at this time.